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Old 01-05-2008, 08:23 PM #21
shiney sue shiney sue is offline
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Default Beth

I decided to have a look so I went to see you site. You have been doing
a lot of work and helped many as many who have been brought or
wondered on you site..I like Mrs D. think you would be a help to our womwn's
concern site..

Im one of the one's who asked for more details on what Drs. You might of
seen,what test's so forth..My mom had a rare form of brest cancer,and
she was in her 80's. Since she felt no pain and even through she lived
by a older sister who had a brest removed,in her 80's.. (they felt my Aunt
didn't need chemo,or radiation.) By the time Mom Cancer was found,she
had as much of the brest removed as they could,she passed away
3 yrs. later,Mom had been diagnosed with PN first..her sister 91 just 2 years
ago was diagnosed and has a third in a nursing home has PN she's in her
80's but was in her 70's when Diagnosed..I'm 61, had major truma sugery
on both legs among other surgery's. I believe it was Mrs.D.who said they
don't like to do reconstructive on people unless truly needed before 50.
They just don't last and you may end up with repeats..

I feel there has to be genetic problems in my family,there's why i'm so courious. I have a 61 year old cousin who had knee surgery young,we
both stared dance lessens at the age of 4. And she had breaast Surgery
20 years ago and had them removed not long ago,she's ill very much like
Yorkiemom. I could write a book on why dance lessons at 4 is just wrong.

I'm not that computer savy as we all know,but how could I have gotten the
music off when the other women were talking..We are all so different and
I have just really messed up my nose falling..But I think after some research
I may have to do it to breath. I noticed you have had a great deal of trouble falling,perhaps a cane..I hope you do come back,but your busy be proud of
what your doing ,just don't over do. And another LTI thing like our Kmeb.
Billye I was disg. with my SS just before my leg problems,but wow..And Mrs d
somebody fussed at ya naaa...J. Sorry about all that adding to falling...
Hugs and blessings to all.. Beth I must say your a lovely young woman...Sue
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Old 01-05-2008, 10:41 PM #22
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Default Cut Nerves?

My PS did't say anything about cutting nerves. He said the nerves will get streched. I can't remember if it was a lift or reconstruction but the PS said this is when you have to worry more about problems with the nerves. I didn't get the same "implant 101" like you did.
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Old 01-06-2008, 01:10 AM #23
shiney sue shiney sue is offline
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Default Undecided

I hope people who have had them will PM you if you are concered about PN
Mrs.d left good advice on women's health..Good luck honey. Sue
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Old 01-06-2008, 10:02 AM #24
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Default

Sorry to put in my 2 cents, but I feel that its necessary fo all of us
to be aware of possible complications with anything that we
put into our bodies, orally, IV, or surgically.

Implants are foreign bodies, not part of our anatomy.
Our bodies do not take to them lightly. Teflon, steel rods, silicone, etc-
tend to be impacted in some way. Silicone or saline breast implants
are encapsulated in a bag made of what...silicone? Other material?
It doesn't matter, its foreign & probably will affect our system in some way.

Surgery is cutting. Things don't always get 'bent', they get severed.
Any surgery is a good probability for PN of some type.
To me, its a logistical problem.
LOGIC !

True, there are false logic situations that are very convincing, but
plain, simple logic says to me-
'if it doesn't belong, it will be either rejected or cause some type of problem'.
Then it becomes a situation of pros & cons.
Trade-offs for a better quality of life.
Those considerations must be evaluated and a conclusion must be made for the well being of the individual.
Concessions have to be made.
I'm almost 64, and probably will have to have CTS surgery soon, and maybe a hip replacement in 5 or so years. I'll take my chances on the hip & will probably not be around for any long term complications.
Hell, I already have PN !
But when one of the cons is life threatening,
to me- its a logical "no-brainer"!
Don't do it !

Its a shame (& a crime) that so many have had to suffer, and are suffering because of a lack of proper information- and have gone thru procedures naively and without adequate information prior to having these things done. My sympathies go out to all who suffer.
But for those who are contemplating...... be informed, be aware!
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Last edited by nide44; 01-06-2008 at 10:19 AM.
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Old 01-06-2008, 11:17 AM #25
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Default Nicely explain to me about PN

Can someone NICELY explain to me how you develop PN after ten years? A few of you ladies said that your problems started ten years after you had your implants. Well if nerves get severed during this surgery they will regenerate. So I don't understand why after ten years people get PN? The nerves should be long healed by then. I noticed some other, I think it was a gentlemen, posted something to the effect that people are getting an "attitude" on this website. I noticed this right away. People tend to give nasty comments and I thought this website was supposed to help people?
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Old 01-06-2008, 11:52 AM #26
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Default

undecided, that "attitude" is a minority not the majority. also the written word can be taken the wrong way. you can't "hear" the person.

this is a very supportive site. this a site where people have health issues, so you will get the replies based on their health experiences.

nerves can take years and years to regenerate..if ever. so pn may not come on right away.

any and all surgery involves cutting. cutting involves severing nerves and tissue...muscle. your surgeon should explain this. if not, i suggest you find another.

i am neither for nor against breast augmentation.

my sister who was MAYBE an A cup had an augementation. in her mid 40's. she is now full B..small C. she didn't do it just for vanity, she did it because she couldn't get shirts and dresses to fit. they would bag and sag.

me...i would gladley get rid of some. i can't find shirts that fit right and i think it makes me look heavier than i am. plus i have severe back problems and i'm a belly sleeper.
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Old 01-06-2008, 12:23 PM #27
bethtaylor bethtaylor is offline
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Default

Quote:
Originally Posted by shiney sue View Post
I decided to have a look so I went to see you site. You have been doing
a lot of work and helped many as many who have been brought or
wondered on you site..I like Mrs D. think you would be a help to our womwn's
concern site..

Im one of the one's who asked for more details on what Drs. You might of
seen,what test's so forth..My mom had a rare form of brest cancer,and
she was in her 80's. Since she felt no pain and even through she lived
by a older sister who had a brest removed,in her 80's.. (they felt my Aunt
didn't need chemo,or radiation.) By the time Mom Cancer was found,she
had as much of the brest removed as they could,she passed away
3 yrs. later,Mom had been diagnosed with PN first..her sister 91 just 2 years
ago was diagnosed and has a third in a nursing home has PN she's in her
80's but was in her 70's when Diagnosed..I'm 61, had major truma sugery
on both legs among other surgery's. I believe it was Mrs.D.who said they
don't like to do reconstructive on people unless truly needed before 50.
They just don't last and you may end up with repeats..

I feel there has to be genetic problems in my family,there's why i'm so courious. I have a 61 year old cousin who had knee surgery young,we
both stared dance lessens at the age of 4. And she had breaast Surgery
20 years ago and had them removed not long ago,she's ill very much like
Yorkiemom. I could write a book on why dance lessons at 4 is just wrong.

I'm not that computer savy as we all know,but how could I have gotten the
music off when the other women were talking..We are all so different and
I have just really messed up my nose falling..But I think after some research
I may have to do it to breath. I noticed you have had a great deal of trouble falling,perhaps a cane..I hope you do come back,but your busy be proud of
what your doing ,just don't over do. And another LTI thing like our Kmeb.
Billye I was disg. with my SS just before my leg problems,but wow..And Mrs d
somebody fussed at ya naaa...J. Sorry about all that adding to falling...
Hugs and blessings to all.. Beth I must say your a lovely young woman...Sue
Hi Sue,

Thanks for checking out my site. It is alot of work but I feel as though I'm doing what I have to do. I was not informed about these dangers. I also at that time back in the early nineties could not find anything on saline filled implants. Everything was about silicone and all I knew was to stay away from silicone. Believe it or not, my first PS consultation was in 1992. Shortly after that, they banned silicone gel implants and that completely changed my mind about the entire breast implant thing. It scared the hell out of me. Then the damn breast implant manufacturer's started promoting what they called 'safe saline' implants. That combined with the media, magazine photos of what the perfect women should look like, I started my research again. I searched for a long time and finally became confident that this was the answer for me. How foolish I was. My PS basically told me what he knew I wanted to hear. It wasn't until 1996 that I actually felt that I did enough research to go through with it.

Biggest mistake of my life and I would do anything to go back in time. I now do not like fake boobs and think they are just too much for most people. Too hard looking and too round.

Anyway, I'm very sorry to hear about your Mother. It does sound like you have some genetic factors in your family that would make you more likely to have problems. My uncle just had knee replacement surgery a few months ago. He is very active at 83 years old and found that he couldn't play golf because of his knee so he decided to have it done. He had no idea about me and what I've gone through. He knows I'm sick but he doesn't know why. Should I have told him? I don't know. He is thrilled now and back to playing golf. He is a bit stubborn and set in his ways of thinking so I doubt that he would really have listened anyway.

My forum becomes very busy at times so I will stop by and contribute when I can. It seems to get so busy at times that I can't keep up and then it will slow down and that is when I like to catch up and post info on other websites and blogs to raise awareness.

BTW.....my PN was killing me last night. I was thinking of this website. I normally don't complain about the pain on my own forum. LOL Last night was a killer. I haven't had it that bad in a while but we had a front moving in and it gets me everytime. The fall is usually a bad time for me because the temperature changes frequently. I'm not sure if anyone else experiences PN like this. It really feels like someone is chipping away at the bones on my shins.

Have a great day everyone!
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Old 01-06-2008, 12:28 PM #28
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Default Bob B

Quote:
Originally Posted by nide44 View Post

[/I][/B]Its a shame (& a crime) that so many have had to suffer, and are suffering because of a lack of proper information- and have gone thru procedures naively and without adequate information prior to having these things done. My sympathies go out to all who suffer.
But for those who are contemplating...... be informed, be aware!
Well said and I agree!!!
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Old 01-06-2008, 12:35 PM #29
bethtaylor bethtaylor is offline
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Default Cut Nerves - Undecided

Quote:
Originally Posted by Undecided View Post
My PS didn't say anything about cutting nerves. He said the nerves will get stretched. I can't remember if it was a lift or reconstruction but the PS said this is when you have to worry more about problems with the nerves. I didn't get the same "implant 101" like you did.
I didn't have any nerves cut either. I had no pain in my breasts at all. I have heard of women having pain in the breasts because the implant is sitting on top of a nerve. This can cause alot of pain. In a way, I wish I would have had this from the beginning because then I would have known it was my implants and would have had them taken out before the damage was done.

My PN is in my lower legs and arms. I was told it was caused by a b12 deficiency. I know that the many women with implants end up experiencing vitamin deficiencies. I'm not sure why. I have noticed that B12 shots help with the pain but I can't get my doctor to approve it any longer. Makes alot of sense, doesn't it?
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Old 01-06-2008, 12:36 PM #30
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Lightbulb perhaps...

Quote:
Originally Posted by Undecided View Post
Can someone NICELY explain to me how you develop PN after ten years? A few of you ladies said that your problems started ten years after you had your implants. Well if nerves get severed during this surgery they will regenerate. So I don't understand why after ten years people get PN? The nerves should be long healed by then. I noticed some other, I think it was a gentlemen, posted something to the effect that people are getting an "attitude" on this website. I noticed this right away. People tend to give nasty comments and I thought this website was supposed to help people?
The PN people have here, is in the feet/hands/and some full body.

The local damage potential at the breast site, is really dependent on the skill of the surgeon. (we are NOT talking about neuropathy in your breasts or adjacent areas). We are talking about a full body reaction, that is painful and hard to treat. Some people can no longer walk, and the drugs do not cure anything or get rid of all the pain. The nerves may be affected that control your stomach and
blood pressure. Neuropathy of the stomach is called gastroparesis and you can no longer eat normally. If blood pressure control
is affected you may faint unexpectedly or not be able to move around normally. (autonomic neuropathy). If it affects your eyes, it is optic neuritis and can cause blindness.
The word neuropathy means disease of nerves.

The neuropathies that may develop are toxic/autoimmune ones and as such are systemic and take time to manifest. Like I explained before some people are genetically very sensitive and have very reactive immune systems.
In these people over time, antibodies will be made which may then move on to attack the nerves causing neuropathies.

Neuropathies occur very slowly as a rule. Many years pass before significant pain or impairment can be measured.
The only exceptions to this are infectious viral infections or vaccines that induce Guillain Barre syndrome, which is acute. Neuropathies can be toxic, (from poisons like arsenic, or pesticides or solvents), metabolic (hypothyroid and diabetes), from hidden cancers (paraneoplasia), from drugs (like statins), from vitamin deficiencies (B12, thiamine B6) from autoimmune attacks, from many things.

With all due respect to you Undecided, I don't think you understand what neuropathies really are. They are complex, hard to diagnose, and treat.
The risks of breast implants are basically~~1) the not well understood reactions of the body to silicone,2) and the induction of autoimmune complexes which lead to the destruction of nerve tissue by antibodies the body makes.

We don't have in medicine the little wand thingys that you see on SciFi shows like Star Trek. No one can wave a sensor over your body and predict what will happen to you in the future, or even what is happening now, but just not yet visible.

The bare bones facts about neuropathy is that as you age, Undecided, you might get a neuropathy from any one or more of the causes I listed above, even if you DON'T get the implants. No one knows what your future holds.
The members of this board suffer daily, with pain, loss of mobility and dealing with a disease that doctors do not understand fully, and cannot treat. This is very frustrating, and I see people who are concerned about you, and don't want to see you hurt.
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