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Old 01-12-2008, 07:21 AM #6
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darlindeb25 darlindeb25 is offline
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darlindeb25 darlindeb25 is offline
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Join Date: Aug 2006
Posts: 744
15 yr Member
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I have to comment. I had an appointment yesterday with my neurologist. He has been pushing me to see an orthopedic doc for my neck and shoulders and also has written me a RX for PT on my neck and shoulders. I do have a herniated disc in my neck, yet at this time, I look at the cost of PT, against the pain for now and don't feel I can, nor want it yet, it's just an option still. He has me on Topamax and just increased it to 125 mg, which I do feel has helped with my headaches and the shoulder pain. He can feel the bunches in my shoulders.

I worry more about the small fiber neuropathy in my feet and legs and I guess he can't understand why. When I got to his office yesterday, my right foot started cramping, and cramping bad. While I was waiting for him, I couldn't take it anymore, I removed my shoe, the cramping was so bad, and it continued to cramp. As he is talking to me about my shoulders, and my foot had relaxed, it cramped again and I rubbed it. He says, "Well, you seem more worried about your foot!" Then I said, "Well Dr. Mehbratu, I take care of me and I have to worry about my feet, I have to work every day, I have to pay my bills, I have to work so I can come to you, I HAVE TO WORRY MORE ABOUT MY FEET THAN MY SHOULDERS, THEY ARE IMPORTANT, if I can't walk, my shoulders won't matter!" I was listening to him and rubbed my foot without thinking, he is suppose to be taking care of the whole person. I went to him specifically because of my feet and legs to begin with and he pretty muck ignores the small fiber neuropathy!

I have recently increased my B12 and the soles of my feet have started burning, I am hoping this is a sign of some small positives. The cramping, I think was because of the wrong shoes the day before! Also, I was glutened by a medicine for a UTI this week, so I could still be getting side effects from that too.

Thanks for listening to my rant. Tis over!!!!!
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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