Sue,
Typing so much when you are in pain yourself is just so sweet of you. I have a thing about pain meds. I don't want to become "addicted" to them. Around here you run into so much trouble trying to find someone who will prescribe them. And I do understand why.

But I also don't want to get caught in a pinch needing a medicine that is reasonable for me and be unable to get it. I found myself in this position years ago before my knee replacements and let me tell you, withdrawal without help is it's own kind of *ell.

Mentally..it's just something I'm having trouble doing again. I have to drive 50 miles to just see a pain specialist. Scheduling appointments and mail order prescriptions creates all kind of issues with my other medicines. They won't refill some of them until you are down to the last few pills. And just this last week, we discovered the special mail order pharmacy didn't receive my Humira prescription. So we are up against the wire with getting a new prescription, getting it mailed, their processing and special shipping for a medicine that has to be refrigerated from them to us.

That's one of the reasons I was looking for info for a pump. But I really don't know what all is involved with a pump. I guess I need to google and research. It might make me change my mind.

Well enough about this subject. We'll move on to something else.

Billye

billye, have you done a search on nt for the pain pump or the scs?

ok I understand,no way would my pharmacist or Neuro would let you mail a
cripth for morphine or fantanyl. But i'm closer to the neuro then your pt.
Bob and I have each other's power of attorney.Which means he can
pick up the morphinescrip,if i call it in leave my name birthdate leave her the dr.
name and my phone no. But she has been off for 3 months so the 2 Drs. that are taking her place are told by her nurse practioneror replacement drs. i have called..My Neuro teaches 3 days a week and see's patient's only 2 times a week..Most patien't should have power of attorney drawn up by lawyer put in hospital file..If your husband has passed away or no children,
or living relatives,you may have trouble getting what you want done..Living
wills last only so long in some states check with your hospital.
I have never been given enough morphine where i became addicted but it
took me 3 yrs. to believe that. I call 2 days ahead no sooner than that..
I get sick and have taken compazene with morphine if i have major surgery.

If you think a pump would work,please ask your pt dr. how they work any
infections so on don't blame you,everything that works on some well
we are all different. Bob except for sugery rarly takes more then Darvoct.
But when he fell and broke that bone in pelvis area he told me he hurt so
bad,i mean he could't sit had to lay down or stand up,but would scream
trying to sit down trying to go bathroom. I finally got him in pt hospital,
because I couldn't help him for the 3 months for it to heal..And we all
heal so different...I feel so sorry for you,my younger son can only take
1 kind of pain pill or he get's so sick. I would talk to him about a pump
just talk because it's always been looked after by home heath nurse.
Unless they changed that as well.

Karen my nurse called Dr on call can eat some baby food,sorry to break in.
Luck to you Billye my heart breaks for you...Hugs and we do love you. Sue
Going to watch movie with Bob than Superbowl.

I too was wondering about the scs for you? That is what they wanted for me. I am not sure if it would work for your issues. Sending many thoughts your way and I am sorry.

Bilye,

I am glad to hear that there will be more testing done. I went through the same things. And, yes, too graphic to state here as well as discussing the PT. But, honestly, if Mayo is saying there is issues, I would try this specialized therapy FIRST before resorting to a SCS. I know, I am in pain too with the spinal bit and neuropathy. But as for all this other, the pelvic floor PT was the best thing I ever did. I just don't know much too much about the SCS' other than what people have said about them on the spinal boards. But everyone is different. I would really just do the research first which I am sure you will.

I feel so badly for you, Billye. You have been so brave fighting this pain for so long. I can't even remember how long, but it seems like a very long time...

I don't know a lot about some of the pain medications, but you may recall me mentioning my friend here who is on Methadone. I don't know enough about it to recommend it, other than IF you ever take it, don't do it without a doctor monitoring this...

My friend though at least has a life. Granted, it is not exactly like it was before, but she is able to get around and take care of a teenage son... I want to say she is on a combination of that along with something else-maybe Oxycodone... Can't remember.

Please, don't resist taking something to give you some comfort and pain relief. Your life may not be as it was before, but if this could give you some relief, a little peace and maybe a few smiles, wouldn't that be worth it to you? Taking pain medication so that you can have a life should be considered an acceptable means of obtaining relief. You will not be viewed in the same manner as someone who takes drugs to get high... Not one of us here in this forum would EVER consider you a drug addict, nor would those close to you who love you and have seen the kind of suffering you go through. Trust me on that!!! It really is OK...

What she says about it being hard to find someone to prescribe these-she is dead serious and not exaggerating in the least. I don't know how most of these doctors think patients like this can function... Many are left to suffer, which is outrageous!!! There is one very good pain management doctor close, although I don't know if he prescribes the pump...

Maybe this is primarily a problem with Texas doctors, I don't know...

I have rambled on enough... Billye, please go for whatever you have to take to give yourself a break... And, don't look back...

Cathie

I see the pain doctor today. 100 mile ride. Not my idea of fun. I've read all your posts, researched and researched and frankly this isn't an easy decision to make. I so don't want to take these medications. It just goes against my grain and that's even without having to consider the drying effects. So I'm making the trip but with no firm goal in mind. We'll see.

Billye