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Old 02-03-2008, 05:58 PM #11
daniella daniella is offline
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Originally Posted by AnnBon View Post
Hi All,

Has anybody heard of a doctor my the name of A. Lee Dellon, Director of the Institute of Peripheral Nerve Surgery in Balitmore,MD?

I have been recommended to see him by one of my many doctors and would love to here if anyone has heard or seen him.

Thanks for all the help.

Ann
I sent my records to dellon and he talked to my mom and we felt he was a sales person. All the docs I saw even other who did the tts felt it was a lst resort and I was not a candidate. Dellon said it sounded like I was and same pay upfront thing. Even the consult he makes a lot. A few weeks later I even got a follow up to see if I decided. I am glad I chose not because my issues have spread so it was not right for me. Also this surgery can cause other issues.Its sad but docs mae a lot of money off people like us and sometimes the best interest gets lost. I am not trying to influence you. Just don't jump into anything. Though sometimes things feel they can't get worse there always is a lower bottom for me anyway.Keep us updated

Last edited by daniella; 02-03-2008 at 06:32 PM.
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Old 02-04-2008, 11:19 AM #12
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Originally Posted by AnnBon View Post
Yes,I have gone on his website and I do agree the marketing set me off immediately as very odd.........
I meant for you to google for other responses or articles about him that
aren't so flattering. His website is a sales pitch designed by
really slick sales 'pros' hired to be productive.

His consultation alone could make him very wealthy, even if
he didn't have a (questionable) 99.9% acceptance for further work.

His claims also are questionable, as well as his procedures to
back up those claims.
He's a surgeon.
There is no surgical procedure to cure PN of a non-entrapment type,
or chemical/toxin cause.
He seems to make no distinction for this, and recommends his surgery
to everyone who 'qualifies'.
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Old 02-04-2008, 11:24 AM #13
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You know how on 20/20 they have undercover things. I swear they should do this at a doc office. Send in a healthy person for ex and see what surgery a doc would do. Also send in a person who is in horrible pain and see how they get treated by some docs. My dog gets treated better then me sometimes. I am sure there are some good docs out there though don't get me wrong.
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Old 02-04-2008, 01:45 PM #14
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Default Hi Bob

Bob,

Ofcourse I have googled him, way before I even posted here. Do you think I am stupid. I have been at this for a long, long time but I do appreciate you persistance to get the word out to me. And I am only kidding about the stupid part. Let's keep it light.....

Believe me I have not seen one good thing about this doctor except for his web site, so I am extremely suspicious.

Believe me I will not rush into anything after all I have been through.

Thanks again,

Ann
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Old 02-04-2008, 03:12 PM #15
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Default AnnBon I don't think BobB meant

to demean you per se...have you done a search on this board and any other boards you use for the name 'Dr Dellon'?

Here there are 9 references on my first search:
http://neurotalk.psychcentral.com/se...g_searchinfo=1
I'm sure if I were more word specific I could find more.
When I first saw his 'ads' in my searches, I was almost excited. ALMOST because I'd read a heap of a lot about PN and especially autoimmune PN [which I have]. The more I read, the deeper I searched, well the more suspicious I became. Believe me, I have known agony! I believe you do too as well.
The thing that made me write it off was the phrase: IF YOU QUALIFY.
If you have pain in more than one particular spot, in one particular limb, I believe that what will happen [my opinion only here] is that you will pay big bucks for services not covered by insurance = thousands of $'s to find out you are probably not eligible. Most insurances will not cover any diagnostics or procedures done by Dellon or associates. There are no clinical trials pending regarding the validity of his work either, tho maybe it's because its surgery? Don't Know. His work among established professionals is either viewed as very experimental or on the fringe.
I simply used my insurance to get more 'second opinions' It took 3 docs and I'm staying with Doc #2 as he is more accessable for my issues and purposes. I HAVE used the 'second opinon' or alternate opinion route to have seen 7 different neurologists since my onset. Of them all, #'s 2, 3 and 7 I would seek regular treatment from, #6, maybe, and the others...well forget it.
I now receive conventional treatment for my issues and it helps, tho doesn't cure them. Getting the DIAGNOSIS was the hardest part! I have to say that making all those appointments and seeing all those docs really helped me in knowing which docs were really looking out for ME! Keep in mind that not all neuros and other docs are as up-to-date as they should be about neuropathies, pain problems or spinal problems....There aren't even standards for the definition of pain nor the degrees of pain! It irks me to beyond the edge! Also keep in mind that so many folks here have been thru that gamut of out-of-date docs and at times actually find a GEM!
Please, keep trying! Pain is pain is pain! We all experience it differently, and in different ways. We all know how it impacts our lives for the worse. But, keep trying to find a good doc! They do exist and are rare animals to be treasured. Maybe even 'endangered'?
I hope you find one soon - a rare one, that is. 's - j
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Old 02-04-2008, 04:18 PM #16
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Default Your post reminded me.....

of Dr. Ducic at Georgetown Universtity in Washington DC. John saw him in 2003 to have some corrective surgery on an infected wound from an infected central line in his chest. John had the line removed at Inova Fairfax and a week later, Ducic fixed it. During our consult, he asked John about his neuropathy and did a quick exam. Told us that he was doing micro surgery for PN and that if John's PN from chemo did not clear up after 18 months and he was interested in pursuing a surgical option, to come back.

We never did, but we did like him.

I think he's doing the same type of work they do at Dellon. You may want to check him out if you are seriously looking for a surgical solution or just another option.

http://www.georgetownuniversityhospi...dy.cfm?id=1628
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Old 02-04-2008, 04:43 PM #17
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Quote:
Originally Posted by AnnBon View Post
Bob,

Ofcourse I have googled him, way before I even posted here. Do you think I am stupid. I have been at this for a long, long time but I do appreciate you persistance to get the word out to me. And I am only kidding about the stupid part. Let's keep it light.....

Believe me I have not seen one good thing about this doctor except for his web site, so I am extremely suspicious.

Believe me I will not rush into anything after all I have been through.

Thanks again,

Ann
Sorry if you felt insulted, I didn't mean it to sound that way.
You'd be surprised at the number of intelligent people who come looking
for advice or opinions, that haven't done a basic 'Google' search first.
I was merely trying to lead you in a more productive direction
than your posts led me to believe you had done.
Just getting to his site seemed all you had done-
from what you'd said/posted.
I wasn't trying to do anything other than to try to be helpful.
I do not have a reputation here, for demeaning others.
In trying to 'keep it light', I'll back-off, now.
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Old 02-04-2008, 09:44 PM #18
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Default By the way

Did you know that Dt. Del;on is a boear certified PLASTIC surgeon. He may not help neuropathy but he makes a nuuce incision and has good scars!!

Seriously, I live in Baltimore and was told of Dr Dellon when I was first diagnosed with neuropathy in 99. I researched him and did not like what I found. I never made contact with him but I did call his office and spole to the person who calls you back to sing his praises. There were some things I didn't like...he says he was a Hopkins surgeon when in fact he did not practice at the hospital, he taught in the medical school. He practiced at Union Memorial.

A couple of times I saw him in news shows talking about the wonderful way he can get rid of the pain and restore feeling to the legs and feet. This person on whom Dr Dellon operated was very happy wiith the surgery. I knew someone who saw him for a nerve comprssion from a car accident and she said he was actually nasty to her. He told her he can't help ker. I have also heard of people having more pain after the surgery.

Dorothy
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Old 02-04-2008, 10:12 PM #19
shiney sue shiney sue is offline
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Default No No

Bob she asked ,and you answered,you were not coming on any stronger,
then anybody else..Lady maybe you have a short fuse because you
are not hearing what you want. Once again read,talk so visit one of
his many Drs. But please you may have been at this a long time,read
Neurotalk we have alll been through this for a long time,no real Neuro
who is honest at this monemt,will come out and say it will change your
lifespan,they would be lying. But there are times with the frustration,
the fierce pain in so many,the many drugs do I ,don't I...Those like
many on this fourm with piccs,unable to eat be able drink to only liquid.There are
those who will have to deal with full body pn,not being able to swolllow.
PN can hit people so fast,you can turn in bed and can;t make it. ect,

Nobody is stupid on this forum,and they all know what they feel like.
your saying your stupid was just a joke,well others have been
through this for years..One is in his 70's he has come to peace with his
Neuro,oh and he's been dealing with it for 20 years. But joke or not
nobody including you on this forum is stupid!!!! We are human's who
hurt and have come to trust each other..We don't always agree,but Bob
be yourself.. hugs and blessings to all C we miss you,come back when
your ready,shoot come back even if you not.ha Hugs and blessings to all.
Sue
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Old 02-04-2008, 10:33 PM #20
daniella daniella is offline
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I know others do this surgery because my foot and ankle doc does it in MI but felt it was not for me and would rather me have a scs. That this surgery is not something to jump into. I am not saying for you though because I chose not to do either right now. What I will say and not just for dellon but others like a doc I saw who sells products that I feel almost like they are sale people rather then doctors. I don't like it. I feel many prey on people who suffer and are looking for any hope and relief. Not right at all. Sue yur sweet and I know that everyone here means the best from their heart. We all have different personalities. I am the first to say I am clueless though I do now the mental and physical aspects of pain. I am sorry if you mentioned or everyone here knows but what other treatments have you tried?
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