Sher--You did great--now you're a pro at posting! And thank you for correcting any mistakes I made in telling others about your hubby. Deb

did he start taking the folic acid before or after the low B12 diagnosis? the folic acid may have aggravated the B12 issues....B12 = -cobalamin; preferred, methylcobalamin.......good luck

He started taking the folic acid after the b-12 blood test

hi, i do not post often, but this caught my attention.
I do hope your husbands recovery is this 'simple' andd caomes from B12 problems.
What came to mind when i read this was Lupus or vasculitis (CNSV).

I agree you may have keep pushing for answers , I wiish you the best and i keep reading for followups.
keep faith,
DayTripper

It's possible that all the symptoms are due to the low B12. Have you read Rose's site, linked to in the stickies, explaining about B12?

Thanks again for taking the time to answer this post. Yesterday my husband got a call from the neuro office and was told every test taken was negative even the spinal tap. I was hoping the spinal would lead us in the direction. My husband was told that the doctor is reviewing his chart and he will speak with us on election day. That is the date of his next appoiintment.

prodding, reading, learning and questioning...Docs really don't know everything. I've had a couple admit that-soo, We've the vested self interest to do so. The NEXT step is to tactfully approach the subject of what to do next..w/the docs-in a WAY that THEY want to DO it all.

Ask after reading up, all those silly seeming questions...you'd be surprised how many all of us here [me especially] have asked over time. To me no question is insignificant!

Keep being the advocate! Hugs and strength and patience and perseverence! - j

Dear Sher & husband
Just want to wish you all of the best. Some people have tons of insight and good advice, most of us just read and remember you in prayers and warm thoughts.
Just remember you are surrounded by good friends in this difficult situation. Guess we have all been there, knowing something is wrong but not yet having a dx.
Per, Norway

When Sherrill gets a chance she will probably post more, but as of now, they do not know anymore than they did. Kevin saw the doctor this week and he said he hasn't found MS, but isn't ruling it out--didn't find anything else either. Kevin does have to continue with the B12 shots and the doctor is going to test him for celiacs, which I truly hope he doesn't have, yet at least it would give them some answers.