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Junior Member
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Thanks Daniella,
I found that I needed to go to a large research-oriented medical facility in order to get a diagnosis. The docs there seem to have seen more unusual conditions and are more interested in looking into conditions for carefully. The neurologist I started with did all the right tests, but didn't know how to interpret the results, even when they were grossly abnormal. Anti-MAG neuropathy is very slowly progressive, so sometimes treatment isn't recommended, because of the side effects and expenses. I do keep an eye on research that is being done. Rituxan has been studied for anti-MAG neuropathy, but still isn't covered by insurance. Just need to wait. No, I don't have fibromyalgia or diabetes. I'm sorry that you have so much pain. That must be quite difficult, especially without a diagnosis. ![]() NancyKay Quote:
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