Thanks Daniella,
I found that I needed to go to a large research-oriented medical facility in order to get a diagnosis. The docs there seem to have seen more unusual conditions and are more interested in looking into conditions for carefully. The neurologist I started with did all the right tests, but didn't know how to interpret the results, even when they were grossly abnormal. Anti-MAG neuropathy is very slowly progressive, so sometimes treatment isn't recommended, because of the side effects and expenses. I do keep an eye on research that is being done. Rituxan has been studied for anti-MAG neuropathy, but still isn't covered by insurance. Just need to wait.

No, I don't have fibromyalgia or diabetes. I'm sorry that you have so much pain. That must be quite difficult, especially without a diagnosis. I hope that you can find the right doctor to diagnose your condition appropriately. Keep looking!
NancyKay

Hi I'm Sue,
And yes to all you listed,moving makes it hard. Sounds like you had
very good Drs. how far are you from a better Dr. If you say there are
some here that might be able to help..Did you get put on any new
meds. Well wlcome to Neurotalk there are some amazing people here.
They will be by..hurts when you bang into the walls and such,please
be carefull...Sue

Thanks Sue!
Seattle is probably the closest large city (about 80 miles away). I was changed from sinemet to requip (for restless leg syndrome). I hope I will hear from someone else with the same condition.
NancyKay