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Old 02-20-2008, 12:25 AM #1
NancyKay NancyKay is offline
Junior Member
 
Join Date: Feb 2008
Location: Lummi Island, WA
Posts: 41
15 yr Member
NancyKay NancyKay is offline
Junior Member
 
Join Date: Feb 2008
Location: Lummi Island, WA
Posts: 41
15 yr Member
Default Greetings

I was diagnosed with anti-MAG peripheral neuropathy about 7 years ago with symptoms of numbness of my finger tips and toes and problems with balance and coordination. The first neurologist I went to was unable to diagnose me despite abnormal blood work. After 6 months of testing and a sural nerve biopsy, I was sent to a neurologist at the U. of Iowa Hospitals and was immediately diagnosed and started on IVIg infusions. These treatments were helpful initially, but for the last year the improvements have decreased. I moved to another state and am being treated by a neurologist who has never provided care for anyone with this condition. I don't generally have neuropathic pain, but suffer from burning of my hands and feet (especially when I get warm), balance problems (sometimes I fall or bump into things), weakness of my legs, fine motor problems with my hands, fatigue, intermittent mildly elevated temperature and occasional increases in blood pressure. I am taking neurontin at night and requip for restless leg syndrome. I find that I cannot be on my feet for long periods of time. My feet become too uncomfortable and numb. Anyone else with this condition?
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