Hi. Alan and I live in New York.

Just put Alan to bed. I role the wheelchair up to the edge of the bedroom, I get him to stand up, I fold up the wheelchair, bring it down a big step, into our bedroom. I back it up next to the step, Alan turns around and gently plops into the wheelchair, then I roll the wheelchair right next to the bed. It has to prop himself up on the bed because we have a Temper pedic kind of mattress toppers on the bed, so when he flops on the bed, I have to roll him over to his side of the bed.

I tell you, getting this man into the bed IS THE HARDEST THING ABOUT HIS WHOLE FOOT THING. I cannot wait until they take off the cast. I do hope they can do this next Friday.

I'm starting to develop muscles. The snow is almost all gone because the temp rose. Not good for my arthritis, this I will tell you. Between me and him, we both limp like two old people.

Just finished watching the Oscars. I now know I am officially getting on in years. I dont' know anyone. I didn't know any of the songs that were nominated. I'm lucky I recognize Jack Nicholson.

I must be getting old as well ,only George Clooney,but no songs,there
still going on..Sue

Mrs. D. What is an IVIG test? I have been one year on gluten free and that's what it took to straightening out my digestion, also cut out any alcohol due to causing acid stomach but still don't know my cause, not diabetic, had radiation 30 years ago to pelvic and that is suspicious to me. Appreciate your comment on the IVIG test. Thank you. Jelly Bean

Gee, I don't really understand this question.

IVIG is a powerful treatment for certain types of fast progressing PN and other autoimmune disorders. It is a drug/treatment. It is not a test.

The GTT is a glucose tolerance test that is given in many different ways, and measures glucose levels in the blood over various time frames, from 1 hr to 4 hrs or more.

People with very low glucose readings, over time, can have nerve damage, just like those with very high readings...which indicate impaired glucose utilization by the cells in the body.

It is good that you found some solutions to your problem, as gluten is showing up more and more in people with neuro problems.

A doctor MAY decide to try IVIG to see if there is any response and call that a therapeutic challenge. But IVIG is so expensive, most insurances require diagnostic testing and other information before allowing it. IVIG does not work for all PNs and seems to be reserved for autoimmune types.

Hi Michelle.

I had one neurologist who asked me if i was kidding when i said i could feel it in my lower abdomen. He was the one one who wanted to cut open both my ankles. His rationale was that it might be tarsal tunnel syndrome. He said if he did the operation and i got better it would mean he was right, and if i didn't get better he could look for another cause.

I never saw that nitwit again. i have now seen 6 neurologists and have not been helped by any of them.

Michele,

I've been battling PN for 10 yrs. I think the thing you're angry about is not so much his lack of empathy as his lack of willingness to spend time to explain to you more about your disease(s). It's possible that your condition could affect your digestion, nerve trunks (back), and other peripheral nerves. One explanation that these areas suffer a loss of sensory or autonomic fibers, too. I don't think you have too much to worry about with these issues, but here's what's helped me: Cymbalta (90mg x1) + Lyrica (25 mg x3) combo per day. Something new I've tried recently is sleeping with my feet elevated at night. It's puzzling why none of my physicians (there have been many) ever suggested that. Hope you benefit from my suggestions. And...change neurologists if you can.

Tex

I wander what they can do for you Cowcntry probably more medicine,what i never read in this forum is something about electro accapunctuur or Percutaneous Electrical Nerve Stimulation (PENS)this treatment can help you of your pain and in most cases within 10 to 15 treatments.
I had almost 30 treatments its going better but the recovery is still very slow.
Look into this treatment and try to find a somebody how can give you this treatment in your area

I would say to all people how are in pain try Percutaneous Electrical Nerve Stimulation because it is helping and it will help you of your pain

cowcntry get a female neurologist. women are generally more compassionate and caring i have found