Thanks NancyKay, I sure wish I new what I was doing on this site. I am trying to reply, but I want to reply with a seperate space, do you know what I mean? I guess someday I'll catch on.
I know what you mean when people are healthy. Sometimes they just have no clue what a sick person is going through and they treat you differently.

use the post reply in the lower left hand corner beneath where the last post is

I think I may haved gotten the idea on how to post to a post.

Everyone have a woderful night and give each other hugs.

Thank you so much HeyJoe for the direction!!

Michele

Over the years I've watched many people come on boards with this same issue.
"My doctor doesn't care".

I think that doctors know they cannot fix PN, so they are not motivated in most cases to do anything. They don't understand that :

1) finding a cause is important. If you have autoimmune neuropathy you can
try IVIG, or look at Gluten free life to help with it.
If you have ingested a toxin, you need to know what it was, to avoid.
If you have thyroid issues, or glucose resistance, you can fix that.

2) You can heal. You can try some of the nutritional supports suggested here.
You can have a MMA test to see if you are absorbing and utilizing B12. You can take B12 yourself...it is over the counter.
Other nutrients help nerves repair themselves. The peripheral nervous system is capable of that regeneration. But you won't hear doctors suggest this simple method because they weren't taught that in school.
Even Dr. Latov has put in his book erroneous information where nutrients were suggested. That is indicative at how little they think of it.

So getting a good diagnosis is important. But once you have that, traditional medicine has little more to offer. Strong drugs with heavy side effects are offered to "help", but they most often don't..they just create more problems.
People with severe pain issues, are deserving of adequate pain management, but many doctors ignore that too (here is where testing is very helpful in proving your pain).

Mrs D,

I don't know if he didn't care, but he certainly has no empathy. I think when you become a doctor, you should want to try to help that person, even knowing that their is not a cure to help that person.

I know the cause of mine was from diabetes, from 10 years of not listening to my doctor and doing what I wanted to do. So here is my damage........ small fiber neuropathy and I am trying to live with the damage I have caused. Of course when I was diagnosed last year, is when I decided to get my sugars under control. I guess better late than ever, so they say. Yes, I am depressed......... taking medicine for that........ seeing a therapist for the neuropathy, and I am only 40 years old. I should be a poster child for or rather a poster adult for diabetes.......

Cwcntry: I agree with everything Mrs D has said. First you need to find the cause. You don't say in your post what has caused your neuropathy. Have you had a work=up for a cause? If not, please look at hte lizajane.org list of tests, and bring them to the next neuro when you go. I'd suggest you request copies of ALL labs and tests that the current neurologist has done. If he's nearby, you can pick them up at his office; if not, have them mailed or faxed. But you need to know what's been done so far, and what needs to be done.

You have something which is evolving, and I dont' have a sense of how quickly this is happening. Nor do I know your underlying health. Perhaps you've posted it elsewhere, but it would help us help you.

I have the small fiber peripheral neuropathy caused by diabaetes. I was diagnosed with diabetes over 10 years ago and never controlled my sugars. Now I am payin the price. I do have my numbers under control now. I guess better to be safe then sorry. I just got a copy of my records. He did I am not sure what is called but hooked me up on my legs and then stuck me like it seemed like electricity shocks. Just did lab work to see what my levels of tegratol were doing in my blood. I am seeing a new neurologist next week because this guy to me was such a jerk.

Mrs. D. What is an IVIG test? I have been one year on gluten free and that's what it took to straightening out my digestion, also cut out any alcohol due to causing acid stomach but still don't know my cause, not diabetic, had radiation 30 years ago to pelvic and that is suspicious to me. Appreciate your comment on the IVIG test. Thank you. Jelly Bean

Gee, I don't really understand this question.

IVIG is a powerful treatment for certain types of fast progressing PN and other autoimmune disorders. It is a drug/treatment. It is not a test.

The GTT is a glucose tolerance test that is given in many different ways, and measures glucose levels in the blood over various time frames, from 1 hr to 4 hrs or more.

People with very low glucose readings, over time, can have nerve damage, just like those with very high readings...which indicate impaired glucose utilization by the cells in the body.

It is good that you found some solutions to your problem, as gluten is showing up more and more in people with neuro problems.

A doctor MAY decide to try IVIG to see if there is any response and call that a therapeutic challenge. But IVIG is so expensive, most insurances require diagnostic testing and other information before allowing it. IVIG does not work for all PNs and seems to be reserved for autoimmune types.