I am so mad at my neuro doctor that I had to get a new one. I had an appointment with him the other day. He asked me how I was doing. I told him I thought my neuropathy was moving into my stomach, back and hands. He had the nerve to say to me, thats what happens when you have neuropathy. I will see you in two months. WHAT?? I think my mouth dropped. Has anyone ever had a doctor be so rude to you? He didn't even bother to say, hey lets do some tests to see if this is true. What a JERK. Well at least I have a new one, lets hope he is compassionate and wants to help me. Thanks for listening. By the way I am 40 and have had neuropathy for about 6 months, the only symptom I have is a stabbing, sharp, burning pain in both of my feet.

Michele

I'm sorry about your bad experience! I had to "fire" my first neurologist too. Not because he was rude, but because he didn't seem to care enough about what I was experiencing to take a good look at my blood labs and try to interpret my grossly abnormal results. I guess my "case" didn't interest him very much. Anyway, sometimes people who are healthy don't understand what it is like to have scarey and uncomfortable symptoms. I hope you can find a good neurologist who is more compassionate!
NancyKay

Thanks NancyKay, I sure wish I new what I was doing on this site. I am trying to reply, but I want to reply with a seperate space, do you know what I mean? I guess someday I'll catch on.
I know what you mean when people are healthy. Sometimes they just have no clue what a sick person is going through and they treat you differently.

use the post reply in the lower left hand corner beneath where the last post is

I think I may haved gotten the idea on how to post to a post.

Everyone have a woderful night and give each other hugs.

Thank you so much HeyJoe for the direction!!

Michele

Over the years I've watched many people come on boards with this same issue.
"My doctor doesn't care".

I think that doctors know they cannot fix PN, so they are not motivated in most cases to do anything. They don't understand that :

1) finding a cause is important. If you have autoimmune neuropathy you can
try IVIG, or look at Gluten free life to help with it.
If you have ingested a toxin, you need to know what it was, to avoid.
If you have thyroid issues, or glucose resistance, you can fix that.

2) You can heal. You can try some of the nutritional supports suggested here.
You can have a MMA test to see if you are absorbing and utilizing B12. You can take B12 yourself...it is over the counter.
Other nutrients help nerves repair themselves. The peripheral nervous system is capable of that regeneration. But you won't hear doctors suggest this simple method because they weren't taught that in school.
Even Dr. Latov has put in his book erroneous information where nutrients were suggested. That is indicative at how little they think of it.

So getting a good diagnosis is important. But once you have that, traditional medicine has little more to offer. Strong drugs with heavy side effects are offered to "help", but they most often don't..they just create more problems.
People with severe pain issues, are deserving of adequate pain management, but many doctors ignore that too (here is where testing is very helpful in proving your pain).

Michele,

I've been battling PN for 10 yrs. I think the thing you're angry about is not so much his lack of empathy as his lack of willingness to spend time to explain to you more about your disease(s). It's possible that your condition could affect your digestion, nerve trunks (back), and other peripheral nerves. One explanation that these areas suffer a loss of sensory or autonomic fibers, too. I don't think you have too much to worry about with these issues, but here's what's helped me: Cymbalta (90mg x1) + Lyrica (25 mg x3) combo per day. Something new I've tried recently is sleeping with my feet elevated at night. It's puzzling why none of my physicians (there have been many) ever suggested that. Hope you benefit from my suggestions. And...change neurologists if you can.

Tex