[jannaw]

My hubbie comes home from his monthly rheumatoid visit yesterday, he now has to start methatrexate as he is in powerfull pain. I go to the same guy, now I am wondering if I want to continue.
My husband tells him my wife has me on a good multi-vitamin, magneseum for the leg cramps and then this thing called methyl somethingorother B-12, the doc says "What!! Bring this to your next appointment, that's probably why you are not in remission. I can't tell you the damage folks do to themselves with supplements" he maintains all he needs is a multi, and I maintain this man is an idiot, even my neuro says take all you want, you can't take too much of this vitamin and go with the experts on your neurotalk, go with what works and maybe will help you more in the long run than anything I can prescribe. The biggest thing is it helps my husband and has since the first day he took it, I take it but can't pinpoint that it has improved my neuropathy but it sure hasn't gotten any worse in the last four years!

[dahlek]

Which outer planet is this guy from?
Granted that taking some supplements 'timewise' near some supplements can 'enhance' or 'detract' from the meds is an issue, BUT......That is truly archaic thinking I think.
Jannaw, if you wish, Please PM me w/the meds and specific supplements and I can check out 'interactions' .
I would hope that MRSD and ROSE could help you here as well. They know far more about the whole B issue than I, but I do know how to find and read any prescribed meds' 'info' and flag for your the key points that you should deal with.
I would be more than a bit disturbed myself! Lots of words could come out on this board about this all, but none would be polite or civil even. So. JUST-'s? - j
Oh, did I forget to say that methyl B-12 is one of those most benign of supplements on the menu? More benign I feel than Vit C! Forgive me, I am shuddering rite now at the whole thought.

[mrsD]

Make him prove it.... there is no proof... I searched it.

http://www.webmd.com/news/19991119/n...toid-arthritis

could find NOTHING on PubMed that methylB12 is harmful to RA.
Only the opposite.

Better yet, have a MMA test... demand it. To see if B12 is working for him.
Doctors are so ignorant... it makes me sick sometimes to read these posts!

I betcha he doesn't even know what methyl B12 IS~ Betcha!
All he knows is cyanocobalamin. (it is in his doctor's cookbook).

[nide44]

Go get 'em, Mrs D. !!

Stupid, Stupid, Stupid, Stupid, Stupid !

[MelodyL]

I love the way Mrs. D responds.

She knows her stuff.

This one is for you Mrs. D.

[mrsD]

My warrior days are over. I did get "into it" occasionally with doctors when I was working retail...but those days are history. (and I never lost the arguments either LOLOL)

I did get some restitution for a bird feeder I bought, and convinced nicely
the maker to replace the base, which was tooled wrong (the tray would not
screw on). The weather this year destroyed out Droll Yankee 30 yr old feeder,
beyond repair (not even duct tape would fix it finally).

So my hubby sicced me on the bird feeder company and voila...they sent out
replacement parts and now our finches are happy happy...For what it cost, it should be perfect!

Here is the picture: And yep...made in China!

[shiney sue]

New cast on hand ahhh...Anyway I told my son about the stupid Dr.
and the what the stupid Dr. said about the RA..He said this funny
thing,pove it to me,i'll be glad to wait,or let's see here's my card,
or you may visit me at my office as well we work at the same hospital.

He never has a return visit,call,they are so rude. just hit him with
that,but he will claim he never said anything like that to your husband,
and after all he's busy bla bla..Some not all Drs. just have to be
right,your's and hubby have one,oh my Dr. dummy from the school
of stupid. Hugs to all Sue

[jannaw]

ahh, shucks guys, I knew you would be on this little flies on #%!&, and you didn't let me down. I will be printing the link Mrs. D to take along to the next Dr. visit.
My husband knows everything about building tall buildings and NOTHING about medicine, so I do this for him. He is terrified of the mexatrethate that he starts tonight, but he is in soooo much pain he needs a shot at remission and of course to keep working and functioning. I will watch over him and do what I can, with the help of all of you!!!!
Many thanks to my neuro-talk family.
Janna

[Yorkiemom]

That is so stupid... Why don't doctors learn more about nutrition and supplements than they do about writing prescriptions? Could this be it??? $$$$$

Have we ever talked about pain relief using that old remedy of putting raisins in a bowl, covering them with gin (I think the original recipe called for sloe gin.) and letting them sit for about a week, until the gin evaporated? I don't know if it works or not, but I have never tried this and thought I might...

Anyone else find any relief with this, or am I wasting time?

Cathie

[MelodyL]

Uh, Cathie:

What do you do with the raisins after they have been soaked in the gin?? Do you eat them, or do you take the raisins and put them where you have neuropathy??

I'm serious I have heard of the raisins and gin thing, but I can't remember what one does with the bowl of raisins after they have been sitting in the gin.

I can only imagine what eating a bowl of gin soaked raisins would do to my blood sugar!!! At least I won't feel any pain, I'd be drunk as a skunk!!!! lol