This is an old thread and so much has changed. I got very active for awhile after I came back from Mayo and did the physical therapy for two weeks. I almost had a life. Then this bone breaking thing started. I've developed a stress fracture in my left ankle, then one in my right fore-foot, then last week was diagnosed with one in my thoracic spine and yesterday they x-rayed me for one in my left hip. This morning it feels as if it is my lower back, can't move without pain, getting up and down is really awful. I'm not sure if the hip could cause this or not. As you can imagine, Billye's not a happy camper. Diagnosis of this last one is still up in the air. Pain is an issue too. The PN is really flared up and screaming....along with the bone pain.

But thanks to all of you for answers. The saga continues.
Billye

the PN pain escalates big time when getting those 'stress' fractures. Seems like any time I step wrong on a little pebble I fracture something, somewhere. I hate to tell you it doesn't come down a notch for about a month. SIGH.

I'm working w/an endo to find the right combo of calcium and Vit D supplements to bring those #'s up to anything measurable. Apparently my meds' combo is taking it out faster than I'm putting it in. Don't know about you, but I do not envision myself going around for the rest of my life in a variety of "Air-Casts"! So, I'm off to acquire some different combos of the aboves to see if anything can be improved [while I can?] I'll let you know in about 7 weeks after the changes and F/U testings. This doc's promised to bring out the bigger stuff if there's no improvement. I just hate adding things on top of things and then more things! The pill count is getting ridiculously 'up there'. There HAS to be some simpler solutions out there, doesn't there?

Don't get discouraged about 'starting over' AGAIN. You have to! I find that each new time starting, I've got to go at a SLOWER pace each time. Don't know about YOU but I want it all NOW?

Keep up good heart and mind, maybe we'll both improve, and I'm betting that you'll do it faster than I do! - j

This sounds just terrible. I hope you will get some relief soon.

I want to say that one of my "numerous" docs also prescribed Robaxin at one time for cramping, also trigger point injections... I have had so much crap prescribed that my liver and kidneys probably groan when they see a new pill coming their way...

The reason I keep asking about electrolytes, is because some imbalances, potassium, for example, can cause muscle cramping... I did not remember you mentioning that as part of the upcoming bloodwork.

It is my understanding that in PN, the nerves either hypofunction or hyperfunction (or both). I do not have enough knowledge to put all of this together, but I do know the muscles are innervated by nerves. If the muscles are inflammed or the nerves are malfunctioning at the neuromuscular junction, perhaps this is why you are having such severe cramping... If it were me, I would see if there is something other than Klonopin that will calm down the nerves.

I feel so helpless when I read about this... Wish I could do something...

Much love,

Cathie

With so many complaining of this type of pain it must be some sort of spring fever PN. I am slowly stopping all my medications for PN and thought this was a side effect, now after reading your posts I can conclude there is no connection. Wishing you all better days