Hi. I hope your mom too will come post but it is very kind of you to get info. I was on neurontin but could not get up to a high enough dose for pain relief so it did nothing for me. So maybe she needs to work up to a higher dose or a diff med. Is she on anything for break through pain? Well like many here I m the queen of flunkie docs. It is very stressful. What state does your mom live in? I agree about the good internist I am on my 4th plus. Also maybe a pain clinic to work with pain control. Well welcome again

Thank you everyone for answering me back!!

Unfortunatly, my mom does not have a computer. I know, crazy. We live in Virginia, she is in Portsmouth, I am in Virginia Beach.

I am going to have her spend the night with me Tue. so we can get on this board and she can see she is not alone. And also to write her history out, maybe we can get more advice.
So look for more on Tue.

Again, thank you for listening.
Beth Ann

Hi Beth Ann!

Just a quick hello! Wanted to let you know I think you are great for taking such an interest in your mom's difficulties! How sweet!

It is important she have lots of support!

You will read many different tihings about Neurontin.
Neurontin was made a primarily an anticonvulsant/anti-epileptic drug. Some docs are using drugs in this class for pain control. I have heard of many people being very senstitive to drugs within this class, although not everyone. Gaining a tolerable good of pain control can be a very individual matter!

While some docs can be hesitant to prescribe the prescription pain meds, It is the only way I have had any pain relief and can function at the same time! Really...for me..morphine was so much less mentally clouding and cognitively confusing that any of the other meds! I can think clearly on it and get the best pain control I have ever had with it. That is just my story though...there are many stories and many options!

It will take time for your mom to find out just what works best for her!

Glad you have come forth to ask questioins for your Mom, especially since she cannot do so on the net! Hope to hear more!

Give one anothe a huge, gentle hug when you see one another, as you will be great friends/supports to one another throughout life!

When Moms hurt, daughters hurt! And vice versa!

Bless you!

Hi Deja!
Thank you for your response! After many conversations with my stubborn mom, I set up an appt. with her Primary care Doctor. I told my mom to just tell her that she was not comf. with the Neurologist, and his treatment.

Surprisingly to me, the PC Dr. agreed to work with her to find out what combo of meds will work for her. so now she is going to try Naproxen?? and Cymbalta. I'm just happy that the Dr is willing to try different drugs to help with the pain, unlike the Neuro who just said "Deal with it".

She had Kidney stones 6-7months ago, went in for surgery, and afterwards has been getting progress worse. 2 months ago the Neuro diagnosed her with PNeuropathy. So I don't know if the surgery brought the PN on, or was it something that was sneaking up on her. but guess that doesn't matter,
What matters is where are WE going to go next....because this condition does not affect just her.


Thanks for listening to my story.

She needs to find another neurologist.
A specialist in PN !!

Yep, Bob is 100% right.
It's the only way to go.

good luck
Brian

Bethann, to really help your mom, we need to know her history--what happened to her when, and what tests were done. It would help to ask doctors for copies of all tests done on her, and keep them in a looseleaf, so you can take them from doctor to doctor, as you look for the right one.

This is a great introduction to the computer for her, and I hope she comes on and joins us. It's even an excuse for buying a computer, and I do believe they've gotten relatively inexpensive lately.

It's even an excuse for buying a computer, and I do believe they've gotten relatively inexpensive lately.

Hear ! Hear !
For less than $400, it could bring you $1000's of advice and keep in touch with others
who can recommend various things for treatment and meds.
It would pay for itself in less than 6 mos.
If she's serious about helping herself, and not just relying on you to do it for her -
get the computer and for $9.99 a month (on various ISP's), she can be in touch with others like her, from around the world.

Hi Beth. Welcome here! Very nice of you to worry about your mom. PN is a very difficult disease to treat and it can take several trial and error tries until she finds out what helps her. I have tried Lyrica and it does give me some releif. I take up to 150 mg a day. Sometimes my pain is better, sometimes it is worse. I don't know what determines that, but i am happy for the good days. I have learned a lot here about nutrional support for healing nerves. Perhaps you could jump to "vitamins and supplements" and check some threads that have a great information about nutrients that can support your mom's healing.