Burning skin pain undiagnosed

shiney sue · 04-08-2008, 12:56 AM

Please get your records so you don't have to try and remember what
was done. They belong to you the Dr.s you have gone to will keep
copies,well really your getting the copies . Think back on everything
or anyone who has treated you and if you can get it do it. I agree
about the b12,but!!!
I just had to get all my records they were there some from 30 years ago.
I had to do this for other reasons then PN..Amazing the different in how
doctors changed there feeling about b12 why because some of this
new super duper meds. why a lot more money for a lot of people.
But look at the side effects of these new meds.Lymphoma..I agree with
Mrsd and Glenn and Paul. So many of us in up in Wheelchairs,
Please check around if you can for a Neurologist. that works with MS,
and PN.
Go on the Gluten and c. forum ask how you can try to do this diet.
I actually had a Dr. tell me when I asked how did this happen to me,
this was a good hopital,he said it's eaiser to say anisirty and Depression
then find out what is really wrong,you mean do your job,yes I like
doing mine and it took you a long time to find me,most people won't
search,and they shouldn't have to. Don't give up your worst it,also
many family members will agree with the Drs. instead of the family
patient,the family member tired of hearing I hurt I hurt so bad.

I know you touched my heart and many others. I will be leaving
for a while but will but watching and saying hi..These are good people
please let them help you and just to have them to talk to will help.
Hugs to all an read the stichies or someone will have a fit and she's right.
Sue

dmstarr · 07-08-2008, 11:59 AM

Hi I am a 41 year old women who is expressing similar burning skin. My face also flushes still times and feels tight and burnt. It is almost like a have a sunburn all over my body. It is driving me crazy. I am so distressed.

I also had a colon scan last August and had been seeing a butt specialist because I had blood in my stools. After about 10 days after the scan, which by the way was clear, I started to get a burning sensation all over my body. It continued for months and the blood work showed nothing and my B12 levels were normal at 647. I use to take complex bvitamins but stopped because I thought the niacin might be causing my problems.

The sensations disappeared a little around Christmas but then I got strep throat and a yeast infection and about a month after the yeast infection I started back with really bad burning. I am going crazy and not sure how to deal with it. The doctor I have been seeing says it is an allergy, but I have been tested and no results. I am very scared as no one is taking me serious and I have not had the same tests as you have had. I went to a naturopath and he suggested something inflammed about my pancreas or liver. So now I am really worried. I have two small children and a husband that just recently got diagnosed with restrictive cardio myopathy. I don't believe my issues are stress related as I try very hard to exercise and eat healthy with the exception of my love for chocolate. If you have any suggestions or just want to chat back please do. It is nice to hear stories from others as burning pain is very hard to deal with. I also have burning eyes and once in a while I get a rash on my stomach, after a major work out and my clothes stay close to my skin.

Hope to hear from you soon!

richpea · 09-20-2009, 01:42 AM

Hi

I share your symptoms and have extreme sympathy. Hope the following is useful to you, I have found that changes to my diet can suppress the symptoms. It is pretty boring but if you eat white fish, brown rice, parsley sauce, and lots of yoghurt, soda water and milk, you should get an immediate result. Occasionally i get naughty and roam the menu at my local italian restaurant and the results are horrible, but if i stick to the above it really does help. There is probably more out there that one can have, as i have to admit the above is horribly limited, but maybe give it a try for a few days and see if it helps. Would be very interested to hear from others with any nutritional advice. And here is hoping this gives you a result.

Best wishes

dusty · 09-08-2010, 11:21 AM

Quote:

Originally Posted by ejcronje

Hi all

I don’t even know where to start so this might be a long read. My name is Eugene and I’m from South Africa. I’m 30 years young .

About two years ago I had a operation where (pardon the details) I had rectal polyps removed. Everything went fine. It was just inflammatory polyps and nothing to worry about. The surgeon wanted a colonoscopy as a follow up just to make sure there were no other polyps located in the colon. (Colonoscopy was clear).

A few days after the colonoscopy everything went haywire. I had pains in my hands and feet, shocklike sensations throughout my body, burning skins sensations and abdominal pain. Went to my GP and he diagnosed anxiety. Was put on citalopram and alprazolam but it did not help much. So my drama began in 2006. When my symptoms continued, my GP sent me to a specialist physician. He did quite a lot of bloodwork. Everything came back negative. So he said major depression with anxiety. During the whole of 2006 I went to different specialists (neurologist too). Everyone could not find anything wrong and just brushed it off as anxiety.

End of 2006 I started getting terrible stomach pains and a terrible burning sensation over my whole body. The stomach pain started after numerous courses of antibiotics for pelvic pain. (which eventually was diagnosed by a urologist as chronic pelvic pain syndrome. This is gone now…thank goodness). The burning skin also started. It went away after about one month but the stomach pain persisted. So start of 2007 I was referred to a Gastro doc and he did a colonoscopy and gastroscopy. He found chronic gastritis due to H. Pylori infection. Could not finish the antibiotic course as my skin started burning due to the medication. Other than than all was clear. 2007 went by with stomach pain which was now diagnosed as IBS. Burning skin was gone too.

August 2007 I went to my Psychiatrist and asked him if my IBS could be due to my high stress levels. He said definitely and prescriped Paxil to take. Then all hell broke loose. Two days on Paxil and my skin all over my body burned so much that I had to stop the medication. This time the burning skin did not go away. It got so bad that I was hospitalized for a week due to it. Was told it was due to anxiety and was put on Effexor. Effexor made the burning worse. Tried moclobemide. Made the burning worse. My psychiatrist now feels that I have developed a hypersensitivity to antidepressants. I still have burning mostly on my hands and shoulders and face. Sometimes on my feet too. My psychiatrist took me off all medication and my skin felt a bit better. But some days the burning gets so bad that the ONLY thing that helps is 1mg of clonazepam. I have been given Lyrica 150mg to try, but I started it this week. Feels like my skin burning is getting worse. I have been to a neurologist about a month ago. He just said it could be small fibre neuropathy, but seemed to side more with the anxiety diagnoses. He said to try Cymbalta and see him in 6 months if no improvement. I had a CT and MRI of the brain and spine which came back normal.

So basically I have the following definite diagnoses:
- Slight liver enzyme elevations due to fatty liver disease (GI doc says to loose weight. I’m about 20 pounds overweight)

- Been diagnosed with insulin resistance about two weeks ago after a glucose tolerance test. Internist prescribed Metformin 500mg daily. He said I needed to see a nutritionist and get excersise.

- Chronic gastritis due to H. Pylori infection which cannot be eradicated as I’m extremetly hypersensitive to the antibiotics.

I still have skin the burning sensation. I KNOW this is some kind of neurological thing as I saw a dermatologist and he said there was nothing wrong with my skin itself. So what do I do now. My normal GP also starts to think this is neurological.
Could it be due to the fact that I’m pre-diabetic? Could this all just be anxiety. I’m so tired of doctors I don’t feel like going anymore. I just don’t know what to do anymore….and I feel very desperate. Please if anyone could shed some light on this it would be much appreciated.

My current medication is: Lyrica 75mg twice daily (doesn’t seem to help), Clonazepam 0.5 as needed if burning gets very bad. It works great.
If the Lyrica isn’t helping my GP said we could try Neurontin.

Sigh….I just don’t know anymore.

I also have skin burning all over my body, when I take meds. I just had
surgery and the Dr. gave me antibotics and that makes the skin burn more. If i take my prescription Zanex it stops usually. I was wondering if cleansing the body would help? But you said B12 helps? I'm misserable.

Thanks

dany · 09-10-2010, 11:21 AM

I question that the most emphasis is given to the need for B12 without what I see as an equal need for glucose control. This patient has a pre-diabetic condition which today is seen as a serious cause of diabetic neuropathy. (And considered the cause of my very painful almost overall body sensory PN). However I also had had IBS at an earlier time than PN and had a lower reading in the low 300's for B12 when that testing was done.

No emphasis on B12 was done for me but after reading on PN boards about it, I have taken B12 on a regular basis, and kept control of my glucose in partnership with my Dr. My neuropathy continued to spread but then stopped and with me staying active, it has not advanced to numbness, it is still painful which means I can still "feel", the nerves are still alive. My B12 level is much higher.

I hope this poster comes back to read here or is thinking about the insulin resistance part of his symptoms! And if at all possible, I see a need for a skin-punch biopsy, the test for small fiber neuropathy, so there's no more guessing as to his skin condition for the burning. And I do have to say that anxiety can add to the level of the burning that may be caused by other things. The way his burning goes up and down and comes and goes puzzles me....mine is not like that. But some diabetics are more sensitive to the amount of sugars and starches they eat, I am not, they feel increases in burning if they eat more of these....

cyclelops · 09-10-2010, 02:21 PM

Oh my, nothing makes one burn more than an 'azepam' drug wearing off.....

You very well may have small fiber neuropathy, but benzodiazepines if regularly used will produce the withdrawal from 'heck'.

Lauralight1972 · 09-19-2010, 09:33 PM

Quote:

Originally Posted by ejcronje

Hi all

I don’t even know where to start so this might be a long read. My name is Eugene and I’m from South Africa. I’m 30 years young .

About two years ago I had a operation where (pardon the details) I had rectal polyps removed. Everything went fine. It was just inflammatory polyps and nothing to worry about. The surgeon wanted a colonoscopy as a follow up just to make sure there were no other polyps located in the colon. (Colonoscopy was clear).

A few days after the colonoscopy everything went haywire. I had pains in my hands and feet, shocklike sensations throughout my body, burning skins sensations and abdominal pain. Went to my GP and he diagnosed anxiety. Was put on citalopram and alprazolam but it did not help much. So my drama began in 2006. When my symptoms continued, my GP sent me to a specialist physician. He did quite a lot of bloodwork. Everything came back negative. So he said major depression with anxiety. During the whole of 2006 I went to different specialists (neurologist too). Everyone could not find anything wrong and just brushed it off as anxiety.

End of 2006 I started getting terrible stomach pains and a terrible burning sensation over my whole body. The stomach pain started after numerous courses of antibiotics for pelvic pain. (which eventually was diagnosed by a urologist as chronic pelvic pain syndrome. This is gone now…thank goodness). The burning skin also started. It went away after about one month but the stomach pain persisted. So start of 2007 I was referred to a Gastro doc and he did a colonoscopy and gastroscopy. He found chronic gastritis due to H. Pylori infection. Could not finish the antibiotic course as my skin started burning due to the medication. Other than than all was clear. 2007 went by with stomach pain which was now diagnosed as IBS. Burning skin was gone too.

August 2007 I went to my Psychiatrist and asked him if my IBS could be due to my high stress levels. He said definitely and prescriped Paxil to take. Then all hell broke loose. Two days on Paxil and my skin all over my body burned so much that I had to stop the medication. This time the burning skin did not go away. It got so bad that I was hospitalized for a week due to it. Was told it was due to anxiety and was put on Effexor. Effexor made the burning worse. Tried moclobemide. Made the burning worse. My psychiatrist now feels that I have developed a hypersensitivity to antidepressants. I still have burning mostly on my hands and shoulders and face. Sometimes on my feet too. My psychiatrist took me off all medication and my skin felt a bit better. But some days the burning gets so bad that the ONLY thing that helps is 1mg of clonazepam. I have been given Lyrica 150mg to try, but I started it this week. Feels like my skin burning is getting worse. I have been to a neurologist about a month ago. He just said it could be small fibre neuropathy, but seemed to side more with the anxiety diagnoses. He said to try Cymbalta and see him in 6 months if no improvement. I had a CT and MRI of the brain and spine which came back normal.

So basically I have the following definite diagnoses:
- Slight liver enzyme elevations due to fatty liver disease (GI doc says to loose weight. I’m about 20 pounds overweight)

- Been diagnosed with insulin resistance about two weeks ago after a glucose tolerance test. Internist prescribed Metformin 500mg daily. He said I needed to see a nutritionist and get excersise.

- Chronic gastritis due to H. Pylori infection which cannot be eradicated as I’m extremetly hypersensitive to the antibiotics.

I still have skin the burning sensation. I KNOW this is some kind of neurological thing as I saw a dermatologist and he said there was nothing wrong with my skin itself. So what do I do now. My normal GP also starts to think this is neurological.
Could it be due to the fact that I’m pre-diabetic? Could this all just be anxiety. I’m so tired of doctors I don’t feel like going anymore. I just don’t know what to do anymore….and I feel very desperate. Please if anyone could shed some light on this it would be much appreciated.

My current medication is: Lyrica 75mg twice daily (doesn’t seem to help), Clonazepam 0.5 as needed if burning gets very bad. It works great.
If the Lyrica isn’t helping my GP said we could try Neurontin.

Sigh….I just don’t know anymore.

Tell me if you've found out anything new. I have EXACTLY your problem. Alongw ithno stomach acid, I'm on full stomach acid replacement therapy with my meals and high vitamins for malabsorption. My arms burn often, I was theorizing it was niacin deficiency but I don't know. I try vitamin after vitamin in higher doses to see if it stops for any length of time. The whole certain pills make it expand to my whole body happens too. Someone said we can be sensitive to the binder in the pills or something.???(still not sure), no cannot take any kind of antidepressants/anti-anxieties or it gets really bad! I'm looking furher into Vit D doses and taking them very high, and also allergies to food now.

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