I'll be glad to post this elsewhere but I wasn't sure where to put it. You all know I've been dealing with multiple sacral and pelvic stress fractures since Oct of 2007. I got the results of the latest pelvic CT scan yesterday and it is worse than it was the last time. The pubic bone on the right side is misaligned and will not heal in this position. I have a new one that has opened up on the wing of the ilium toward the sacroilliac joint. The others are in various stages of healing or breaking. I've been taking Forteo for 4 months and I'm still breaking. But how will the edges of the one that is misaligned ever meet up and heal.

I made an appt. with the Metabolic Bone Clinic at SWestern Medical Center in Dallas. A big medical university where they are teaching our doctors. I saw the professor of the Clinic with 3 medical students. No hands on exam. He wanted me to stop my Forteo and let him do a bunch of testing. I'm 4 months into a 2 year program. I'm not stopping until that 2 year period is over. So we ageed he'd leave an open door and to call if I changed my mind. He also agreed to send a letter with his findings (? what findings), suggestions and testing he thought should be done. This was to go to my Rheumatologist who referred me to him.

I get my copy of the letter on Monday. It's addressed to the neuro I saw at SWestern over 3 years ago. He mentioned during the interview that he'd send him the letter and I corrected him then. Obviously wasn't listening to me. He then stated I had told him I had had bilateral fractured knees. No...bi-lateral knee replacements. He said I didn't seem in any distress. I stood up from my wheelchair multiple times during the interview because I was hurting too badly to sit. And he ended the interview by tellling me he'd send a letter suggesting tests that should be run to investigate. The letter mentioned no test suggestions. I blew the ceiling off the top of my kitchen when I read that ridiculous letter. So I phoned the office, got the correct person on the line and made her day. So now I've received the corrected version of the letter and it still has fractured knees in it but the rest of it has been straightened out and the correct doctor is getting it (I hope). So I'm not anxious to go back to that place again. That is my second terrible experience with them. I will not return again. Wasted time and money.

But back to the original problem. I have a bone that cannot mend. It's not physically possible. My bladder has no support which is causing problems too. And the pain from all of this is just unreal. Do any of you have any suggestions for how they can repair this break or what type of doctor to see? I don't even know where to start.

Billye