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Old 04-03-2008, 11:20 PM #10
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
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LizaJane LizaJane is offline
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LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
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I can't believe what a ***** that metabolic guy is. I don't know how he got into that subspecialty. Some get in through being endocrinologists and others by being orthopedic surgeons. I'll be this guy is an endocrinologist and is scared of you. How he could tell you to stop the Forteo is beyond me.

You need to be on Forteo for 2 years to get full effect-that's the protocol, and you've only been on a few months.

Did the report say the aligned fractures were healing but the non aligned were not? Because I did think there was some healing. So maybe the non-aligned need to be glued, which I know is hard to find where you are.


You need better doctors; can you get back to Mayo? Or NY? (You can stay by me, as we say here). I think someone needs to look more carefully at what is going on, and this bone guy is not worth his weight in salt.

Did he evaluate what state the bone is in now? Is bone forming, turning over? Did they do a 24 hour urine for NTC--the collagen test that shows whether you're taking bone down.

It's a bit weird for your osteoporosis to be getting worse at this point, when you are getting so much treatment for it. If they didn't do the urine, I think they should. I don't know what else, but a deeper look.

The bone metabolism guy I see here is an orthopedist.
He sees three illnesses: bone cancers, Paget's disease, and osteoporosis. He spends 2 days a week evaluating patients and 2 days doing surgery on them, mostly spine.

I just wish you had better doctors.
and prescribing things like Forteo and 2
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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