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Old 04-14-2008, 07:08 PM #31
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Thanks Rose.

I wish that my body would stop spasming already. The weather in NY is absolutely nuts. One day it's freezing, the next day you don't even need a sweater, then a few hours, later it's freezing again.

And my whole body hurts. Thankfully, I'm not bent anymore. Today I was able to stand up and walk to Dunkin Donuts. Then, a few hours later I was fine. It got hot outside. The sun was shining brightly and I said 'okay!!! let's do some mild stretching". And I did. Felt okay.

Then a few hours later, I notice the heat began to kick in, in my radiators. I went outside and it was freezing again, and then my body began doing it's thing.

I hate being 60. I think I'll be okay once July and August get here. That's how I've been doing it for a few years now. I'm just fine in the summer months. No pain, no nothing. But when the temperature changes, holy cow, my spine my knees, my wrists, it all drives me nuts.

Wouldn't it be lovely to turn back the clock and we could all be as smart as we are now, but we'd all be 20 again!!

jeez.
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Old 04-15-2008, 01:55 AM #32
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I feel like 20 first thing in the morning but as the day goes on the older i feel
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Old 04-17-2008, 01:27 PM #33
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I don't know but 20's is not looking too good from where I am at. It is hard thinking I have to live in pain like this till I am 80. Anyhow remember my b12was 2000 and my doc told me to stop too. Actually it was 1500 and then when I stopped it went to 2000. I feel blood work is often off. When I was ill I had bloodwork almost everyday and every day it changed. I guess for me I follow my docs. Not so much cause I think their right but more because when I feel worse or something happens they can't blame it on something I did. It is like for my car I always keep reciepts so when they try to blame the problem on me I have proof.
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Old 07-16-2008, 01:05 AM #34
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Quote:
Originally Posted by darlindeb25 View Post
Thank you Paul and Glenn, and this is so true: I didn't know to ask for a B12 test, that's why I was going to doctors! They failed me, I really don't feel I failed me. I started taking B12 to help myself because I felt no one else was helping. Now, I may never know if I have a true deficiency, although, being a celiac, and having been undiagnosed for so many years, there really is no doubt in my mind that I was deficient of many vitamins and minerals. I know the B12 has helped me. My regular doctor, doesn't doubt the fact that it is helping me, my neurologist I also, doesn't doubt it is helping me. He left the decision to stay with B12 pills or to have the shots, up to me. From here, I guess I stay with what I am doing.
hello,and i say ,,you go girl, just look at the people who go to one doctor after another, getting nothing but misgiagnosed, as i was, i suffered with severe depression, anorexia, psychosis, hearing god and the devil talking to me, sure wish those doctors could have shared in that, plus lots other stuff. look at the ones who are left with permanent paralysis, take the case historys in sallys book, look where alot of us would be, if we didn't give ourselves permission, to try something as harmless as b12, and if it helps, and you see symptoms disapearing, then you have gotten your diagnosis, i really peeved my doctors off, cause when asked who was monitoring my b12, i said i was and will continue to do so, they couldn't diagnose it , when present with classic symptoms, such as headache, visual disturbance, numbness and tingling, other things, plus old lab work that told them i had moderate macrocytosis, plus in there own handwriting, they suspected i had b6 or b12 def, guess they figured not important enough to test me, then a year later, i'm checking myself into the psych ward in 1994. so will i trust ignorant b12 uneducated doctors of pharmacology, to treat me, and they don't know how to treat it,NO WAY.forgot to say i have pernicous anemia, at the time my level was 55. if you are b12 defiecient, taking b12, go in for blood work, haha they tell you,, you normal, you can go off your b12,, DON;T LISTEN.
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Old 07-16-2008, 08:37 AM #35
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kdl5,
Have you checked the date on the post you were replying to?
47/17/08 - April !
I don't think resurrecting that thread it to make it current,
is of any real value.
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Old 07-16-2008, 11:07 AM #36
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The thread was about B12. The poster's message was about B12. Why are you making such a big deal about it?
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Old 07-17-2008, 01:56 AM #37
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Quote:
Originally Posted by hoibie@comcast.net View Post
The thread was about B12. The poster's message was about B12. Why are you making such a big deal about it?
because b12 is a big deal, and i hope that other new visitors to this site , will in some way, be helped by what i said, i am new to this and i wasn't really paying attention to what the dates were, didn;t realize i was out of order.
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Old 07-17-2008, 04:55 AM #38
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Back to B12, I have a question. I just had major bloodwork done, and my B12 confused me a little. In Oct 05, I was taking 1000mcg daily, and my B12 level came back at 1237. This time, I am taking 3000mcg 3 days a week. I was taking it everyday until Mel's thread here started, then I decided to cut back to M-W-F. Now, my B12 level is 1018. Why the lower number? Should I return to daily?
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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Old 07-17-2008, 09:23 AM #39
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Mrs D is gone but hopefully her or Rose will answer. When I was taking extra b12 my level was 1500 then I stopped and it was 2000. So I have no clue but I know for me for awhile I had bloodwork almost everyday and the ranges varied greatly. I often wonder here if that could be an issue for some. Also I wonder and this may be so wrong but don't you get b12 through animal products so if you consume more or less could that effect or am I clueless?
kdl5 welcome. In my past I also suffered from severe anorexia and depression/anxiety/ocd now healthy well still with the depression/anxiety due to this chronic pain.
I don't think it is a rule not to bring up old posts this obviously brought up an issue for someone else. I often do searches on past posts to see what people are doing etc.
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Old 07-17-2008, 10:22 AM #40
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It's all about how you store it (I learned this from reading Rose's posts and listening to Mrs. Doubtfire).

I now take it (usually), once a day. I feel MUCH better for that.

Some days I'll skip it, but usually, it's once in the morning, on an empty stomach.

And about animal products having B-12?? I don't eat red meat. And you'd have to eat A LOT OF ANIMAL PRODUCTS to compare to what I take every morning in my little sub lingual pill. lol

At least that's my interpretation.
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