Thanks to all for your responses to my question :Is this PN?'
Wish I were in Australia again Brian- feeling well. Had many trips there. Friends live in Melbourne , Perth and Sydney. My neuro is rally great and he does try to help me with T point injections and at least 30 meds. None have worked. This foot and anlke problem is really a complicated beast for most Docs. NOnbody wants to inject or mess around with feet. I was also told by the supposedly top neruro in the country that he could not recommend anyone to treat me because I was so bad and so far gone.
LizJane I'm glad the Barnes tecnnique worked for you. I can't even have anyone touch me as it triggres off the TP's and they become chronic. I have hyperalgagesia and allodynia as well. Also, have RSD.
I am really in a bad and depressed mood now because I can't even drive.
My question is - does the PN spread to the top of your foot and into your ankles and up your legs - feels like shin spints. The soles of my feet hurt also but so does everywhere else in my feet - including toes. Also, my feet and ankles are absolutely freezing all the time.
I get weekly upper body injections for the FM. But what to do about the feet? Even my podiatrist says he knows no one who would work with me - especially becasue of the RSD. Injections in hands and feet is a no no for RSD.
Having been a professional for 36 years and extremely active - the past five years have been pure hell due to the meralgia paresthetica, epidural in my back(chronic back pain) and then chronic hand and wrist/arm pain from an IV. Now this think with my feet has put me over the edge.
I am so glad I can have this forum to vent my frustrations. Pain free active people just don't understand.
Thanks for listening and let me know about the spread of PN. Perhaps it is just the fibromyalgia as the dr. said. ONe thing I know from experience is that it is chronic and will never go away. HOw depressing is that. Sydney