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small fiber sensory neuropathy

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Old 04-15-2008, 10:52 AM #21
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Lightbulb I just put up some
magnet info today, on the Mayo disappointment thread.
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"Thanks for this!" says:
HeyJoe (04-15-2008)

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Old 04-15-2008, 02:13 PM #22
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Originally Posted by HeyJoe View Post
Brian i know you have posted about the magnets that you use, but could you please post them again. Its for my wifes leg actually. Thanks.
Sure Joe, i will send you a PM.
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Old 07-30-2008, 08:56 PM #23
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Default Use of Magents and Patches
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Originally Posted by Brian View Post
Seems like a few of us here with spine problems, mines c5 c6 c7 , it is inoperable
apparently a neuro surgeon said, if i want instant relief i get either the old chinese accupunture or lazor accupunture, otherwise i get by on very strong magnets.
Brian - do you use the magnets for PN or another ailment? I've read all the posts (I think) and I couldn't find anything about what strength, placement, where you get them, etc. Do you mind elaborating? If you use them for relief with PN I would like to give them a try.

Can anyone give me advise on the patches?

I am trying the Solanpos patches and I am having trouble finding the right placement. I viewed the anatomy website suggest by mrsD but I'm still not getting to the trouble spots. Can anyone make and suggestion, and also, how do you keep the darn things on, they keep coming unstruck...

Thanks in advance...
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Old 11-07-2011, 04:43 PM #24
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Default Small Fiber Sensory Neuropathy
Anyone else have it in their feet and legs?
Alan in Hawaii
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Old 11-08-2011, 12:39 AM #25
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Default sfsn
I have it all over my body.
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Old 03-07-2012, 09:14 PM #26
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Originally Posted by mrsD View Post
It requires B6 and folate + essential fatty acids. All of these are needed for
repair.

This is explained in Craig Cooney's book:
http://www.amazon.com/Methyl-Magic-M...8092464&sr=8-1
Methyl Magic
There is a whole chapter on this subject there.
Hi Mrs. D,
I am taking multivitamin with Vit.B6 2mg and Folic Acid 400mg (accg to the label, its 100% of the daily required value). I also take Omega 3,6,9. Are these enough to complement the VitB12 5000mcg I am taking now?

I used to take Vit6 separately but my neurologist during my initial visits advised me to stop it because it could aggravate my symptoms.

As always, thank you. By the way, I am scheduled for a skin biopsy at Shands Hospital (Jacksonville). I pray that there will be some good news.... Sometimes, when the pain is too much, its difficult to be hopeful.
Last edited by Idiopathic PN; 03-07-2012 at 09:16 PM. Reason: additional information
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Old 03-07-2012, 11:20 PM #27
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Default Yes Alan,
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Originally Posted by MyFeetHurt View Post
Anyone else have it in their feet and legs?
Alan in Hawaii
although I have had spinal fusion/laminectomy and still experience spine pain; the legs, ankles and feet are the worst. The legs are quite painful and heavy, making walking difficult. But....the burning in the ankles and feet, at times is almost unbearble. I do take narcotic meds, but still experience quite a bit of pain. Daily average on a scale 0 -10, is about 6-7 going at times to a 9-10.

(Ger)
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Old 03-07-2012, 11:21 PM #28
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Lightbulb
That may be enough for most people.

However if you have the polymorphism of damaged methylation,
folic acid won't work. You would need the methylfolate (Metafolin).m (MTHFR polymorphism is the name)

Only DNA testing can show if you are in the 10-30% who cannot methylate folic acid (which is the synthetic inactive form).
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Weezie looking at petunias 8.25.2017


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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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Old 03-19-2012, 07:55 PM #29
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Hello,

I have been dx'd with small fiber sensory neuropathy. You may remember some of my past posts. The initial nerve conduction test showed that I had axonal damage...not myelin sheath.

Given this dx, what are my chances of recovery? Can axonal damage be reversed? I think the answer is no, but I want to be sure. I am currently taking a slew of vitamins/supplements are recommended by people here. I also take Nuerontin (900 mgs a day). I have stopped taking the Topamax.

My goal is to eat better, exercise more and eventually go off all prescriptions. I want to heal my body, not put more chemicals in it. Is this possible? Has anyone gotten better with the diagnosis? All the major culprits in causing the PN have been ruled out.

Thanks

Ann
Hi Ann Elizabeth,

How are you? If you dont mind sharing us your current condition. I really would like to know how the supplements help you.

Thank you.
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