FAQ/Help |
Calendar |
Search |
Today's Posts |
|
![]() |
#1 | |||
|
||||
Member
|
Quote:
Neurontin made me suicidal. It was really terrible. Within a few days of discontinuing it I felt myself again. This happened *while* I was taking Effexor for anxiety and depression. So that was *not* a good sign. I don't think my pain is bad enough to ask for the fentanyl patch. Although I'm not sure what the criteria would be. I supposed if Tramadol at 100 mgs a pop wasn't working that would be a good option. I have found that at times when I have breakthrough symptoms that three aspirin usually smothers the pain. The only time this happens is when I'm almost asleep and get woke up or startled awake. Maybe something to do with a sudden increase in BP or perhaps a surge in adrenalin? That and 37.5 mgs of Tramadol was no longer enough. She switched me from the "Ultracet" (contains Tylenol) to plain Tramadol. She was concerned that when I had to double up on the Ultracet dose that I was getting too much Tylenol. That and there's no point in me taking Tylenol as it doesn't do squat for the PN pain. When I read stories like yours I'm grateful for having only the level of PN and pain that I currently experience. I don't think I'm strong enough to endure what you have. ![]() ![]() What was your experience with Mirapex? Did you have problems with being tired or weight gain? Anything I should know straight from the horses mouth, so to speak? I'll be staying at the lowest starting dose unless it has no effect. Even a reduction of 50% in the symptoms would be a big deal to me.
__________________
We are not amused. . |
|||
![]() |
![]() |
![]() |
#2 | ||
|
|||
Member
|
Jarrett,
I can't take any of the meds you mentioned as well. I have tried for years so I finally said I give up on anti-convulsants and anti-depressants types. The SE's are just too much. As for the Fentanyl patch I just started it. The MAIN thing is...you CANNOT be opioid naieve. You HAVE to be taking opiates. My PM started me off on the lowest dose...12mcg. The standard used to be or is 25mcg. But when he put me on the 12mcg, it had just come out. I was scared of it so it sat in my fridge for a LONG time LOL! But about a week ago I started it. I love it! So far so good. Of course there are some SE's but nothing that compares to the way I was on Neurontin and all those others. If anything, just slight sedation, some nervousness (that passes) and a lot of energy. And that's about it! I don't have constipation either and ONE of the reasons he put me on it was to help with GI issues I have and that is working well. Sooo...if you ever decide to try it, let the doc decide what mcgs you should be taking. I asked my PM to start me off low. Oh, and I was a bit worried because I only took ONE Vicodin a day. But my PM reassured me time and time again I would be okay. Additionally, my Neurologist was all for it as well since I am so sensitive to everything else. Oops, forgot to add, you can still take the BT meds. I am...I still take the Vicodin and Klonopin and I am NOT overly sedated. Last edited by Kathi49; 04-15-2008 at 09:02 PM. Reason: Spelling |
||
![]() |
![]() |
"Thanks for this!" says: | jarrett622 (04-15-2008) |
![]() |
#3 | ||
|
|||
Senior Member
|
I'm so glad your tickled pink...I'm tickled pink my Neuro came home,I mean
back to the hospital,her shattered leg is much better..I'm going to talk to her about weaning off of that darn Neurotin,like C makes me crabby at least Bob said it did.. Mrs. D thank you for that sight,can't wait to tell oldest son about it, and hello everyone, And a big ![]() ![]() and could open the door,I'm very warm but my hands are cold.. |
||
![]() |
![]() |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
Doctor's Dilemma | ALS News & Research | |||
Have Dr. appt. in the morning | Weight Loss & Healthy Living | |||
Doctor's ALS fraud case goes to jurors | ALS | |||
OT- Doctor's response | Gluten Sensitivity / Celiac Disease |