NeuroTalk Support Groups - Neuropathy does improve

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Neuropathy does improve (https://www.neurotalk.org/peripheral-neuropathy/43699-neuropathy-improve.html)

How do I find the stickies? Looking for page 2. Sorry I'm new.

Hello, and welcome :)
you are on one of the "sticky" threads...if you go back to the index page for this forum, Peripheral Neuropathy, you will see all of the Stckies at the top of the page, with green arrows next to them
http://neurotalk.psychcentral.com/forum20.html

you can also click back from the linked trail just under the NeuroTalk Logo

HTH :)

I'm new here to and when I was first suspected I had Neuropathy I did a lot of on line research. The lack of B Vitamins was one thing that kept coming up so I started taking B 6 and 12 supplements. When I finally did see a doc, and blood tests were done on me, the results showed an excess of Vitamin B and the doc told me not to take any supplements. although my Vitamin D was very low and pharmacy amounts were prescribed. Has anyone else had a proble with having too much Vit. B?

The vitamin "B".... consists of several different ones.

B12 and B6 are very different. So with your testing...what
were the numbers for B12, and B6 separately?

Most people do not need really high doses of B6. However when B12 is used orally high dose is needed because not much is absorbed each time.

B12 has no upper limit of safety, which means there is no toxic amount known yet.

B6 is different, too much is not good, and too little also not good, because both limits can give neuropathic symptoms.

If you were prescribed Vit D on RX ? That is D2 and does not work (we know this from current studies). The OTC D3 does work and dose depends on the number you had from your test.
Calculated from that value, the dose of D3 is 1000IU per 10 pts in US figures, needed to raise per day.

Many doctors are poorly trained in treating vitamin deficiencies.
They do not interpret results well, and often don't treat effectively. So get your test results and post here, on the main board PN section, not this thread, and we will see exactly where you are at.

When did ur PN start?? how long did it take to improve??

Quote:

Originally Posted by Wing42 (Post 260144)

in spite of a negative prognosis from three neurologists. I was in severe pain and burning for years, with loss of balance, foot drop causing frequent stumbles, no ankle reflex in left and 50% in right, and hardly able to walk. The pain ranged from 6-8 on the 0-10 scale with breakthrough pain at 9 or 10 experienced as either electric zaps, or feeling like a carnivorous worm was eating at my toe and metatarsal joints. I also had extremely hypersensitive skin, and other areas where the skin was numb enough to stick a pin in.

Now, I walk or hike an average of 12,000 steps a day on my pedometer, have wonderful balance (not as good as in 1992, but I'm 65 yrs old now). My pain ranges from 0 to 4 with very occasional breakthrough pain in the 6 or 7 range, about 2 now as I type this. Both ankle reflexes were measured at 100%. There are still some mildly numb skin areas, but almost no hypersensitivity. I still show some neuropathy when tested with two points, tickle, and vibration. EMGs and nerve conduction tests have always been normal since my PN was small fiber sensory.

OK, it's not healed, but I can happily go through the rest of my life like this. No longer does the pain wakes me up, stop me from walking or driving, and is never so bad that it's hard to concentrate.

The program I've followed all these years is on page 3 :confused: of the stickies. There have been changes to it the past couple of years, but the the essential program hasn't changed. It's a hassle to edit old postings on this forum, but I'll work with a moderator to do so one of these months.

A CHANGE: I meant page 2 of the stickies. The neuropathy must be affecting what remains of my brain. :o

I have a similar diagnosis. I had a L-3-L5 laminectomy Small fiber, long fiber whatever you want to call it problems but I will never improve because my nerve fibers are mostly all dead. Irreversible, I am afraid.
Good Luck
Lyrica is helping cover up the burning and numbness by breaking up nerve transmission is all

Hi everyone. I am new in this group. So, kindly bear with me... i hope to get some insights from members of the same condition as mine.
Last July 2011, I was diagnosed of Peripheral Neuropathy due to my feet pain (which I thought was just a result of my regular walking). When my neurologist said that I have PN, I told him that I have no diabetes (which I thought was the only cause of PN). He said that mine is idiopathic neuropathy.
I thought that it was just one of those "passing conditions" that will go away with enough rest knowing that I was not given any prescription or any tests or further follow-ups.
Months after my visit to my neuro, I went to a rheumatologist for my arthritis. I was given Plaquenil mid September 2011 and by October 20, I experienced this severe itching all over my body: arms, legs, neck and torso (but mostly in my legs and arms). I thought it was due to Plaquenil. My rheumatologist told me to stopped Plaquenil and gave me Vistaril. I was on Vistaril for 2 weeks but nothing improved. The itchiness became a deep, sharp stabbing pins and needles and burning sensations. I went back to my neurologist and he gave me several tests: 1. thyroid antibodies, 2. Lyme Disease, 3. Sedementation Rate, 4.Cyclic Citrullinated Peptide, 5. CRP Standard, 6. Rheumatoid Factor, 7. Anti-Hm Antibodies, 8. Immunofixation Serum, 9. RPR, 10. Urine test - to find heavy metal and 11. Brain MRI, 11. Vit B12 (normal). All results came back negative.
I would have been happy of the negative results but it makes me sad because there was no underlying condition to be treated to stop the neuropathy. The symptoms came on so suddenly and severely.
I am now on Gabapentin 100mg 3caps 3x a day. My neuro said that i can play around my dosage for as long that I dont exceed 12 caps. I have been trying to experiment what dosage works for me but so far I am still in the process. I am so frustrated with this horrible pain. Even the touch of my clothes is giving me so pain.
I tried a number of acupuncture sessions, unfortunately, it did not work for me. I am also using Capsaicin cream, and it gives me severe burning sensation. For 2 weeks, the burning sensation masked the stabbing pain but it does not do anything for the pain in my feet. After two weeks, the cream just gave me the very uncomfortable burning sensation and no longer work to mask the pins and needles pain
I am taking Synthroid, Glucosamine, Vit B12, Calcium and Vit E. I stopped taking Plaquenil afraid that it might aggravate the neuropathy. So now, other than my painful fingers, I have to live with the neuropathic pain.

I am encouraged by your improvements because sometimes, I don’t know how to cope with this horrible pain.
Thank you very much in advance for your thoughts. I will also equally appreciate any ideas and/or experiences that other members can share with me.

Quote:

Originally Posted by Idiopathic PN (Post 840199)

I would start researching both "Cymbalta" and "Lyrica", as they can be very useful in their own respective ways!

there other things to check: vitamin B1, B6.
in my case: I changed my diet to gluten free, no milk products and no solanacea (tomatos eggplans and this kind of vegetables).
at the bigging I started with "raw food" and then added other things little by little.

Sugar is another thing that is bad. REALLY too bad. Gluten free was easy. Cutting way back on sugar is awful since it is in everything.