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05-18-2012, 12:40 PM | #221 | ||
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Junior Member
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To me that is the hard part in determining if you're getting better. The improvements are sometimes so slow that you measure it in months or even years rather than weeks. As you started healing did you experience periods where it seemed that it was maybe getting worse instead of better? Did the flares slow down for a considerable period of time where you thought you making notable improvements only to have them come back and stay on for a near equal amount of time? I have experienced these effects (but not so much lately) which put some doubt into my mind that I was improving to any significant degree. I know things have improved for me especially lately, but that kernal of doubt seems to rise up with a series of flares that come out of no where. I know the diary is the best way to gauge progress, but I would be interested to hear your thoughts. |
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05-19-2012, 10:26 PM | #222 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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My flares have been diminishing in frequency, duration, and severity as I've learned about this ailment and figured out clues & triggers applicable to myself. I got into some sweets earlier this week (incorrigible chocoholic/sweet tooth) and I'm paying for it now. / My expectations for healing are... humble. I'm probably in a bargaining stage right now, so I'll take what I can get. Tomorrow (metaphorically) I may reach beyond my grasp. One day at a time. Doc
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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"Thanks for this!" says: | karsten (05-21-2012) |
05-20-2012, 01:32 PM | #223 | |||
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My PN just slowly got better. I would have times, only minutes, when I would have a bit of pain in my feet, then it was gone. I think the nerves were healing. I mostly just improve with no pain. I take so many supplements and foods that heal and no sugar, low carbs that it has all been a great slow improvement. I am thankful.
Before, I would only wear my UGGS to walk since my feet felt funny. I now walk barefoot on my wood and tile floors and it doesn't feel weird! It feels GOOD!
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"Thanks for this!" says: | ger715 (05-20-2012) |
05-20-2012, 02:32 PM | #224 | ||
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July 2012 will be the second anniversary of my diagnosis. My PN has not gotten better yet, but I am hopeful. So far, the only relief that I get is in winter. When the temperatures are cooler, my symptoms are less pronounced. However, my symptoms in summer seem to be getting a little worse each year. Maybe it is because summers are getting hotter each year. I do not know. Also, I find it more and more difficult to walk for very long because of the pain and dysfunction (feels like I am flatfooted) that walking brings on.
But how can I complain when there are some among us who are completely debilitated by their illness, and I am not there yet. |
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"Thanks for this!" says: | ger715 (05-20-2012) |
05-20-2012, 08:05 PM | #225 | ||
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Hope springs eternal. I, too, am hopeful that things will get better. Last winter was my first winter with PN and it was extremely difficult for me to wear heavy clothes. Or, even just light sweaters, or just anything that touches my skin for that matter. I prefer the season now for the simple reason that I can wear less clothes, e.g. shorts and sleeveless. I have very hypersensitive skin and painful feet. I also could not walk and stand for a long period. What are you symptoms? What supplements do you take? |
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05-20-2012, 09:52 PM | #226 | ||
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I have a list of symptoms and of supplements. I'll have to get back to you on all that. But I appreciate your concern.
Things may get better for me. Or they may stay the same. But I am past the panic and fear over the fact that they might get worse. My affairs are in order, so I can take what comes, one step at a time. This forum, particularly mrsD, have been a great help. I am easily discouraged by doctors — who, as everyone here knows, are inadequate — but NeuroTalk has been a substantive help and I am grateful. Cheers. |
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05-20-2012, 11:40 PM | #227 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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I think "improvement" can, and should, be viewed in different ways.
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For someone whose progression is halted/stable, lessening of one or more symptoms is improvement. For someone whose symptoms have lessened, regression is improvement. Quote:
Setting goals and achieving them (small steps) is improvement. Adopting a positive attitude/outlook is improvement, and every little improvement is cause for further positive outlook, which is further improvement. Improvement is where we find it. Sometimes we don't notice it unless we look for it. Doc
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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"Thanks for this!" says: | Idiopathic PN (05-22-2012), Nervous (05-21-2012) |
05-22-2012, 07:32 PM | #228 | ||
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"Thanks for this!" says: | Nervous (05-22-2012) |
05-25-2012, 12:31 PM | #229 | ||
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New Member
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Hi,
I'm new to the forum. Where would I find the stickies? Thank you, Quote:
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05-25-2012, 12:42 PM | #230 | |||
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Wisest Elder Ever
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Since the poster you are requesting has made his contribution here, YEARS ago, there have been many others and newer information available here.
Here are his two stickied posts: http://neurotalk.psychcentral.com/post9580-18.html http://neurotalk.psychcentral.com/post9583-19.html But you are welcome to read our subforum which has grown quite a bit since 2007. Go to the main Peripheral Neuropathy page and the link to the subforum is at the very top.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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