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Old 03-10-2013, 12:13 PM #311
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Default Fish Oil

I want to take fish oil. It was making my muscles spasm more in my legs and more itching. I don't know what kind of nueropathy I have yet, the 'why' of it - my neurologist of six months hasn't told me or seemed to look into it. I have a second opinion coming up. But I really wish I could take fish oil, my inner guidance tells me to take it plus so many posts. Plus I have taken it before for arthitis and now only recently having troubles. I am using the walmart brand.
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Old 03-12-2013, 02:08 AM #312
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Smirk diabetic neuropathy and meralgia paresthetica

hello ! I am a 59 yr old man who had a surgery for carcinmoid cancer since the operations in 2011 i have had been diagnosed with type 2 diabetes and since being diagnosed i have always been dieting and it paid off i had good a1c has always ben good they have been like a 5.3 5.9 never over the 5.9 my doctor says i am prediabetic well since being diangnosed with the type 2 diabetes my neuropathy started affecting my fet the knee turned a real ugly dark color and then came my burning feet i also have those terrible shock feelings in the left leg wow the electrical feeling shocks are terribl;e my feet have felt a little better but i have ugly looking ankles they swell up often and there burning painfull on the bottom now i became disabled cause of the feet and i have been walking to move around and i started getting real pains in the left leg where i have trouble from the meralgia paresthetica I take 2 pain meds morphine and oxcycodone if i didn't take them i wouldn't be doing my chores cooking doinf my laundry cleaning and generally takin care of my self the pain meds help I was hoping that the diabetic neuropathy would go away but it does not feel like its gonna crampy achy legs i had simular pains like 11 yrs ago on my back I also have facet joint arthritus and bursitus i take 2 375 mg of naproxen to help with my bursitus in my hips i get so sick with pain in my hip i cannot do much when i flares up i had test for my meralgia paresthetica and for the neuropathy in my lower extremities the emg test was positive the emg tech said i did have meralgia paresthetica in both legs i had to have that test to allow me to get my special diabetic shoes perscribe for me I would like anyone to email me and share any good things that you do to ease the pain I find that when I get servere pain I have to rest and i mean rest shut the tv off and lower the nois and listen to music and relax myself to help the pain thats what i have to do I have found that it works to help me cause i get such a head ach and i cannot take like another 15 mg of oxcy when the pain is ats its highest I try to do the resting its safer for me this neuropathy has been such a real disableing illness myother brothers and sisters have type 2 diabetes and they have not experienced this burning feet like i do so I am just trying to learn how to live with this its been so hard especially on my children and friends cause i am a winer when it comes to pain so i wish eveyone to get well and please feel free to email me a line or two on how you cope with your neuropathy thanks for reading thjis bye from lowell mass.
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Old 03-23-2013, 09:18 AM #313
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Default Neuropathy Support Formula

I'm guessing that this supplement blend has probably been discussed many times on this board but I'm a newbie & am having trouble figuring out how to search for certain topics. This is the product I am referring to is called 'Neuropathy Support Formula'. On their website they also offer a free e-book which is very informative for those new to Neuropathy like myself. I am more than willing to shell out the money for these potential miracle vitamins but I was hoping for perhaps a few positive testimonials from you guys before giving them my credit card number. As a very healthy 38 year old active female I am still reeling that I have this affliction. I take a palm full of supplements already every day, take Yoga & Spin classes 3/4 times weekly & my diet has been clean for so long (with the exception of wine (I LOVE[D] WINE) and cheese (which I've been off for a month now) I am continuously disheartened that my symptoms seem to be worsening. I mean... I'm having trouble typing this reply because of numbness, tingling & pain which is identical in my feet. I'm convinced that my PN came on about a year ago due to medicine that a previous physician had me on to balance my hormones. My current MD is very holistic, but she's not a Neurologist (my Neurologist is very drug pushy) so I have been seeing her for treatment. Gosh - I'm sorry for rambling on but I appreciate any of you that read & can relate. Misery loves company I guess! But relief loves company even more so I'd very much appreciate it if any of you could give my your thoughts on the above mentioned supplement. THANK YOU!!
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Old 03-23-2013, 10:48 AM #314
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Lightbulb

Neuropathy Support formula has many posts here and on
the introduction forum at NT. If you use the search engines here you can find those posts, and read the lengthy discussions about it.

It is basically a shot gun product, which has ingredients you may not need, and has inflated the prices of its ingredients from competitors to justify its own high price. I have revealed my opinion of this type of advertising many times on these forums. The herbs in it have no quantities listed and are in such small amounts as to be useless, but they "look" impressive.

We don't know much about the maker, whether they have GMP ratings etc. So that's about all I can say for now.

Please do a search here, as there are many posts.
This product has a new name too...Neuroplenish(which is a reformulation of contents to reflect what we post about here).

We discuss supplements here all the time. There is a special post
in the Subforum above:
http://neurotalk.psychcentral.com/thread121683.html
We have a lengthy thread here on B12 (methylcobalamin).
And many posts on Benfotiamine. If you search them separately
you will find posters using one or more of them very successfully.

Everyone is not the same. PNs occur for many different reasons.
So not one thing is useful for everyone.
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Old 03-23-2013, 02:46 PM #315
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Default

I asked the same question about the "NSF" drug too, and MrsD responded with a a good answer.

See that here: http://neurotalk.psychcentral.com/thread104096.html
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"Thanks for this!" says:
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Old 03-23-2013, 06:27 PM #316
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Thank you Mrs.D & Icehouse :-)
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Old 04-05-2013, 02:17 PM #317
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Default Walgreens Finally sells B12 methylcobalamin

I finally bought the B-12 Methylcobalamin at Walmart, but Walgreen now also sells it. Previously I could not find it and in fact, this is the first time I will be using it, as I had been using the other type over the last 8 months.

The brand I bought is "Nature's Bounty" quick dissolve type. It comes in 60 micro-lozenges at 1000 mcg. I took only 500 mcg of the B-12 cyan o type per day, so I might have to split these in two to equal the dosage. (I don't want to over-take too much B-12).

Anyway, what do you all know about this brand? Is it a decent brand to take?
.................................................. .................................................. .................................

I also wanted to mention that I have seen two commercials pushing Cymbalta to treat Neuropathy. I do not take any drugs for pn. And I do NOT advocate Cymbalta. These two commercials feature a woman who has diabetic neuropathy, saying "her feet felt like bees and ants were stinging them" - and the other commercial endorsement came from WGN news where they advocate Cymbalta in chemo-related Peripheral Neuropathy. Any thoughts on this new, more direct media coverage on PN?

...Oh, and please answer my B12 question though, as I had not started taking it yet, and wanted to know if that brand is appropriate for treating PN, too.
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Old 04-05-2013, 02:29 PM #318
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Lightbulb

There is really no such thing as "too much" B12 orally.
There is no upper limit on B12 from the FDA. (which is very strict)

Only 13mcg get absorbed out of 1000mcg if taken on an empty stomach!

The rest is eliminated thru the bowel.
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Old 04-05-2013, 02:34 PM #319
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Quote:
Originally Posted by mrsD View Post
There is really no such thing as "too much" B12 orally.
There is no upper limit on B12 from the FDA. (which is very strict)

Only 13mcg get absorbed out of 1000mcg if taken on an empty stomach!

The rest is eliminated thru the bowel.
I was thinking along the same line. As I had only been taking the cyano B12 for the last 8 months, I was wondering if upping my dosage with B-12 Methylcobalamin might help in better ways.

Have you heard of this brand before?
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Old 04-05-2013, 02:44 PM #320
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Lightbulb

Yes, it is a common brand.

http://www.naturesbounty.com/pages/our_company.aspx

GMP is typically found on the better brands.
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