Reminder.... this is a pretty old thread. The water soluble forms of CoQ-10 were not common when this thread was made. (or were very expensive).

The cost has come down now for both CoQ-10 and Ubiquinol water based forms today. These are the types I recommend now, as people can afford to use them, and they require much lower dosing.

Maybe it's not a bad idea to put that reminder in the first post? I now remember I actually found this forum via this thread after a Google search, and seeing that it has 137,000 views I'm probably not the only one.

I really hesitate to alter people's posts, without their permission.
(unless there is a serious need for it.)

But yes, there are many people who come into this thread from Google.

Some of the views are also automated bots...who come in anytime a thread is bumped. These are search engines and not "real living breathing people).

I'm still being tested to find out exactly what's wrong, but my mother also has neuropathy - so SOMETHING going on is genetic. They have never found an exact cause of hers. My brother also has some autoimmune issues. He has been finding the vitamin K2 to be helpful in controlling his issues. Has anyone heard of this used for neuropathy before?

I would make sure anyone using K2 would have testing for
cryoglobulinemia, and the other peptides that thicken the blood, IgG and IgM.

If you have thickened or highly viscous blood you are prone to blocking blood vessels.

Here is a good monograph with explanations about K2...
Please read it carefully.

http://lpi.oregonstate.edu/infocente...mins/vitaminK/

Some posters here also find improvements with Vit E.
Use a good natural form if you decide to try E as well.

I have all of these symptoms.. Doctors have given me strength and flexibility tests as well as blood work. They all say I'm fine. I saw a doctor for scoliosis, she said I could experience pain and numbness on one side, she acted confused when I shared that it was both feet and legs as well as both hands and arms. I also have abdominal and back pain as well as ringing in my ears... Reading these post I feel like doctors won't ever help and I should just tackle it with diet and exercise. Which is already pretty good, but I can try harder.

I would still be careful about B6 toxicity. I would advise testing before taking and then testing again a few months after taking to watch levels.

My doctors put me on B6 right away without testing and my levels shot up through the roof, probably worsening my PN. I would have kept taking the B6 if I hadn't listened to my own gut feeling and make them test me (after asking many times) and getting my test results myself to check (they never noticed this, even after they received the lab results back - I had to point it out to them).

It is a good idea to keep an eye on your levels because your body might not be eliminating it as expected.

I have now been off it for four months and my body is still not back to normal levels.

The levels and ranges were designed to reflect people NOT taking supplements. It is only to be expected that taking something everyday would shift those levels to a different reading.

What is missing from our medical community is the information about what is serious for those taking "something" compared to someone not.

All we have to go on today, is the patient's information about how they "feel". If something doesn't agree with you, don't take it. Then there is the testing itself. If the red cells burst in the sample and spill their contents then artificially high readings can result. But they do not reflect the true serum levels.

There are now testing labs that only measure intracellular levels, so that mistakes cannot happen as often.

So are you saying that perhaps I shouldn't be as concerned?

I developed neuropathy straight away only three days after my first chemo infusion. The doctors gave me B6 tablets and told me not to take more than 100mg a day. I can't remember but I think I took a modest amount daily for two months. I kept bugging them to test my B6 and finally a couple of months later I got my test and the value showed around 12000 even though it was supposed to be below 180. Now 8 months after my first infusion it still is around 300 and hasn't fully returned to normal. I read about other people who had b6 toxicity induced neuropathy with levels around 700. So I've been thinking that perhaps taking B6 actually compounded my chemo neuropathy and made it worse. What's worse is I had to figure all this out on my own and the doctors don't seem to care.

Thanks for any thoughts.

.... another thing to add to my post .... it is hard to tell if my neuropathy is from the chemo or from B6 toxity if I base it only on how it feels but it would be nice to know because the b6 toxity has a better chance of healing itself.