Cardio and Strength Training
 

Hello everyone - just joined a few hours ago. I've got BAD problems.

My neuropathy is SO bad, I'm taking 800MG of Gabapentin THREE times daily, and it's STILL not killing the pain. I've been usually tied to fitness, but NOW, I don't want to go NEAR the gym.

When I finish lifting weights, my HANDS and feet ache from the moving the weights. If I'm doing chest presses, or any other exercise that involves pushing heavy weight, my hands reek HAVOC! Sharp, stabbing pains all night. I don't know what to do. I can't even teach my child how to ride her bike because I can't run behind her anymore. The pain is SO bad...

I am a Type II Diabetic (un-diagnosed for SEVERAL years). Here's the thing.

I went to my new doctor (hadn't gone in 10yrs since my old doc died), and she ordered up a physical. I only went because I'm 43 and had not had a prostate exam, and my family was giving me fits about getting it done.

She ordered a HUGE battery of tests (10 vials of blood taken) AFTER the physical exam and found my A1C to be 13. Since I had a fear of needles, she agreed to allow me to try and bring my blood sugar down via diet, exercise, and oral meds. I'm below 200 after meals at all times now. But still only around 100 every now and again. Median is about 140.

I spoke to her briefely about feeling a slight pain (like nerve pain) and numbness while running.

I've noticed that as my blood sugars are coming down the WORSE the neuropathy has become!!!! And NOW, the pain is constant.

Next, sometimes depending on how I'm sitting in a chair or lying down, the pain can be worse. Feels like my hands and feet are asleep and then that graduates to stabbing pains. It's horrible.

Now.. can this TRULY be reversed? And what in addition to the Gabapentin can I take. The bitter melon nor the Gymnemma hardly do anything for my sugars.

I need help.

question
 

How do I get to page 2 of the stickies? I'm new to this site and am interested. Matt

Matt.... you are in the stickies!!

But..... if you're trying to find them from scratch, here are some directions.


On the home page of the PN forum (as with other forums) the stickies are the first threads in the forum, so go back to the front page, and look up above.

The first things you see top left are green arrows. These are the sticky threads.

So far we have =

Sticky thread -Neuropathy does improve (Multi-page thread 1 2 3 4) started by LizaJane

Sticky Thread: - The Vitamin B12 Thread: (Multi-page thread 1 2) started by mrsD

Sticky Thread : - Help with applying for SS Disability. Started by DanP

Sticky Thread : - Important Links to Useful websites (Multi-page thread 1 2)

To find page 2 on any of these, simply click the 2, but you might like to read them from the beginning anyway, as there's lots of good information up there.

Other than that, go to the bottom right of any thread and you will see the page count. Simply press the page number that you seek.

It can be healed...
 

I use Fentanyl 75 mcg patches-1 every 72 hours. I find that these work great. I am one year post diagnosis, and have improved from basically not being able to walk at all to running three miles per day, swimming, riding my bike, walking my dog, etc.

Please don't think I'm a religious nut, but I received a spiritual healing as well. While not relieved of my condition, I was very much relieved of the bondage that the disease held me in. Literally happened overnight. I thank God every single day, and strongly encourage my fellow pn'ers to go to God and ask for healing. Nothing has helped me more, and I live my life in constant gratitude now.

The futur is neurogenesis for nerve lesion (regrowth of nerve)

Here you can help yourself with :

HORMONES
Pregnenolone Testosterone
Androstenedione Dehydroepiandrosterone
(DHEA)
Chorionic Gonadotropin Growth Hormone
AMINO ACIDS
Taurine Gamma Amino Butyric Acid
Glycine Phenylalanine
NERVE TISSUE BUILDER
Alpha Lipoic Acid

:hug:

P5P and B 12
 

Hi Mrs D. New to this forum today. I think I have small fiber PN, and
would like to know how much B12 to take? Also what is P5P? And how
much of it? Thanks so much.

Susan

Hello Susan, and welcome to NeuroTalk.

I put up a B12 thread here with some links and information.

I think if you are just starting out, you need to have testing first, to show where you are. I'd get the B12 done and Vit D (this is newer information, but valid and helpful too).

http://neurotalk.psychcentral.com/thread85103.html

more info please
 

Would you please list exact medicines, etc. that you are using?
Thank you... Carlisle

Hello Brian, not sure if you got what I was writing but anything you could say to let me know what you have done that would help me to be on the road to stop the hot feet 24-7would be most appreciative.
God bless,

Rick

So Steve, what can I do to be on the road to getting results like you have.

Thanks for taking your time to answer.

Rick

Wing42 ~ Your first paragraph describes my pain to a T. Thank you so much...I thought I was crazy trying to describe the pain to my doctor. Electrical jolt is what I feel and my foot jerks and trembles at time.

What were your symptoms
 

FOR 4 YEARS I HAVE TIN NITUS,FEELING LIKE DIFFERENT PARTS OF BODY ARE STUFFED UP,BRAIN FOG,DIZZINESS,BURNING AND COLD FROM INSIDE OUT.NUMBNESS AND TINGLING,MUSCLE WEAKNESS,BELLS PALSY,FORGETFULNESS CRAWLING SENSATIONS,MUSCLE WEAKNESS AND JERKS.ASHTMATIC BRONCHITIS THAT LED TO RESPIRATORY FAILURE.PETECHIAE RASH.INTERMITTENT HIGH BLOOD PRESSURE,LOW GLUCOSE(NOT ALL THE TIME.SEVERE ANXXIETY.i WAS BETTER WHEN I WAS TAKING STEROIDS,SOMEWHAT,ALTHOUGH STEROIDS MADE ME EMOTIONAL.MY DOCTORS THINK THAT IT WAS CAUSED BY THE RESPIRATORY DISTRESS BUT i THINK THAT JUST MADE THINGS WORSE BECAUSE I HAD THESE SYMPTOMS BEFORE LONG BEFORE.i MUST ADD THAT I DRANK BEER AND SMOKED DAILY,HAD A LOT OF STRESS,DIDN'T EAT RIGHT OR SLEEP GOOD.I HAVE TAKEN VITAMINS AND BEEN NONSMOKER FOR MONTS

Idea for nana
 

Your symptomsbate actually very TYPICAL and common with Lyme disease, especially the tinnitus and Bella Palsy. Please read my threads on Lyme- you find them by searching. You might want to go to the Lyme support group I talk about and be sure to the blood test where your blood is sent to Igenix.

The IlADS website ia good. Buy I've posted on Lyme and don't recall all the info just now, so I'd urge you to search for my posts on it. Your symptoms are just very typical.

Traumatized That's me right now
 

This is all so new to me...
I have to wait until June to see a specialist.

Welcome to Canada. In the mean time I will try the supplements above. When I walk I get overall fatigue, but if you tell me this will help I will give it a try. I have numbness from my heals, since 1 year, when i walk, the numbness goes up my legs. I was diagnosed by a chiro and family doctor with PN last week. No EMG yet, I must wait...Canada eh.

In the mean time, I am not getting any better and I am doing a lot of research and the stress of all this does not help. I feel so alone. I am a very positive person, but for a triathlete this is so scary. I have to use an electric cart to do my grocery shopping. I can't work anymore. I eat a very good diet, but not a big variety due to sensitivities. Any suggestions? I am all ears...
Breathe
;)

Back in July of 2010 when still dealing with pretty much constant overall burning non-length dependent small fiber neuropathy that began in January 2010, I saw the title of this thread and said, "Yeah, right."

Now it's February of 2011. And there's been no more burning since sometime in the fall, just some residual skin sensitivity which means still not being able to wear certain clothing (fabrics).

The neuropathy is still there but to a much lesser degree. I've been told the cause of mine is Sjogren's Syndrome.

So glad I found this forum and decided to go for the recommended supplements (thanks to MrsD's posts) for these reasons:

1. Bad reactions to neurontin and Lyrica; and

2. MrsD knows what she's talking about.

As Sjogren's is incurable, the neuropathy will probably always be there to some extent. There's dizziness, a little loss of balance, etc. and a lot of photosensitivity (from Sjogren's), but overall doing so very much better. Just keeping my fingers crossed and continuing the supplements.

Sheltiemom18

Sheltiemom,

Good to hear you're feeling better. I've been thinking of my own progress since last summer. My symptoms are reduced, and I have almost none of the horrible foot cramping that was so painful. Fatigue is still a big issue, though.

Like you, I have the Forum and especially mrsD to thank.

After reading all this it certainly does give one hope! I was Dxd with small fiber neuropathy about 10 months ago and let me tell you I have gone through all the symptoms since then! And to think it all started with an annoying numbness in my toes!!!! I have been through the burning,freezing,feet feeling wet,shocking,muscle cramps,ice pick feeling and just so much pain that you just can't imagine if you haven't gone through it yourself! Sure people say they understand but how can they?
I have had alot of blood work done and my vitamin levels are good,I am not diabetic,have been tested for heavy metals,lupus,hep C,and others that I can't think of right now.
I am on 300 mg gabapentin 3 times daily and 15mg baclofen 3 times daily plus I use a compoud cream on my feet and still not much relief!
I wish you all better luck,we all need it! Heres to better days!!!!!
Sandy:grouphug:

My relief for "
 

I want to tell my story hoping it may help some of you who are suffering with this dreaded disease. Around 2005, I had pain in the big toe on my left foot. I self diagnosed it as probably a toenail fungus. I kept putting tea tree oil on it but it got worse over time, and then my right foot had the same symptoms. One day in the summer my feet turned bright red, and I had an unbearable burning pain. I called my doctor and she said it could be an allergic reaction to the rubber flip-flops that I was wearing. I got rid of those sandals but it didn't help.

And then, thanks to the internet and our wonderful world of "High-Tech", I decided to do my own research on Google. When I put in all my symptoms, I came up with "Peripheral Neuropathy". I printed out about 50 pages of info, and brought it all to my doctor. She skimmed through it, and said, "Mmm, interesting". She then scheduled me for all kinds of tests over the next 5 years (MRI, EMG, CatScan, all kinds of blood tests, physical therapy, and a lot more that I can't remember. During that time I saw 3 different Neurologists, a Hemotologist, and even a Podiatrist. As it turned out, I don't have Diabetes (for which I am thankful) so my neuropathy was labeled "Idiopathic". One Neurologist told me it was probably "Small Fiber Neuropathy". He put me on Amitriptyline which I discontinued after about a month because I didn't like the side effects, and I didn't think it was helping.

There were 3 important things that made me realize the doctors knew nothing about PIN. First of all, the Hemotologist said it was labeled "Idiopathic" because the idiot doctors didn't know what was causing it. Secondly, not one doctor discussed supplements or nutrition. Thirdly, and MOST OF All, the idiotic Podiatrist after taking x-rays talked me into having surgery to remove the toenails from my big toes, saying it could be ingrown toenails. He even gave me a date for the surgery. When I got home, I had a discussion with myself, and talked myself right out of that scam. I called him and told him I did NOT have ingrown toenails. He said to let him know if I changed my mind. He was the biggest idiot of all. At least all the other doctors said they couldn't help me.

I have researched and found many support groups for PIN. I've changed my diet, added and even discontinued different vitamins and supplements that other people recommended. I decided I was going to learn to live with it, and not go on any prescribed medication for as long as I could bear the burning and pain in my feet. Last month I went for a follow up with my doctor, and she suggested I have one more test which was a "Cardio-Vascular" test for oxygen and blood flow to my legs, due to the fact that I was a smoker for years (now smoke free for the past 10 years).

The test proved that I had no problems with circulation but my doctor suggested I take a whole aspirin (500mg) every day, I was already taking the 81mg. She said to take the 500mg instead because it couldn't hurt, and it just might help because it is an anti-inflammatory. At the same time that I started the 500mg of aspirin I added a multivitamin which I had discontinued because it had B6 which I believed too much of could aggravate neuropathy. I do have a special regime of vitamins and supplements which I will post if anyone is interested.

Now the following is the reason why I'm telling you all this: "FOR THE PAST 2 WEEKS SINCE STARTING THE 500mg OF ASPIRIN, THE BURNING IS ABSOLUTELY GONE". I can't believe it, I can wear my sneakers and sox all day, and there's no burning. I haven't even had to use the mint lotion at all, which I used especially at night for the burning pain. I still once in awhile get a few stabs of pain in my big toes, and I know I will always have neuropathy, but if it stays the way it is right now, I will be sooooo happy....my fingers are crossed.

I feel a great need to put this info out there but we each have different kinds and symptoms of PIN. I strongly recommend anyone taking pure aspirin to make sure it's enteric coated and taken with food, and be aware of side effects with stomach problems. There is so much more I do as far as supplements, nutrition, and exercise that all comes together in keeping my neuropathy at a bearable level. I would be happy to share with anyone who is interested.

For now I able to go on with my life without the miserable burning. Every once in a while throughout the day, I look at my feet and say out loud, "I can't believe it, thank you God!"

Love & Hope to all,
Rosie xo :grouphug:

Hi Rosie,

That's great news, and :welcome_sign:
I can't take aspirin for more than a single dose at a time - even enteric; it aggravates IBS and I begin bleeding almost immediately.

I did start R-Lipoic Acid a few weeks ago (you didn't mention if it's part of your regimen) and have had similar results. Within 48 hrs the burning stopped completely, and hasn't returned yet. I understand my results are not typical; it can take up to a couple months for some folks, if it works at all. But it's another option to try.

Doc

Hi Doc,

I've decided to pass on the aspirin even though it really helped me. I read too many horror stories on how it destroys your stomach. I take alpha lipoic acid (ubiqutol) B12, Benfotiamine (B1), and now I sent for some P5P (B6) recommended by Mrs. D. I also use a topical cream (Topricin) that really helps with the pain for a while. I also take a multi vitamin, and krill oil, calcium, and vitamin D3. If I want relief from aspirin I'll take Alka Seltzer regular with aspirin, also recommended by Mrs. D. This site is wonderful, so many friendly and supportive people. Take care & be well....:circlelove:

Aspirin
 

Hi!
I am new to this forum, eventhough I have been diagnosed with PN a year ago.
Just wondering if natural aspirin (White Willow Bark) could have the same devastating effect on the stomach...does anyone knows?
thanks:),
Bea

Here is an official site with willow bark information:

http://www.umm.edu/altmed/articles/w...ark-000281.htm

The potential is there... but depending on dose, I would think the risks of bleeding would be less than aspirin if used prudently.

The bleeding effects are not local from the stomach always...they can be induced thru the blood stream to the tissues that way.
That is how all NSAIDs work. They interfere with PGE1 synthesis which builds the protective stomach lining in the first place.

Thanks Liza Jane
 

Hi Liza Jane,
I took your advice awhile back, been on it about a month, somewhat better. Just started watching diet closer, cutting out all processed food, bad sugars, keeping carbs lowered. I am not diabetic but wonder what this diet will do. Tried everything else, I was gluten intolerant for years before finding out a year ago so the damage done during that time is probably the culprit but digestion is great now w/o gluten, so I'm doing the CoQ10, acetyl carnitine, evening primrose, R-lipoic acid and multiple vitamins. Also exercise an hour a day. Thanks for your input. I hope you didn't have to have the spinal surgery.:o

L5 arthritis or small fiber neuropathy
 

I just had a MRI and the results was...disk degeneration at L5-Sl with a with a midline annular tear and shallow central disk protrusion but without nerve
encroachment or canals stenosis. Does this mean I may not have small fiber neuropathy just as you are saying.

No--
 

--you may still well have neuropathy; there are many more systemic causes of neuropathy besides nerve compression in or near the spinal cord. ("Radiculopathy" is the term for nerve symptoms caused by compression of the spinal nerve roots.)

Question re: Neuropathy Improvement
 

LizaJane - Thank you for your inspiring message. I have do not yet know the cause of the neuropathy that I have. I have autoimmune symptoms akin to Sjogren's, but I don't meet the strict diagnostic criteria.

I noticed you said that as long as someone doesn't have a Sjogren's picture or CIPD, then the neuropathy can improve. Does that mean those of us who may have Sjogren's or CIDP or some other autoimmune cause are doomed?? Is there no way to stop the progressin of neuropathy caused by autoimmune disorders?

Thanks.

Liza Jane you know what to do!
 

LizaJane,Yah, right. I told them I had learned how to care for it--the secret is feeding the mitochondria needed to grow axons (CoQ10, acetyl L carnitine) and taking antioxidants to keep inflammation from causing harm. In addition, keep using the muscles, whether you feel them or not. That was the secret I learned on this forum.

And really, my symptoms are so small compared to 10 years ago. Yes, they're not gone, but they are not that significant.

It can be done. If you've got an idiopathic small fiber neuropathy, or long fiber, and don't have an ongoing CIDP or Sjogren's picture, your peripheral nerves can heal.[/QUOTE]

Well this does work and the only problem is the money to continue the program we start for ourselves. I came herelloking for a solution to using Cymbalta for nerve pain and this made sense to me as I used these itmes years ago and had no burning of my feet./ But got very ill with a viral infection I had to do the doctors way of meds for a while. Now I am, back on my burning feet and am seeking relief with out Cymbalta ebing my only answer. I also use Manuka Honey with Bee Venom as I am not allergic to it and find Same to be of great benefit too . But as you say the nerv e can heal . I thought so and to read this i s so good!! big hug and thanks

Thanks to you all for posting on this board with so many encouraging suggestions and ideas and experiences with PN and associated issues.
I started noticing numbness in the soles of my feet back in the year 2000. In 2001 I started training for a marathon, running from 3 to 8 miles a day, and then late that year, running the Baltimore Comcast 26.3 mile marathon.
I guess I shouldn't have done all that running, because my numbness progressed through those months to include numbness and tingling in both feet and up the ankles, and the fingers of both hands. There was no pain, just numbness and tingling. My VA Medical Center doctor ordered an MRI and a multitude of tests, only to finally determine no cause. I am not diabetic, not anemic, no other deficiences, etc. Neurological testing showed some deterioration of the nerve endings. They diagnosed me, finally in 2005, with idiopathic small fiber peripheral neuropathy and told me there was nothing they could do for me. Without determining a cause, they could offer no treatment. Later that year, I sent samples of my blood to a California lab and was diagnosed with Lyme disease. I took these findings to the VA and they ordered more tests, including a spinal tap. The infectious disease doctor then told me, in a very impatient tone, that I had absolutely "no Lyme disease, and no infectious disease of any kind!" She added that there was "no such thing as chronic Lyme disease," and anyone who said there was, was just "in it for the money." And that was that!

Since then I have always felt that chronic Lyme might be the underlying problem causing my peripheral neuropathy, but before I could investigate further, at age 78, I had a heart attack. The cadiologist diagnosed me with coronary artery disease, with 40% blockage in the left artery, and 100% blockage in the right artery. He put one stent in the left artery He told me that, normally, he would advise by-pass surgery for the right artery, but I had established a collateral artery, sort of a natural by-pass, which although small and fragile, would serve me now and I should exercise to build up its strength. So from that time on I have been focused on recovering from this arterial plaque issue, regaining my strength and stamina slowly. And letting go of my concern over peripheral neuropathy for several intervening years. Now, at age 80, I find this forum and consider it a godsend to have available this information just as I am preparing to return to the VA for annual testing.

I am following the protocol, in part, suggested here for PN, but following it for my arterial condition. These supplements are recommended for the heart and other cardiological issues as well as for PN. So now I think I understand what I need to do going forward: focus on refining my supplement regimen, which has served so well in my coronary artery recovery. I am convinced that the supplements I am taking, and the diet I am following (mostly raw foods), with some refinements, will also bear the chance of alleviating the PN as well.

I have never had any pain associated with the PN, just numbness and tingling. The numbness has advanced to encompass my entire periphery, including my scalp, my face, my buttocks, my legs, my arms and fingers. Everything tingles. So now I have discontinued my Plavix in favor of a natural protocol which is working well, or so it seems. I am anxious to see what my test results will reveal in month or so. I am using flaxseed oil blended with organic, low fat cottage cheese (known as the Budwig protocol) which has given me a big increase in energy; cayenne pepper and fresh lemon juice in warm water every morning; raw honey and cinnamon powder before bedtime; and lots of supplements and exercise. I lift weights and walk a lot, no more running. The supplements are: Vitamin B-100 Complex, Vitamin C (8000 mg daily), Vitamin D-3 (5000 IU daily), Vitamin E (400 IU daily), Co Q-10 (600 mg), R-Lipoic Acid, Serrapeptase, Nattokinase, Saw Palmetto Berry(450 mg), Fennugreek, Kelp powder, Spirolina powder, Aged Garlic, L-Tauralin, L-Arginine, L-Carnitine, and a few others. I have fruit smoothies for breakfast, raw carrots, apples, grapes, etc during the day, then at night I'll have a dinner of salad, maybe some chicken breast or salmon, and a vegetable like asparagus, broccoli, green beans, cabbage, or sprouts. I eat no red meat, no sugar, no dairy (except the cottage cheese), no cheese, no white flour, no white rice, no white pasta, no wheat, no gluten. I feel 100% better. But I'm still numb! Thanks to you all, now I will start working on that issue, using your generous suggestions and advice to see what works.
Thanks for bein' there!
legsdickson
Washington, DC

peripheral neuropathy
 

My legs below knees more and more numb...neurolologist says - no cause, no cure - live with and be thankful there is no pain. trying chelation therapy, just starting because tests report heavy metals. any success frm anyone with chelation?
I tried herbal anti inflammatory etc. thanks. Ron S.

^^In the 15 months or so since my diagnosis, my PN symptoms have progressed from the bottoms of my feet to above the knees. Also, have some arm and hand symptoms.

How do I find the stickies? Looking for page 2. Sorry I'm new.

Hello, and welcome :)
you are on one of the "sticky" threads...if you go back to the index page for this forum, Peripheral Neuropathy, you will see all of the Stckies at the top of the page, with green arrows next to them
http://neurotalk.psychcentral.com/forum20.html

you can also click back from the linked trail just under the NeuroTalk Logo

HTH :)

Vitamin B
 

I'm new here to and when I was first suspected I had Neuropathy I did a lot of on line research. The lack of B Vitamins was one thing that kept coming up so I started taking B 6 and 12 supplements. When I finally did see a doc, and blood tests were done on me, the results showed an excess of Vitamin B and the doc told me not to take any supplements. although my Vitamin D was very low and pharmacy amounts were prescribed. Has anyone else had a proble with having too much Vit. B?

The vitamin "B".... consists of several different ones.

B12 and B6 are very different. So with your testing...what
were the numbers for B12, and B6 separately?

Most people do not need really high doses of B6. However when B12 is used orally high dose is needed because not much is absorbed each time.

B12 has no upper limit of safety, which means there is no toxic amount known yet.

B6 is different, too much is not good, and too little also not good, because both limits can give neuropathic symptoms.

If you were prescribed Vit D on RX ? That is D2 and does not work (we know this from current studies). The OTC D3 does work and dose depends on the number you had from your test.
Calculated from that value, the dose of D3 is 1000IU per 10 pts in US figures, needed to raise per day.

Many doctors are poorly trained in treating vitamin deficiencies.
They do not interpret results well, and often don't treat effectively. So get your test results and post here, on the main board PN section, not this thread, and we will see exactly where you are at.

Time...
 

When did ur PN start?? how long did it take to improve??

I hear you
 

I have a similar diagnosis. I had a L-3-L5 laminectomy Small fiber, long fiber whatever you want to call it problems but I will never improve because my nerve fibers are mostly all dead. Irreversible, I am afraid.
Good Luck
Lyrica is helping cover up the burning and numbness by breaking up nerve transmission is all

Hi everyone. I am new in this group. So, kindly bear with me... i hope to get some insights from members of the same condition as mine.
Last July 2011, I was diagnosed of Peripheral Neuropathy due to my feet pain (which I thought was just a result of my regular walking). When my neurologist said that I have PN, I told him that I have no diabetes (which I thought was the only cause of PN). He said that mine is idiopathic neuropathy.
I thought that it was just one of those "passing conditions" that will go away with enough rest knowing that I was not given any prescription or any tests or further follow-ups.
Months after my visit to my neuro, I went to a rheumatologist for my arthritis. I was given Plaquenil mid September 2011 and by October 20, I experienced this severe itching all over my body: arms, legs, neck and torso (but mostly in my legs and arms). I thought it was due to Plaquenil. My rheumatologist told me to stopped Plaquenil and gave me Vistaril. I was on Vistaril for 2 weeks but nothing improved. The itchiness became a deep, sharp stabbing pins and needles and burning sensations. I went back to my neurologist and he gave me several tests: 1. thyroid antibodies, 2. Lyme Disease, 3. Sedementation Rate, 4.Cyclic Citrullinated Peptide, 5. CRP Standard, 6. Rheumatoid Factor, 7. Anti-Hm Antibodies, 8. Immunofixation Serum, 9. RPR, 10. Urine test - to find heavy metal and 11. Brain MRI, 11. Vit B12 (normal). All results came back negative.
I would have been happy of the negative results but it makes me sad because there was no underlying condition to be treated to stop the neuropathy. The symptoms came on so suddenly and severely.
I am now on Gabapentin 100mg 3caps 3x a day. My neuro said that i can play around my dosage for as long that I dont exceed 12 caps. I have been trying to experiment what dosage works for me but so far I am still in the process. I am so frustrated with this horrible pain. Even the touch of my clothes is giving me so pain.
I tried a number of acupuncture sessions, unfortunately, it did not work for me. I am also using Capsaicin cream, and it gives me severe burning sensation. For 2 weeks, the burning sensation masked the stabbing pain but it does not do anything for the pain in my feet. After two weeks, the cream just gave me the very uncomfortable burning sensation and no longer work to mask the pins and needles pain
I am taking Synthroid, Glucosamine, Vit B12, Calcium and Vit E. I stopped taking Plaquenil afraid that it might aggravate the neuropathy. So now, other than my painful fingers, I have to live with the neuropathic pain.

I am encouraged by your improvements because sometimes, I don’t know how to cope with this horrible pain.
Thank you very much in advance for your thoughts. I will also equally appreciate any ideas and/or experiences that other members can share with me.

I would start researching both "Cymbalta" and "Lyrica", as they can be very useful in their own respective ways!

diet
 

there other things to check: vitamin B1, B6.
in my case: I changed my diet to gluten free, no milk products and no solanacea (tomatos eggplans and this kind of vegetables).
at the bigging I started with "raw food" and then added other things little by little.

Sugar is another thing that is bad. REALLY too bad. Gluten free was easy. Cutting way back on sugar is awful since it is in everything.