That is wonderful news! It gives me much hope and I've wondered lately what a repeat nerve conduction study would show for my condition.

If you have the time, I'd like to hear more about the CoQ10 and acetyl L carnitine as well as the antioxidents you've been taking. I trust your knowledge as you're the one that pointed me to the B-12 therapy. Which has brought such relief to my symptoms.

What did the Docs say after you told them how you were treating your condition? I'd have loved to have been a fly on *that* wall.

I agree with you, doctors can do more damage than good sometimes. Especially when the patient knows more about their condition than their doctor does. My experience with doctors the past few years has been anything but reassuring. However, it seems I've now been blessed with a new NP that actually seems to know about PN and the issues I've had to focus on. So in that dept I have much hope.

Jarrett--The doctors showed way too little interest in what I had to say, unfortunately. But the protocol I followed is the one posted in the stickies. There's a list of supplements, and the advice: use it or lose it. You have to keep trying to use muscles that you cannot feel, or which are weak, to keep stimulating the nerves leading to them.

I'm not a bit surprised by that attitude, LizaJane. They know everything there is to know, donchaknow. After all, they're the ones that have been to college and medical school. Lord, spare me from arrogant, know-it-all doctors who in reality don't know diddly.

Back to the stickies!

I do not see stickies.. Please help

What/where are the Stickies? I am trying to find the protocol LizaJane posted in the stickies.

thanks.

Hi Dockmaster
You are on the stickies
If you look at the forum as a whole you will see the threads on top are "stuck" or pinned there so that they always remain at the top for reference.

http://neurotalk.psychcentral.com/forum20.html

I'd like to add that when you come here off Google, you cannot see our index, etc. You are entering a long active thread.

At the bottom of this page are page numbers. Go to page ONE and then start reading. That is where this particular sticky begins.

Click on Peripheral Neuropathy on the top of the page to view the other 2 stickies if you choose.

Which form of Coq-10 are you taking there are 2 forms.

Reminder.... this is a pretty old thread. The water soluble forms of CoQ-10 were not common when this thread was made. (or were very expensive).

The cost has come down now for both CoQ-10 and Ubiquinol water based forms today. These are the types I recommend now, as people can afford to use them, and they require much lower dosing.