Hi Jo55:

No, Alan never had any facial pain or spasms or anything like that.

Only his toes. That's where the PN is. had it for 15 years.

We can only cross our fingers that this new neurosurgeon can help him.


Now you talk about spasms. I've had spasms all my life. I'm kind of a neurotic person, (severe dental phobia). so I worry about everything.

Seven years ago I had bladder spasms that took me to every specialist known. Had every test known too!!!

They found nothing. One day it just went away. I can remember exactly where I was when the spasming stopped. I was taking a hot shower.

Now if that is what the hot shower did, then god bless the hot shower.

I had muscle spasms in my chest starting from when I was 24 (the first one), in my mom's living room in Florida. I was sitting on the couch and BAM!!! hit me like a squeeze in the left side of my chest. Didn't happen again for a long time. Then once I was in the kitchen and I reached for something and I knew I was going to get a spasm and I did.

Didn't happen again for years. As a matter of fact, once in a while I get a rectal spasm. In the middle of the night. Happened exactly twice in my life so I'm not going to lose sleep over it. I have spasms, I'm a nervous person. I took a xanax to relax myself. I sat on a heating pad. I went to sleep, it was gone in 10 minutes.

My son, when he was around 6 (we were in the school playground) and he says "oh, something funny just happened in my chest). I recognized it immediately for what it was. We immediately took him to his doctor who examined him and declared "oh that was a muscle spasm". He never had it again.

We're an odd bunch of ducks, aren't we??

melody

ALL he had to do was open a REAL browser...not the one that came with AOH#LL.

Only one way to truly BLOCK a computer...take off the power cord and keyboard after you've turned it off and hide those under LOCK and KEY and then keep the key around your neck.

If you can't do that, and you have Windows XP, give the child a GUEST account with LIMITS and then passcode your admin account. Also passcode THE admin account. Better yet, upgrade to Vista when it comes out and learn to use those parental controls. NO one is an admin on that except THE ADMIN. Liz

Second Life Article
 

Found a very interesting article on the MSNBC website:


http://msnbc.msn.com/id/15163036

Diana;)

Hi Southern lady.

I absolutely love your avatar picture.

Really doesn't matter about blocking he computer for this particular kid. He's in jail for armed robbery and I don't see him getting out any time soon.

be well.
melody

Wow!
 

Who KNEW what would happen when I started this thread?! Okay, so, now there are loads and loads of folk looking at this thread and posting. I'd like to ask all of you---who has pn here? Does everyone? Please, folk, fill out a profile and put some basic information--it helps if you put your major diagnoses, approximate age, sex, and maybe a few other things there. I find when I am reading folks' posts who I don't remember, I look at their profile in the hopes of being reminded what they have and who they are, and rarely is the info there. So, please identify yourself---are you a pn-ner? Did you put something in your profile to summarize your basic medical issues?

Next, I have some good friends who are high-level Aspies. I like geeky people, and some of them are Aspy-ish. I never meant to cast aspersions, if that was believed. Also, I have one good friend who spends a great deal of time on SL. She, too, is a lovely person. I have nothing against second lifers. But I do object to what JL did to us at OBT. He started a community which he handled carelessly; he used us to raise money which he then used for a purpose other than what he said it was for (namely, he used money we gave to protect the OBT server to buy land at SL and to do whatever else he needed to do there). I resent that he has treated us with zero compassion, zero empathy, and zero respect. I resent that he leveraged us into a well-paying job that is not basically about illness or health at all, but is a profit-centered online game (some call it a world, but basically, what you do there is PLAY).

I'm happy that people feel JL has helped them; but it makes me rather nauseated when people advise me to just "get over it". I feel I was ripped off, and everyone else was too. Again, this man who made a neurological community showed zero concern for that community once he'd leveraged it into a well-paying, status-filled, and fun job.

Now, about SL. One thing I wondered was--how do Avatars have sex? I mean how could someone manipulate an avatar well enough for an interaction that specific. It seems that people write mini-programs, called macros, and when you decide to have sex with someone, you basically turn on the macro that does what you want. My friend who spends a lot of time there writes macros and designs objects there.

It's important to remember that SL is NOT a not-for-profit enterprise with any dedication to the welfare of its customers. It just wants customers, wants them to spend real money to buy linden dollars, and wants them to come back. Sex and deviance and porn sell big, and SL has lots of that to offer. It has no particular vested interest in making sure that only adults go to adult areas unless their pocketbooks get hurt by the complaints.

Major investors are investing in it: the list is full of big-time funders, beginning with the guy who wrote Lotus, but extending widely. I can't remember offhand the other folk, but there are many with big bucks. It's all about the linden dollars/real dollars.

Okay, folk, if you don't have pn and have been posting here, I'm curious---what brought you to this thread? What's kept you here? Not that I am disinviting anyone AT ALL. I LOVE THIS THREAD. I love how many people are exploring and talking and joining the talk. It's fabulous. But I'm curious.

Melody---where are you going tomorrow? Can you take pictures for us?

Well, I made one post, does that count? lol
I've been reading in PN for years (on that errr "other board"), but I don't read all the messages. I read a lot of the forums because if I listed all the conditions and symptoms that myself and my children have, we'd cover a lot of them. I do not intend to list them in a profile. I wasn't aware that was needed. ???

I also didn't realize one needed to have a condition in order to post on particular forums. My former ex-father-in-law had Peripheral Neuropathy and I nursed him for years when he got to the stage he couldn't walk at all. I've been experiencing strange symptoms in the past 2 years since a fall. I saw a thread here where people were talking about lack of feeling in the feet and falls. I was very interested because of what's been going on with for me in recent years.

As for putting something in my profile listing conditions. I'm sorry, I have never done that anywhere on the internet and don't intend to start.

Edited to add: BTW, I understand that people are hurt. What I don't understand is that the thread started to sound a little like that game "chinese whispers"... where one person whispers something on to the next person and so forth... in the end the whole meaning and and reality of what happens is lost. e.g. forum users linked to JL purely because they use the other forum, linked to Brigadoon, linked to Second Life, suddenly linked to cybersex. Some of what was said on this thread was shockingly incorrect.

.....................
 

I think some members just notice when a thread is always near the top in the new posts section- so they click to see what is being discussed.
And then decide to join in.
:cool:

I don't think--
 

--anyone specifically NEEDS to have peripheral neuropathy to post on this board or in any particular thread in it, but it is true that this thread has little to do with neuropathy. It's become as long as it has because the topic is interesting and hits a nerve with many who post here (and/or at the old Braintalk), and the participants in general are people who have, or know others who have, neuropathy in one form or another.

Still, it does seem this is the type of thread which might be better placed in some other section--not only because the topic ranged far from neuropathy, but also because it would be great if others who don't frequent this section of the board could also join in. Wonder if we could "transplant" it whole onto Forum Feedback or some other appropriate area (suggestions?).

Avatars and sex!!
 

I'm going to be descriptive because once I found out how it's done I was absolutely fascinated.

Let's star with the avatar. When you join for free, you design your own avatar. it's a plain body, male or female, you dress it, you design the clothes, how short, how long, how tight, how loose. You design the shoes, how high the heels, you put on socks or not. You put on skirt or pants.

You design your hair, your face, your nose. To the tips of your ears. When you design your avatar it brings up the various pieces of the body and you have a slide which you slide from left to right, which gives you a short body or a long body, short ears, long ears...............it's the same for clothes or anything on your body. That's how you determine the exact size. By sliding the little thing back and forth. When you have created our body. You click on save and there is your little avatar (a representative of you in SL).

Now if you decide to do the sex thing, you teleport to a place where you can do this. Because you have a free basic account, your avatar looks like a manniquin. Very robotic. There are countless ways to have sexual adventures. Any place; you go you will see blue little balls and pink little balls. If you are female, you click on the pink and your avatar will assume a female position. People date in Second LIfe so people come in as couples and their avatars go on dates, go to dinner, make love etc. But when they are making love, it's not real looking. It's like watching two manniquins make love. You know it's not real because the movements are always the same no matter where you go,

It's fun to look at for a while but then you realize the main thing that these people back at home on their computers are doing is typing in text.
So the main thing about a free account is, it's kind of like text sex chat.. when you look on the screen, you can actually laugh because it's manniquins going at it.

HOWEVER......... and here's where it changes. When you pay for stuff on Second Life. You can pay for a new body. You can customize that body so that it looks completely human. Very tiny, but very human looking. I was standing at a beach on some island having jus teleported to various locations because the graphics are absolutely so amazing, you think you are at an actual beach. As the waves were rolling in, some woman appeard out of nowhere and she was dressed in the flowing outfit, with a tiara, and jewerly and black high heels (she looked absolutely nothing like my avatar). I said Hi, your outfit is gorgeous and she explained that she designs avatars and costumes in second life and she makes a living that way. But people pay many lindens to look like her.

Then I teleported to other place and I saw many many men and women who actually looked like men and women. Then, and this answers Liza Jane's question about how avatars can actually have real sex?. When you look human in second life, you also design your avatar to move like a human.

I saw a blanket on the floor of some beach. I had no idea what this blanket did but there was a sign over the blanket that said 50 lindens for 15 minutes. Now all I saw was an empty blanketg. Well two human looking avatars sat down, laid down and did what two people in love would do. And it was completely human looking. Never saw such a thing in all my life.

I then understood that there are people like myself who go to Second life because we are curious, maybe we want to do the free slots, and we have an avatar that looks like a manniquin. Then there are the others (PEOPLE WHO ARE REALLY INTO COMPUTER CODES, MACROS, WHATEVER). and want to look like humans with spectacular costumes and they go to bars and drink, and dance (looks real too), make love like the real thing. I went dancing once, laughed my head off.

So Second Life will be a big hit for the people who actually prefer to live their lives in a virtual world. Fascinating believe me.

Believe me, I just gave you a really good interpretation of Second Life.

be well

Melody

Hi Melody - how did Alan sleep last night?

Diana

oy vey, yet again
 

Computers are tricky and it's easy to offend or sound like you're saying something that's not quite the way it sounded in your head. Sometimes I feel people get indignant about something they're read, when the writer was clearly saying something else. SO....Lara, even though you copied what I wrote:
Okay, folk, if you don't have pn and have been posting here, I'm curious---what brought you to this thread? What's kept you here? Not that I am disinviting anyone AT ALL. I LOVE THIS THREAD. I love how many people are exploring and talking and joining the talk. It's fabulous. But I'm curious.

You answered:I also didn't realize one needed to have a condition in order to post on particular forums. It kind of implies that I was asking non-pners to go away, when I certainly was not.

Glenn--you know me, and I feel hurt that you'd imply I was asking people to leave: I was not aware anyone specifically NEEDS to have peripheral neuropathy to post on this board or in any particular thread in it you said.

I don't want to feel defensive that I'm a nice person, and I feel I have to here. So, everybody....I am a nice person.

Last, about profiles and such. I'm not demanding anybody do anything; I am suggesting that if your signature does not contain something which gives a clue about you, you could put something in your profile that does. I'ts NICE to be able to know a bit about who one is talking to, when one's memory is not all that fabulous.

Lara, you say: As for putting something in my profile listing conditions. I'm sorry, I have never done that anywhere on the internet and don't intend to start. and I feel like you're implying I was asking for you to post very personal info. I was not. Really. I am a nice person. Really.

I have a particular interest in PN; that's one of my conditions, and it's nice to know who else is here with PN. Or whose father or hubby or friend has it. Just to round out the picture. I put my major problems in my signature.

Anyway, I'm done defending myself. If my suggestion feels helpful to anyone else, great; if not, that's okay, too.

And yes, this thread got WAY off topic, but I found it became an item of amusement embedded in the pn community, and I have enjoyed reading about everyone's antics and perceptions of SL. Really, it feels rather like a travelogue, and it's got a lot of good humor to it. It's brought me lots of smiles and chuckles.

Okay, 'nuf on this. Again: not telling anybody to go away; not telling anybody they must give away precious personal info; not telling anybody anything. Just making suggestions and being curious. Wow.

I've had PN for 7 years OFFICALLY (will be 8 in Feb) but had it LONG before I was diagnosed. Back then I frequented the message boards at The Neuropathy Association. And then THEIR server went down for MONTHS. When the message boards finally came back online about a year later, it wasn't user friendly any longer. Still isn't and they no longer keep archives. The site itself was only down a few months but their boards were down MUCH longer...

And we paid money there to JOIN the association...

So BT isn't the first forum to have major issues...just the one most of you know about.

LisaJane, if you are so against BT, why bother posting there? Yes, you say it's to reconnect with old friends and help new ones but running down the place doesn't do that. Holding a grudge doesn't help anyone and will actually make your PN worse...and you are holding a WHOPPER of one against John Lester, who to be brutally honest, doesn't care...so move on and like others have said, get over it for your OWN health. Stress only makes PN worse. Liz

To: DLShaffer:

Alan took his requip 20 minutes before bedtime at around 11 p.m. I found him up at 1:30 on the comuter, wide awake. I gave him a xanax and he went out like a light.

He has to do what he has to do. He needs his sleep so he takes a xanax.
This friday is the visit to the neurosurgeon.

Then we at least will know what's up.
Will update.

melody

Yes, Liza Jane is a nice person, LOL.
 

And don't worry, LJ--I actually think you may have interpreted what I said in the same way you were just mentioning--sometimes, in writing on these boards, the way a message reads, without the context of tone or body language, gives an impression different from what the writer actually intended.

I was trying to say (I think) that there's no rule against posts/threads way-off the topic of neuropathy on a neuropathy board--especially here at Neurotalk, where we're trying to have an atmosphere that is not as restrictive as the old one many people chafed under. I do find it easier, just in terms of making decisions about what to read/respond to, for such posts to be labelled as off-topic, or somehow distinguished from those that are neuropathy specific, but I'm quite happy to go through all the posts anyway without worrying if the topic may shift away from neuropathy. If being able to jump to any topic in any thread makes people more comfortable and more liable to post, I'm down with (or is it up for?) that. With my history (and many of you know it, chuckle) far be it from me to call for any sort of "posting rules".

I do think the thread has become about so many more issues, though, that it should be reprised in some other section, so more people who don't usually come here could see it and add their comments. I bet there are a lot of other people with takes on Second Life, or JL, that we don't usually run into here.

So I apologize, Liza Jane (who IS a nice person). :)

(I think I'm a nice person too, most of the time. What I can also be, as LJ, I think, can relate to, is damned persistent. Ah, what the heck--bulldog stubborn. It has served me well in doctor's offices--and, more often than not, on boards as well. But I imagine it's not always everyone's cup of tea.)

I think I'm a nice person too!!
 

Want to know why?? yesterday I bought 3 lbs of ground up turkey. I planned to make turkey patties, and freeze them, which is what I do all the time.
So when Alan wants his turkey burger, with no salt tomato sauce and 3 splendas, he can have it when he wants.

Well, when I got home I found out that I had purchaed 3 lbs of frozen ground turkey. It was in the process of thawing out.

So what was I to do?? I thawed it over night, and this morning, made a 3 lb turkey meatloaf with chopped carrots, zucchinis celery and onions. with everything else you put into a meatloaf...

Alan had to mix the whole thing because my hands don't work sometimes as I have arthritis.

So there I was with this 4 lbs or so of a meatloaf ready to be cooked.

I cooked it, took it out. It was scrumptious. But what the heck are Alan and I going to do with this big fat meatloaf?

It would take us all week to eat it, I heard that if you freeze meatloaf, it doesnt' taste the same. So here I was in my kitchen with this big tremendous meatloaf.

So I cut it in half. Put it in a tinfoil thing. Covered it, went outside to my upstairs neighbors who are from lebanon and the nicest people. The guys' wife died of mad cow disease 4 years ago and he's alone most of the time.

I ring their bell and you should have seen the look on one of the daughter's faces when I said "you have to do me a favor, you have to take this meatloaf, I made 4 lbs of it and who on earth can eat this in my house, we are just two people". She burst out laughing and said "wow, sure, thanks".

so I fed all the people upstairs. Good feeling, believe me.

Melody

see, no more second life talk.
Now we're talking about meatloaf......

((((Melody))))
you sure are a nice person to do that!:p

'smatter of fact, all the folks here seem like REAL nice persons:D

I think you are all nice people & very often it is just the way things happen to be worded or the way the words are interpreted that seems to cause a bit of trouble sometimes.
but if we can all give each other the benefit of the doubt once in a while- life will be less stressful.

Hi, LizJane :). I'm sorry I didn't include my med. stuff in a signature or in a profile. It's just been my preference not to do so; I don't want it staring me in the face after I've posted each time. Some days, I'd rather not be reminded; I've already a scooter, a wheelchair and cane staring me in the face every day.

I've Ankylosing Spondylitis (AS) on top of AS (Asperger's Syndrome). I do have PN, along with obturator neuropathy (which predominantly effects my left - groin, thigh and knee). In addition? Well, since we were asked to share:

I've lived with arthritis since I was a child but it wasn't formally dx'd until I was 22. My first "bout" with it was costochondritis during a college yoga class, of all places, and it felt like I was having a heart attack. I was excused from the class and all I got to sit around doing was watching the other students; it wasn't a fun way to get any grade :(.

I've been through a ton of x-rays, bone scans, MRIs, CTs, and a couple rounds with EMGs/NCVs, along with a host of ESIs and RFs for my spine.

I see a PCP, rheumatologist, neurosurgeon, neurologist, PM doc and cardiologist (for symptomatic MVP, PVCs, and SVT - I think that one is) and I take Toprol-XL 50 MGs a day to regulate the ticker a bit better.

I'm doing my best to assist my doctors in their withdrawal; I don't want to see them! but they got this thing about thinking I need to see them once in a while to monitor everything. Fine... but, I do believe, I won't need a costume for Halloween. I may glow in the dark thanks to the radiation :eek:. (I actually know that it's low-level yet ... the cumulative effect from years and years worth and so many tests... ?)

In addition, it was by a fluke (a mistake in tests - FSH and Estradiol levels - that led my doctors to believe I was post-menopausal) that my doctors sent me for a DEXA scan and discovered that I've got osteoporosis. Even being mistakenly informed that I was post-menopausal was far better than doctors scaring me for several months with the scare that they suspected I had cancer; test after test proved that wrong, but the fear was there and, whenever they mention something that brings it up, I don't hestitate to remind them about the emotional trauma they created with their "it might be cancer, no it isn't, it could be cancer, no it's not, it ...." They were just flatly wrong and had a difficult time accepting it.

In addition, I have another "O" word: Osteoarthritis and DJD (Degenerative Joint Disease).

There is something wrong with my peroneal nerves, only my neurologists are not sure what it is and said it could take about 10 years for them to know. Maybe that's like having arthritis as a child and the years' delay in its dx, too :(.

The current medications I take are: Toprol (as I mentioned, and which reminds me that I've another cardio appoint. in few days), Activella (to - it is hoped by my doctors - slow the progression of bone loss and to control bleeding; yes, I'm a bleeder and spent an un-gawly amt. of hours in ER for it).

I also take codeine and use Stadol on an as needed only basis. And, those medications were a total pain in the rump to get authorized for how my doctors wanted it Rx'd. Even with three doctors giving the go-ahead, my insurance had some putz-wit seeking to over-ride. What finally happened? It took a HR woman and the CEO which provides the bulk of my insurance to issue a directive to my insurance and get my medication filled as written, not as insurance wished. In that interim, though, I did it the insurance's way and spent a month throwing up - due to my body not getting along with Oxycontin.

Ohhh, a couple years ago, my doctors suspect I had a TIA.

How to summarize this for a profile? I dunno. Nor do I want to :cool:.

I hope that I may have addressed some of what you were wanting to know.

P.S.: I posted about my TN in the TN forum; I have arthritis in my jaw bone and TMJ, which my dentists knew before they decided it was okay to force my mouth to remain open for a dental procedure and blowing out the 5th cranial nerve. And, I posted about vagal nerve response in this thread:

http://neurotalk.psychcentral.com/showthread.php?t=1870

In extreme pain, my body responds by wanting to pass out. But that's only when it feels like someone is trying to tear my legs off my body.

When I first read your post, all I could thing of was....
 

jjjeeeeeeezzzzz. All this and Aspergers too???

boy, you have been through the mill, haven't you, you poor thing.

Well, it's very nice to meet you and hope you at least have one pain free day once in a while. I'd love to serve you a piece of my meatloaf.

Take care,
melody

It's getting better, Melody :).

I've whittled the "wanna see you" docs list down to the "gotta see" list :D. I forgot to mention my weekly one, though: she's my chronic pain management counseling doc, and she's cool.

I did find that extreme weather (farther south in California) helped immensely when I spent a week there this summer.

Too, I read what you did, Melody - and that was super nice of you :cool:. It reminds me of my neighbors. No matter how many times it's done, it always feels so special when one brings over something home-made. (I get some great food; on one side, the neighbor is from Pakistan, and her father used to own a bakery in San Francisco; on the other side, the family is from India and, wow, can they also cook!)

It's nice having neighbors - such as yourself. Kindness goes a long way ;).

More on...
 

You guessed it, SL.

I spoke tonight with my good friend whose wife spends many hours a day on SL. He gave me another take on the thing.

First, he said, it's a place where people are encouraged to be in role, whatever role they want, and however they want. He described it as a real place to play, the kind of play we did as children, but have been blocked out of as we have grown up. The kind of play even children don't do as much of anymore, as their play is more scripted by activities, TV shows, and fixed games.

So, he said, his wife loves to go on and play in role, and people enjoy interacting with her, in role, a lot. But at the same time that they are doing this, playing, they are getting to know each other---through play, much as we did as children. When people find they play well together, they want to add other ways of communicating. SL has several different communications systems which work in parallel with the avatar play. You can im, use voice, and other things he didn't fully describe. So, once you're playing well, you'll generally find you want to get to know the people you are playing with.

You email them, im then, and move more and more personally, if things go well. So she now has phone calls daily from friends she made on SL. (She's from Canada, and just moved to the US two years ago when they married, and is short on local friends). Some people have lived close by, but some are from all over the world, yet they feel they are becoming friends. They talk with each other and play with each other on several levels at once, in character or role, when they feel like it, or as they are in RL, as they feel like it.

It sounded not so much different from what happens here. We meet online in a persona of illness, defined narrowly by how we relate through illness. Some of us begin to pm each other, when things seem salient and appealing. Some we may develop email or phone relationships with, and some, we might even meet.

From Braintalk, I've met a core group of people who I feel clearly are friends. No, not like friends I've had since elementary school, but still, real friends. And that's how my friend feels about her Second Life friends--they've become quite real to her, in her life.

And, not to be undervalued: While Second Life is not a game, it IS play. And we sure do need more of that, just pure imaginative play. So, I've learned a new way to think about it.

Melody---Play to your heart's content; let it be an antidote to all the pain you have in your day. Just as your meatloaf is an antidote to all the pain of your neighbors. Though, truth be told, I'm for dovebars. ;)

I have looked at SL, and to be honest, it is not nearly addictive as World Of Warcraft. Now that is a game that will suck in anyone.

Your children are beautiful.

I got a kick out of your son's expression. He looks like he's thinking "go ahead, make my day"
lol

melody

Melody..
 

Has Alan seen the neurosurgeon yet? I've been anxious to see what he said. Thinking about you both...
Billye

We go to the neuro guy on Friday.
 

Believe me, as soon as know something, I'll update here.

Be well,
Melody

I don't think I wanna go there, I've enough problems here, not creating other ones.............but if I did go there........I'd wanna be a Pirate, a Privateer sailing the high seas and capturing booty all through the Carib.- and swashbuckling, and wenching, and drinking, and doing all the physical things I'd never really gotten to do when I was younger - & do the things I'd planned to do when I retired - that I'll never get to do now, because PN won't even let me take the dog for a walk without paying for it for the rest of the day.
And I'm a piker compared to others here, because I can still walk and at least try to live a normal life, addicted-no dependant on drugs for the rest of my life.
But living that kind of vicarious comic book character on-line wouldn't be healthy for me, because I'm not Autistic or have Aspergers.
Its nice that JL concocted a place where he could make money off of ("make a living"??) from those sufferers. But he's not gonna make it offa me. I'll go to OBT as a lurker, & maybe participate, but it will be for the people who were kind enough to help me when I needed it so much, and maybe to put in my 2 cents worth to newbies that find it today.
But I now feel more comfortable here.
I hope the Doc John lets this site stay for a long time to come. But we were bitten (some thought, very badly) and might not be as totally ignorant and trusting in our ability to have a 'home'.
Mankind's inherent ability to play the games behind the scenes for personal profit and gain - many times finds the way to rear its ugly head.
I'm surprised that there is even the word 'altruism' in the languages of the world. I'm sure that the concept doesn't even exist in soome cultures, as well as the concept of dishonesty doesn't in others (albeit remote and aboriginal - difficult to find).
Until then, I'll just close the closet door and take my 'blankie & my Binkie' and try to remember that in my private world - ethics, honesty, & reverence are much more prefered. I guess that's not real, either- but its one that I can be comfortable daydreaming in.

Well,i went and checked it out too!!!
My comp is apparently outdated..LOL
I could'nt view anything..Oh well,i guess i got enough mental illusions from melody anyway..heehee
I have been reading this thread for a while,yet i never posted!
I am a fellow pn'er as well.I have it in my neck/shoulders/feet:(
I have my info on my siggy because i know people forget also.
I am one of those that forget..LOL
I was VERY happy to see this did'nt turn into an argument and everyone was able to resolve their differences and get along!
Very refreshing:)

I too had checked it out early on...
 

upon learning...well, as vivid an imagination as I have it grabbed me about as much as gambling....IF you don't get any gratification or substance rite away...it seems I guess boring - the way I find gambling to be Simple stuff is too boring, other stuff too much to learn how to 'play'. I've done lots of other real complex stuff in my life but, this simply doesn't grab me.

Kell, Bob - why do we need artificial tools to get to where our own minds can simply take us? I for one, far prefer the view in my 'MIND'S EYE'! It's a whole lot easier too, no buttons to push!


Pain free moments everyone! - j

I'm glad Silverlady posted the link
 

to this forum. Otherwise, I wouldn't have known about it. I just wanted to say hi, and report that my PN has been virtually gone for over a year and half. Large doses of methylcobalamin (5 mg AM, 5 mg PM) for 3½ months seems to have done the trick (thanks to rose). I still have a little bit of a "fuzzy" souvenir at times around the toes, but no pain. Nerves seem to have been mostly repaired. All other concomitant issues, including anxiety and depression have long disappeared. While diagnosed as idiopathic PN in February 2005, I am fairly certain that mine was caused by a largely vegan diet, and long periods of no B12 supplementation.

BTW, I have reduced the dose of methylcobalamin, but I'm still taking a total of at least 2 mg daily. I plan to continue taking it regularly from now on.

Best wishes for continuing improvement to all.

George

Hey MoeNeigh
 

George it is so great to "see" you. I'm glad my link did someone some good. The news about your PN is wonderful!! And I'm so glad you came back to post about it all. I know this will make Rose's day. It does mine. Stay in touch.

Billye

Yes! Great to see you
 

And hooray for the huge improvement. :)

rose

MoeNeigh-
love the foal avatar - is it yours?

This is so great!
 

I LOVE to read improvement posts!:D

I am glad you found us. Please stick around and become a helper here?:)