Also, just a thought. One type of specialist that hardly
anyone thinks of, is a physiatrist, usually found under sports medicine.
But if you can get one who has experience with neurological problems,
it could help.
Their job is to see the whole picture and coordinate between
all of your docs, meds & tests.

Re: Physiatrist

At Methodist, Alan was referred to a Physiatrist by his neurologist. I had never heard of such a specialist before.

We were able to get in that same day.

She looked at Alan, watched how he walked, stood on his toes, his heels (whatever Physiatrists do.....this was a LONG time ago).

But the interesting thing was that she asked him if he had been at Ground Zero on 9/11.. Alan told her "no, I have had neuropathy much longer than 7 years".

She said: "do you know how many of my patients were there on 9/11?" And how many have come down with neuropathy??"

There HAS to be some correlation here. Exposure to toxic materials, etc.???

I DO NOT HAVE M.S. I have a bit of gray matter where white matter should be, probably happened as a baby when I started separating the gray matter from the white matter. Other than that, my brain is in pretty darn good shape for my age....I've lived long enough to have "for my age" added to conversations....ugh.
He agreed with Dahlek, my zings are probably from stopping lexapro, he wants me to take the lesser dosage of 10mg. for awhile and come back in a month.
On the very bright side, we mortgaged the farm and bought a Catalina swim spa, it is 1/3rd hot tub, 2/3rd's swim spa. Hubby has rheumatoid and I can't handle the heat but I love water exercise. It is going on our back deck, we poured concrete yesterday, the crane is setting the tub on Thursday and by Friday after work I should be in heaven. We were very nervous about more debt but hey with our health we might not have the golden years so we better make the best of it now. I feel so excited I have been wanting this for years...

I am jealous and curious and beyond intrigued all at once! Wanna know! Wanna know more! Also sounds, well, romantic in some ways? Well, you know what I mean.....Tho in the winter, all I can think of is the whole Sauna Thing...going into the steam and then dousing w/COLD water? Not in my book, no way no how!
For me rite now even a good soak in a tub I feel would require a fork-lift or the like...we've no rails in the tub and I'd prefer to remodel before I get a fork lift installed? Spas tend to have really good steps and rails to ease the in/out processes... Yep, I'm sighing as I write this!
That MS is off the list? That is one very durned good thing! As one neuro I've seen says' One More off the LIST! Hooray! Hugs and hope! 's - j