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Old 06-11-2008, 09:10 AM #1
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Default Tina..

It doesn't sound as if it is Raynauds.

Billye
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Old 06-12-2008, 01:48 PM #2
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Confused

Quote:
Originally Posted by Silverlady View Post
It doesn't sound as if it is Raynauds.

Billye
I don't think so either -- the upper half sounds EM but the other symptoms I have are totally different. I feel like I'm in a whirlwind--each day is different!!
Today I can barely see the words on the screen---but the Optho sd I have perfect vision---even though I have a huge blank spot inmy right eye that I can see and feel----made me feel loke an idiot--said I could only do one of the two ---see it or feel it!!! I do both!!!!!!!!!!! Wanted me to come back for neuro tests---I said not coming back to him for anything cause his "bedside" manner stinks!!! Never heard a word.

Anyways let me get off this

Thanks and God Bless Always!!

T
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Old 06-12-2008, 01:55 PM #3
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Red face Tina, this sounds....

so very uncomfortable!

All of it!

I hope you have someone to "follow up" with on sorting this all out?

Please continue to take good care!
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Old 06-12-2008, 02:16 PM #4
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Lightbulb AlkaSeltzer...

The aspirin in AlkaSeltzer is easier to tolerate.
It is dissolved and does not hurt the stomach like tablets do.

Also the bicarb in it helps with pH issues, and blocks histamine
attachment to the histamine receptors.

If you use regular aspirin...use the enteric coated kind like
Ecotrin...but still I'd suggest AlkaSeltzer (original formula)

Another thing that causes flushing is serotonin release.
If you are on an SSRI for depression/pain, or have an organic
reason for excess serotonin release, you could have that rash.

Hidden tumors in the GI tract called Carcinoids, release serotonin intermittently (sometimes there is wheezing or diarrhea with it but not always), or a hidden lung tumor will also release serotonin. These things should be ruled out as well.
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Old 06-12-2008, 02:42 PM #5
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Smile Tina, check this out....

I had seen a post in another forum on chlorine (I think you had written it) which has just reminded me of recent problems people are reporting with all kinds of "odd" chronic (and intermittent) rashes and actual "burns," as well.

This may not apply to you, but just incase... do you use municipal water and, if so, is your water supply treated with "chloramine?"

Please see this: www.chloramine.org

I'd urge anyone with a public water supply to take a moment to look at this site. It is an easy read and lots of pictures, too! It has some important information for those actually exposed thorugh their water supply.

Mrsd: Great information above! I always enjoy reading your many insights!

Hope you are feeling better, Tina.
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Old 06-12-2008, 04:26 PM #6
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Default

Quote:
Originally Posted by DejaVu View Post
I had seen a post in another forum on chlorine (I think you had written it) which has just reminded me of recent problems people are reporting with all kinds of "odd" chronic (and intermittent) rashes and actual "burns," as well.

This may not apply to you, but just incase... do you use municipal water and, if so, is your water supply treated with "chloramine?"

Please see this: www.chloramine.org

I'd urge anyone with a public water supply to take a moment to look at this site. It is an easy read and lots of pictures, too! It has some important information for those actually exposed thorugh their water supply.

Mrsd: Great information above! I always enjoy reading your many insights!

Hope you are feeling better, Tina.
WOW! What a site (sight)! I don't think that is my problem-but I do use county water. My rash is subject to only one area of the forearm and only arises during great periods of stress---definately not psoriasis--the report suggested all sorts of causes but the Granuloma Agulare was most prominant---which is not something that just comes and goes like this does.

More people should check out that site--think of what it may do to your insides!!!!
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Peripheral Neuropathy, Erythromelalgia, Churg Strauss Syndrome
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Old 06-12-2008, 04:36 PM #7
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Originally Posted by mrsd View Post
The aspirin in AlkaSeltzer is easier to tolerate.
It is dissolved and does not hurt the stomach like tablets do.

Also the bicarb in it helps with pH issues, and blocks histamine
attachment to the histamine receptors.

If you use regular aspirin...use the enteric coated kind like
Ecotrin...but still I'd suggest AlkaSeltzer (original formula)

Another thing that causes flushing is serotonin release.
If you are on an SSRI for depression/pain, or have an organic
reason for excess serotonin release, you could have that rash.

Hidden tumors in the GI tract called Carcinoids, release serotonin intermittently (sometimes there is wheezing or diarrhea with it but not always), or a hidden lung tumor will also release serotonin. These things should be ruled out as well.

I will try the AlkaSeltzer---but on my trial, I just want to see if there is improvement before I go spending so much--I'm a single mom--I'm out on short-term disability and my funds are really tight right now--so I just bought the small bottle of coated aspirin to try for week "trial" period.

I'm so confused I'm gonna have to look all this up and write it down to ask my Dr. about the different things I've found out on this website and my own research--ya know sometimes you do have to give them ideas--they are just people too---their brains can't think of everything all at once either.

Thank for the many things to research and for being thoughtful and very welcoming to the site.
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(¸.•´ (¸.•´ (¸.•´`•¸¸.•¨¯`•Tina

Atlanta, Ga.

Peripheral Neuropathy, Erythromelalgia, Churg Strauss Syndrome
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Old 06-12-2008, 04:12 PM #8
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Default

Quote:
Originally Posted by Silverlady View Post
It doesn't sound as if it is Raynauds.

Billye
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Originally Posted by DejaVu View Post
so very uncomfortable!

All of it!

I hope you have someone to "follow up" with on sorting this all out?

Please continue to take good care!
I am seeing a specialist at Emory University--just seems my symptoms have stumped him!! He is researching....and seems very empathetic and made feel very comfortable and that was very interested in what I have going on.
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(¸.•´ (¸.•´ (¸.•´`•¸¸.•¨¯`•Tina

Atlanta, Ga.

Peripheral Neuropathy, Erythromelalgia, Churg Strauss Syndrome
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