Thanks for the reply. I, too, have been the round of doctors before being diagnosed with cervical dystonia after my auto accident. But can you imagine a neurologist saying it is "hyperventilating" and the other, my MDS,
alluding that it was hormones. I have been menopausal for ten years and
doing fine. It is NOT that. I am going to try all the supplements mentioned
though I take some already. Certainly, neurontin is not helping much.
Just knowing other people have the problem is a help although I wouldnt wish any of this on anybody (well maybe for 24 hours for SOME of them). Support is so important!

I think you were on the ADA board the other day? So glad to see you here!!! Lots of good people here, good advise and support!
Barb

Oh yeah, I say this all the time!! At work, I get so frustrated when I get these looks! They make me feel like a hypochondriac and I am so much the opposite. I do not imagine these things, and often, I don't even mention them, they will catch me rubbing my leg or something, which is natural for us. As for my headaches, often that can be seen on a person's face, the eyes tell all. Usually another has to suffer a headache, to actually understand one, then they are very sympathetic, until they forget about the headache they had. I find they have to take a day off work for their headaches, if I did that, I would never work! One of my co-workers called in sick yesterday with a headache, she says to me, "I think it's a migraine, I feel kind of sick to my stomach too." I wanted to say "suck it up and get to work, like I do!", but I was the sweetheart I am, told her to feel better and maybe we would see her today.

Telling us it's hormonal is a cop out...I truly hate that line. I swear, male doctors love to blame everything on hormones...do they ever tell a man it's hormonal??? I have chronic dry eye, and my optmetrist gave me 3 reason for it: allergies, autoimmune diseases, and hormonal. I have celiac disease, which is an autoimmune disease, yet he refuses to believe my dry eye is because of celiac disease...it's hormonal, "because I am of the proper age for hormonal problems." I started menopause at 42, I am now 52, and had a total hysterectomy last yr, unrelated to menopause, no hot flashes, nothing...of course it's hormonal!!!!

DOCTORS!!!!

Deb