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Old 06-18-2008, 07:11 AM #1
pono pono is offline
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pono pono is offline
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Deb...
good to hear you found good DR. who's aware & taking action on so many issues--from vitamins, malabsorption to small fiber involvement.
My neuro recently told me I have small fiber neuropathy. hope you'll share more ...

I empathize w/ having chronic headaches . Dx's: occipital neuralgia, cervical dystonia, and complex migraines. Hope you find someting that helps your headaches, and your other problems.

good luck w/ tests.
will be looking for your updates
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Old 06-18-2008, 10:09 AM #2
dahlek dahlek is offline
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dahlek dahlek is offline
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Default Congratulations!

I have to admit that an actual DOCTOR contacting Doc John about you sort of made me a bit suspicious at first? But it sounds like this guy in tuned into a real-life folks in pain channel! Guess We ALL will have to be careful about what we say in the future? HUMMMMM?
But for you that all is so exciting? Silly that it's exciting to finally get tested the way you SHOULD have been tested ages ago? A POX on all those lazy biased or stupid prior docs!
I have to say that I'm envious of you getting heat/massage therapy on your neck. I'd had that for a knee injury before I'd gotten PN and IT WAS WONDERFUL!!!!! Just be careful about doing/overdoing it after any session...you will feel soo good and be inclined to just GO AND DO! Don't? Take things in steps as you haven't been able to do that much up to now.
As for headaches...I don't know too much, as I don't get them often. When I do tho, I know something is wrong. Ideally things can improve here as well for both you and Pono! tho likely for different reasons?
Yes there are good docs out there. Finding them is the hard part!
Pity BobB is at 'DA Beach!' because one of his best sayings is" there have to be some docs at the bottom of the class".
I'd do a jig, but I'd probably fall over...so take a mental one?-'s -j
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Old 06-18-2008, 10:32 AM #3
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Lightbulb hmmm

If the vitamins are showing up in your blood...then you are absorbing them.

But you may not be UTILIZING them.

Folic acid
B6
thiamine
B12

These require activation.
Activated forms are:
methylfolate
pyridoxal-5-phosphate
allithiamine
methylcobalamin

The Solgar company is making a DNA test to show which people are genetically failing in activating and utilizing certain vitamins in the body.

You can ask your doctor to give you RX for Metanx which has 3 of the B's in activated form. The thiamine you'd have to buy separately.

This thread has more information:
http://neurotalk.psychcentral.com/sh...ghlight=Solgar
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