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Old 06-20-2008, 07:50 AM #1
daniella daniella is offline
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Help

A few thoughts but first welcome to our community. I am sorry you are facing this. I am not as knowledgable as many here but have been to so many docs and many are idiots but you can't give up. I have seen multiple docs in the same field to get answers and tests run. Do you have insurance? What state do you live in? I think it is good you are going to a neuro and hopefully they will run an mri and other tests to rule out ms etc or find more answers. Since I don't know if you have insurance some of this may be hard. I would also try to find a good primary doc like an internist. How long ago did this start? Can a family member go with you to an apt? I am a younger one here too 29 and when I first started to go to apt I was unprepared. Now I am more armed. I always go with any test results I have,a list of my symptoms and questions. Don't back down if the doc brushes you off. I had to push so hard for one of my mris but they ended up doing it. Better to be safe then sorry. I know how scary this is and lonely. Anxiety is part of my life too because there is so much unknown. Please hang in there and I hope one of our experts will come along. Some of the info I learned here is better then some of the top docs I have seen at major hospitals
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Old 06-20-2008, 09:28 AM #2
dahlek dahlek is offline
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Default HI Mac! I hope we can help

steer you in the right directions for STARTERS. By 'starters' I mean that it's really too soon to say if you are anywhere NEAR getting diagnosed?
For starters I suggest you read the second 'Sticky' at the top section of this page. It's chock full of info about PN and diagnosis.

I think we all begin to panic when we get 'numb' thinking the worst such as MS. But many neuropathies are similar in the nerve destruction process to MS only in MS the problem happens in the brain, ours happens at the nerve 'ends'. Any really good neuro diagnostic workup is the process of eliminating the diseases that CAN be readily diagnosed, then they work down the 'problem tree'.
Read these sites and I hope they will help you understand the basics of the exam, and also how PN among other things are zeroed in on.
http://www.neuroexam.com/content.php?p=2 and
http://www.aafp.org/afp/980215ap/poncelet.html
In addition, check out the worksheets at www.lizajane.org for an outline of all the likely and less likely tests that and/could be done in the testing for various neuropathies. Be sure to get copies of your tests and other report results!
This should help you as you go down the medical diagnosis pathways we all have gone down. I know that mid-July seems a long way away, but it'll come faster than you know! Keep your anxiety down as low as possible. Stress never helps such things for sure. Do let us know how you get along and are faring! - j
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Old 06-20-2008, 10:25 PM #3
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Default Couple of questions...

When you lost your job, did you also quit eating correctly? Are you a vegetarian? I noticed you seem to know a lot of muscle names..are you a weight lifter and do you take supplements of any kind?

Billye
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Old 06-21-2008, 02:32 PM #4
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Heart Hi Mac...

and welcome!

I am sorry you are having a rough time.
Yet, you have come to a great forum for help!
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Old 06-23-2008, 01:06 AM #5
mac001 mac001 is offline
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Default Thanks guys

Thanks guys for your replayes

daniella- I live in Canada Ontario and all the medical tests are free or covered by government so i don't have to pay for anything. I am 28 and yes i can get a family member to come or a good friend. All of this started 5 months back.

Silverlady I moved to Toronto with a friend when i got a job its was my first time of being independent and i was wary proud you know being on my own, and no i did not eat that well like i would be if i was living at home where my mom cooks. Yes i did lift weights before but not any more but most of the symptoms started when i moved back home and i took this labor job which i did since high school and swore never to do again but money made me take it again and its being help to a granite shop where i would lift heavy granite stone up to 300kg or more with 2 another guys its wary bad on my body i stop dont that job and my body fells better. When i was living alone and i would come home to see my parents my mom would say look at him he lost so much weight. I mean i been sick for the most of my child hood lung operation and i don't think i can take another disease i mean i cant even think what my mom went through when i was a kid, jumping from hospital to hospital. And this is constantly on my mind i do so much research with every twitch or felling its driving me crazy i think i have it all from MS TO ALS. But other strange thing is when i don't don't think about it i don't have it, today i wen to Toronto to seem friends for weekend and i head nothing no symptoms and when i get home to my room its like i start to think.

Thanks guys for your help and i will see my nuro with the list of all the symptoms, and i will keep you informed
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Old 06-23-2008, 07:10 PM #6
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Default Good idea

I'm glad you are seeing a neurologist. Be sure to tell him about the diet issues (not eating right), lifting those heavy weights and were you breathing granite dust?

Billye
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Old 06-23-2008, 07:29 PM #7
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Default

Just wanted to say hello, and welcome you to NeuroTalk.

It's good to have you with us.

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