thanks for your answers guys - I really appreciate the support.

I have had all of the state of the art treatment for lupus, which is what is causing the neuropathy, including rituxan which is $10,000 per infusion, so I am very lucky. This kills off my b cells, which helps stop me creating the autoantibodies that attack my nervous system.

I suppose my damage could be called severe - I am just so used to it I don't see it like that. But I have to say numbness is MUCH preferable to that terrible soul destroying pain that I used to experience (on a scale of 1-10, that pain was a 22 !) so really I am not too bad.

I also have damage to my cranial nerves affecting my tongue, swallowing etc, I guess that technically isn't peripheral neuropathy but it is all part of the same process for me.

I am awaiting another nerve conduction study to see how things are doing.

Gotta run, off to Canada today which is really exciting for someone who lives down under.

Catch up with you soon (I'm sure they have computers in Canada hahaha)

Raglet

Hey Raglet!

I was not here when you'd stopped by!

Please let us know when you are back around!

I hope I am here the next time you drop in!

Take care!

Hi. Welcome and am I so sorry for all you face. I don't have much to offer other then this is a warm and very helpful community. I have learned so much from the people here. hang in there.

thanks guys - I am still away on holiday (yay!) so I am not on the internet much. But thank you for the very warm welcome. I hope to be more present when I am back home (bbuuurrrr, I am mid summer here on holiday in Canada - it will be back to mid winter at home - geesh, and I have been swimming at the beach).

cheers

raglet

Hi Raglet...hope u r enjoying your summer place up here in Canada.


take care