I have been going thorugh lots of testing to determine the exact nature of neuropathies for awhile now, since a severe exacerbation earlier this year.

On SSEP testing, we see slowed peripheral nerve responses in all limbs.
The LP came back without showing inflammatory markers.
EMG/NCV testing has also been done.
Skin puch biiopsy is positive for SFN.

We have found a muscle in each foot not responding, in EMG/NCV testing.
We have found slowing at the peroneal nerve area in the lower legs, specifically.

We have also found dramtic slowing at the ulnar nerve area on the left arm, with severe hand atrophy (which had occurred rather rapidly).

I have similar symptoms on the right side (arm/hand), although the testing does not yet show a dramatic slowing of nerve conduction there as of yet.

I have lost almost all strength and a lot of muscle in my left hand. (The hand is significantly atrophied and looks very different from the right hand.)

I will be having a subcutaneous anterior transposition of the ulnar nerve on this Thursday.

I have been told to not expect the return of strength and/or function that has been lost in my left hand.

The purpose for the surgery, at this point, is to try to arrest any further atrophy of the hand (wrist and arm area also now involved) at this time.

This is manifesting , symptomatically, in the right arm/hand, as well. However, we cannot find any actual nerve conduction slowing (specific to any nerve) at this time in the right side. We will keep a very close watch!

The orthopedic surgeon will do the surgery on the left arm this week.

We then hope this heals enough in time to perform the surgery on the right side before the damage is done on the right side!

I was told to expect the left arm/hand to take between 9 and 18 months to heal completely.

(We also will be further exploring whether we will need to perform any surgeries on the lower legs for similar reasons. My lower legs and ankles seem to be weakening significantly. At least one-half of one foot is numb.)

We have suspended all continued testing this month in order to have the surgery done. We will resume testing in late August.

I continue with a myriad of symptoms as we sort out the cause(s).

I will return to the forum as soon as I am reasonably able to do so!

You are all on my mind when I am away. I hope you each start to get more answers and are finding ways to relief and to healing, as well!

Big warm hugs to each of you!