Hi. I read your other post too. First on the note of the waiting for the neuro apt. I would call everyday till you get in. I know when I was waiting to get into Cleveland Clinic my apt was scheduled for 2 months out and I called everyday and got in that week meaning 2 months early. Could you call this gp and ask him to explain the results? My first emg/nc was not showing much so I had to have it repeated plus an ssep. Have you had an mri? I would ask for one of the brain and spine if not. I know I had to beg for the mri of my ankle but I got one after my mom flipped at the doc. What ever it takes. Better safe then sorry. Lastly and I know this time of the testing and unknown can be hard and create anxiety and a wandering mind of every possibility but try to stay present in the day. Hang in there and I hope you get the apt asap.

Hi Daniella,

Thank you for the reply. Yes I had an MRI in May 2007 of the head and cspine w/o contrast. They noted 3 very small non specific white spots between the grey and white matter.

I'm giving the Neuro's ofc til lunch time tomorrow....then I'm going to start calling them.

Thanks again everyone.

Can you specify when your "brain quakes" were happening.
Was it when you turned your head?
I am sure you looked up MS which is why you were thinking that you had it, as there is a sign "Lhermitte's sign", however, you can also get that in b-12 defeciency and other things.

Did they do an LP?

*I'm a frequent chatter at an MS chat, as I had no clue what was wrong with me in the initial stages of testing, and someone had suggested MS*

I hope the figure it out.

Hi diagnonsense,

I do not believe the brain quakes are a form or l'hermitte's sign. When I first started having them I thought maybe it was a form of seizure. But my EEG's are normal.

For the most part they seemed to have settled down. Head movement did not seem to set them off. I could be just sitting watch tv, not moving, and i would be struck with either spinning vertigo that lasted only a few seconds, the brain quake or a combination of both.

B12, other vit. and mineral, electrolites, kidney function, thyroid, sugar levels have all been normal.

No LP as yet. I am also a frequent chatter on some MS boards.

BTW nice to meet you.

Finally! Will be seeing the Neuro Aug 21/08. They tried to schedule it for November! I said I didn't think I could wait that long and told the nurse what has been happening for the last month. So she bumped up the appointment.

Now, in order to get them to call me I had to go through patient relations and tell them what had been going on.

My GP is back from holidays on Monday. I was thinking about asking him to refer me to yet another Neurologist as I am not happy with the current Neuro and his ofc staff. What do you think....should I try to see if I can get in sooner with another Neuro and start all over?

That seems to be a general (but verry irritating) trend in all the neurologists that I have been scheuduled with.
*The long wait*

I think you can keep the current appt. but try to call another place and see if they can get you in any sooner.
If they can, then you can cancel your current one.
Are you unhappy when you are seen??

My neurologist was dumber than a box of rocks. (thank the lord he referred me to Mayo)

On paper ....do you think these results look like a mild neuropathy? Never thought to ask my doctor.