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Old 08-13-2008, 07:59 AM #21
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Macophile Macophile is offline
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Quote:
Originally Posted by Capsilla View Post

Hi Terry,
As your symptoms sound similar to mine I am wondering if you might have a form of PN called erythromelalgia. Although this condition is most common in the feet it can also spread to other parts of the body. There is a genetic form of the condition but it can also be idiopathic. The main symptoms are heat, redness and burning sensations that are usually worse with activity and often worse as the day progresses. It is usually considered to be a form of small fiber neuropathy and can start gradually with slow progression or come on quite suddenly and severely. Symptoms are often relieved with cooling.
The usual PN drugs are used and can help to a greater or lesser degree - one has to experiment. There is an on-line support group for EM. Can provide more info if you wish.
Priscilla
OMG. My PN gets worse over the day too. Being at it's worse at night. My feet are swollen, and burn. The drugs they are using are not doing much.
Do you mind me asking what were your symptoms... like how red were your feet, and is you have to be relieved by elevation/cooling?
Thanks!
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Old 05-22-2012, 10:20 AM #22
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Hi I have to say having read this that you are the nicest most positive people I have encountered since my diagnosis. You give hope and really sound advice and somehow you take the fear away, thank you for that. The best of luck in your tests I'm sure now that you know what to ask there will be no stopping you, go for it. x
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