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Old 07-29-2008, 06:01 PM #1
diagnonsense diagnonsense is offline
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Join Date: Jul 2008
Posts: 90
15 yr Member
diagnonsense diagnonsense is offline
Junior Member
 
Join Date: Jul 2008
Posts: 90
15 yr Member
Default Mayo Clinic experience

I just figured I would tell about my experiences there thus far, incase anyone else ever plans on going there.
You can never have too many personal stories of Mayo.

I am going for my PN. (My local neuro had referred me)

My initial appt was 7/28/08.
I live in wisconsin 2 hours away, so I drove over, grabbed lunch with a friend, found parking, checked in, walked around, checked in upstairs, then was seen.

First I saw a resident. He asked me a bunch of questions. (my symptoms)
Then did the typical assessments that we all know. Muscle strength, coordination, etc.

Then I had to wait a while to see the superior Dr. (but I had to stay in my little room)... so I called my sister.

Finally I am seen, and they say my physical assessment was normal (like it was back at home), but they would like to run tests, but I need to come back for those since I am commuting.

They say something about a paraneoplastic pannel. (since I have had 2 months to do nothing but look up peripheral neuropathy, I know paraneoplastic, means cancer related)

Today 7/29/08 I drove back with my father.
I had 2 fasting tests.. not fun considering the drive over is 2 hours. Then the waits for testing is super long.
So I had blood draw, where they literally took probably 10 vials. And then a body CT scan.

I need to go back yet again for an EMG (even though I have had one in my own city)
And then I can follow up with the neurologist with the results, and then what their plan of action is from their (probably further testing is my guess)

I had a terrible day today though. I have bad veins apparently, so I was in much discomfort, and ended up crying 2 times.
I am glad to be back home.
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