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Old 08-02-2008, 02:43 PM #3
dahlek dahlek is offline
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Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Have you checked out .....

the MS Forum here? They are a good and active bunch of folks who'll likely jump in to help you!
http://neurotalk.psychcentral.com/forum17.html

Really, in my own Humble Opinion? MS and many neuropathies are 'cousins' of sorts in that they demeyelinate..it just happens at/to different parts of us. That said, rite now there are more treatments to help MS available than there are PN'ers.... Do NOT discount any diagnosis until all the tests are in! At the same time, don't worry yourself into an exhausted state in the process of getting a diagnosis. Save your energy for when it really counts! I've gone thru two auto-immune diagnosises and one cancer diagnosis and have been approaching the last two diagnosis's I got this way. Getting the FIRST one was hard enuf! Thank you!

IF you have a doc you trust to get to the real root of things [or even say "I don't know, I want you to see X"] is a doc to treasure always. However, if they're going you're a head case or the like? Go to someplace else where they either specialise in MS or Neuropathies [look up the hospitals' docs' training and where and in what specialities] and just go get a whole new work up if you can afford it/or your insurance allows [some plans do, mine did-saved my life!]

Stick to the key 3-4 main issues about your med issues...don't overwhelm a doc with the other stuffs - that can come in time. GET THE BIG stuff dealt with first. I suspect they mite shut off after #3? So go easy on them for starters.

Sure hope this helps. I've a SIL w/MS, and her husband, my brother didn't get it until he read something about my neuropathy I'd sent him from the NIH...he GOT the word 'demeyelination' and then understood. Just happens to us all in different places. Results - pain etc are still there.

's - j
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