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Old 05-20-2007, 08:36 PM #13
tjb48629 tjb48629 is offline
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Join Date: May 2007
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15 yr Member
tjb48629 tjb48629 is offline
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Join Date: May 2007
Posts: 1
15 yr Member
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I will tell you that my board certified neurologist ran every test there is to reach a diagnosis. She was 95% sure I had vasculitis based on all the findings. She suggested that I get a nerve biopsy done as that will tell us exactly what type of neuropathy I have. I had the biopsy done and it was confirmed I had vasculitis. I will caution you, I was on high doses of prednisone and because of that I ended up with an infection at the incision sight which caused me to be hospitalized for 2 days where I received high doses of antibiotics. I do have severe nerve pain at the incision sight which I take medication for 4 times a day. They explained to me that your nerve is like an electrical wire that has electricity running through it and you cut the wire. The electricity that is running through the wire just goes wherever because it is cut. The doctor said the nerve pain may never go away but there is no way to know. Even with the problems I had I would recommend the nerve biopsy so they know exactly what to treat you for. I currently receive IVIG as nothing else has worked to this point. It seems to be helping but have only had 2 treatments so far. I am hoping for the best. Good luck to you.
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