I had a skin biopsy a couple weeks ago that was sent to Columbia for analysis. I saw my neurologist and the biopsy confirmed I have small fiber damage. Since all the blood tests can back negative, he said the only remaining test would be to do a nerve biopsy. He said the three likeliest causes are my Crohn's Disease, vasculitis or hereditary. Since no one in either side of my family has had neuropathy, he doubts that as a cause. He said a nerve biopsy would leave permanent numbness in the area where the nerve is taken.

Has anyone had a nerve biopsy and how important do you think it is that one is done?