hi there

I have got the results to my nerve conduction/emg studies that I had done last week. Basically everything (sensory and motor) was reduced or absent in my lower legs, no surprises there. My hand problems are not caused by my neuropathy, but they are now thinking this is basically more damage to my brain so the signals are not getting through (honestly, this is ok, I have so many other areas where the signals are not getting through it makes little difference whether it is neuropathy or not). However, they expect my sensorimotor neuropathy to hit my hands very soon as I am right in the bottom range of normal and used to be much higher up the normal range ie my hands are being affected, they just haven't dropped out of the normal range just yet. So, I can expect to start loosing sensation in my hands sometime soonish, plus of course more motor damage which will be pretty meaningless as my left hand has already lost so much function.

But, my question is really about tibial f waves. Of course, I can wait and talk to my neurologist, but this is much more fun (hahaha). I talked to one of my docs today about it, and he gave me the results, and I expect to hear from my neuro in due course. The doctor who did it told me that some of my muscles have too much activity going on in them, which makes a lot of sense as they sort of lock up - spasticity really. My studies show tibial f waves in both legs, and I am thinking this is what the neurologist who did the study was talking about. My feet are very twisted and it seems likely that the spasticity is doing it.

So, does anyone know anything about tibial f waves ? I know they can be connected with spasticity (good old google) but most of what I read is just gobbledeegook.

thanks guys

raglet

I am sorry I have no idea but wanted to say sorry for having to face this and more. Did you ask where you go from here and possible treatments? I hope your neuro or other doc explains what is going on,why,and the next step. Hang in there

so sorry you are going through all of this! I sent you a link re f waves via PM. I wasn't sure if i could post links here.

(hugs)
Kelly

thanks guys - and the link was FABULOUS. Very interesting (says she pretending that she understood at least half of it hahaha).

I have no clues either whether we can post links here, but honestly it was just so useful that I am going to take the plunge and do it (always the rebel). Go have a look, and direct all thanks to lynxgal who found this link.

http://www.teleemg.com/new/jbr070.htm

I have amplified f waves which do seem to be associated with spasticity. This sort of spasticity is just a result of the neuropathy; weak muscles spasming.

I also had severe pain when they put the little emg needle into my mid shin - huge burning pain followed the path of the nerve down to my big toe. This was when the neurologist said that I had too much nerve activity. I have never had this sort of pain during an emg, it was like the old burning neuropathic pain I used to get in my hands. It's crazy I know, I have had the burning pain type neuropathy in my hands, but am awaiting the arrival of the sensorimotor neuropathy. Maybe I should send out the welcome wagon hahaha.

Has anyone else had this sort of severe pain during a needle emg ? The rest of it wasn't painful, just the minor stuff usually associated with this test. I was so busy coping with the pain and listening to the interesting stuff that the neuro told me that I didn't ask about the pain beyond indicating that it REALLY hurt.

thanks guys

raglet

btw, I will put in a link to a photo I posted about my foot on the lupus forum - it seems that the spastic muscles are twisting my foot like this. I wear splints that come up to my knees to keep my feet pointing in the right direction.
http://www.thelupussite.com/forum/sh...ad.php?t=71817

oh, I forgot to say there are some treatment possibilities for me - baclofen or botox injections are used for spasticity so I expect I will be trying the baclofen. So this could be good news for me, as if I can get some help with the position my feet curl into then they will fit better in my splints which would be great. One of my feet (left one) really fights the splint so we have had to put some extra straps on it. If it would just sit better in the splint I would be very happy.

cheers

raglet