This link is to the main page of PN forum. The subforum is at the very top.

http://neurotalk.psychcentral.com/forum20.html

I also have idiopathic PN in both my legs from the knee down. I have had this condition for about 6 yrs. Dr. had me on gabapantin for several years, but I never felt relief. About a yr. and 1/2 ago he put me on Lyrice. I take 50mg. 3 xs a day , and I can honestly say I am at least 70% better. It is definitely worth a try.

Gosh, looks like it's about 12 months since my last post.
I've been busy at work but have recently sold the business, so have more spare time now.
So here is an update.
I've kept up with the exercise's & have retained the muscle tone in my ankles & wrists.
I have willed myself to ignore the discomfort in my feet, but my palms & fingers are my biggest problem now. Super sensitive in some areas & almost numb in others.
My little fingers have a mind of their own, which can be interesting when typing.
If they get any worse I might have to tape them to the next fingers to keep them under control.
Fortunately I don't have pain anywhere. Occasionally I get cramp in the lower legs, so have been taking Magnesium capsules. Seems to be helping.
Only other thing I am taking is the B12. Last test results showed levels at 1393.

Update.
Two years since my last post.
Now 61.
My hands have got a lot worse.
Now getting pain, worse when the barometer is low.
Unable to work, so no income.
Fortunately my wife works part time.
I do all the meals.
Recently bought a cake mixer & have been getting into baking.
Just surprising what you can still do if you are able to take your time.

I'm still keeping up with the exercise.

Have been seeing a different Neurologist who appears to be taking a bit more interest in my problem.
Some recent tests including a lip biopsy have produced a positive for Sjogren's.
I was surprised at this, as I didn't have the common symptoms, ie dry mouth & eyes.
But have been told this is not always the case.
This was only yesterday, so my Neurologist has yet to decide weather to proscribe any meds.

Have you been to a hand specialist?

There are various disorders of the tendons and fascia of the hand.
A hand specialist may be able to help you more in this regard.

Thanks your reply.

No, havent seen a hand specialist.

The neuropathy in my hands is part of the ongoing which started in my feet.
My previous posts in this thread explain my journey to this point.

Do yourself a big favor and order "The Re Builder on line" My wife couldn't live without her lyrica three times a day. Now, she can't live without her ReBuilder. Her numbness, tingling, pain is just about gone. Get two storage containers, one for each foot. Add electrolyte solution and that's it. Get the pads. You can treat your hands also. Read up on it. It works.

Earlyboy is referring to an EMS TENS device.

I considered getting one of those.
My neurologist told me I would be wasting my money.
I did some research into it anyway.
Results were mixed, depending on what was causing the Neuropathy.
I would have gone ahead & got one if there had been any positive results from someone with the same problem as I have.
I also got the feeling a lot of the positive feedback was from people with a financial interest in the device.

earlyboy, could I ask the nature or cause of you wifes Neuropathy?

Ok so here we are five years further on and another update to my thread.
My symptoms had been fairly constant during that time with the main increase being in my hands.
I am still keeping reasonably fit with walks & bike riding.
However a new issue is developing and I'm a bit concerned where it may lead to.
A couple of weeks ago I noticed a tender spot halfway down my spine. Felt like an area was protruding out & was sore to lean against or lie on. After another week I noticed pain across my lower back, hips, sholders & neck. Thinking I may have caused it through over exertion, I did the usual exercises but it didn’t help.
The pain got bad enough to need pain killers just to get up & dressed in the mornings.
Was ok in bed for a while, just turning over was a mision.
But last night I had to take a pain killer just to get through.
I am only using Paracetamol atm which seems to do the trick.
One every four hrs allows me to do my normal things with managable pain.
I guess I should consult my GP re this but with the covid 19 thing & the lockdown, not all that easy.