advertisement
Reply
 
Thread Tools Display Modes
Old 05-04-2009, 05:32 AM #61
numbfoot numbfoot is offline
Member
 
Join Date: Oct 2008
Location: New Zealand
Posts: 123
15 yr Member
numbfoot numbfoot is offline
Member
 
Join Date: Oct 2008
Location: New Zealand
Posts: 123
15 yr Member
Default

Hey thanks for that, but I'll be trying my hardest to avoid having to get one.
numbfoot is offline   Reply With QuoteReply With Quote

advertisement
Old 05-04-2009, 05:55 AM #62
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Quote:
Originally Posted by numbfoot View Post
Thought I'd better get back onto my own thread.
I am concidering adding Lipoic Acid to the B12 I am taking, in the form of Javenon.
As yet can't find any in this country.
Can get Alpha Lipoic Acid in 200mg capsuals.
Not sure if this suitable, so havent bought any as yet.
Another name has has just been given to me, Lephratax.
Looks worth concidering on google.
Did a search for it on this forum but nothing came up.
Anyone have any experience with it or know if it may help with my problem.
Holy Smokes....that is expensive!

I believe iherb.com ships to New Zealand.
http://www.iherb.com/info/shipping/ShipNZ

You'd do better with r-lipoic acid (improved Alpha lipoic) and benfotiamine IMO.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 05-04-2009, 04:29 PM #63
numbfoot numbfoot is offline
Member
 
Join Date: Oct 2008
Location: New Zealand
Posts: 123
15 yr Member
numbfoot numbfoot is offline
Member
 
Join Date: Oct 2008
Location: New Zealand
Posts: 123
15 yr Member
Default

Thanks mrsD, I'll sorce some of that.
Any thoughts on the Lephratax.
numbfoot is offline   Reply With QuoteReply With Quote
Old 05-04-2009, 04:46 PM #64
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I don't get a good feeling for the Lephratax.

When herbs are used, they are NOT used in milligram amounts.
All those herbs listed are teensy amounts. Any active ingredients, which I don't have the foggiest as to validity, would be in there in ultra teensy amounts (microgram perhaps).
http://lephratax.com/ingredients.html

I just don't think it is worth the money. I haven't had time to search all the ingredients.

You can search at this location:
http://cms.herbalgram.org/herbstream...onE/index.html

Commission E is the world gold standard on herbal extracts.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 05-04-2009, 05:51 PM #65
numbfoot numbfoot is offline
Member
 
Join Date: Oct 2008
Location: New Zealand
Posts: 123
15 yr Member
numbfoot numbfoot is offline
Member
 
Join Date: Oct 2008
Location: New Zealand
Posts: 123
15 yr Member
Default

Thanks for that.
Found a NZ supplier for "Doctors Best, R-Lipoic Acid" & have ordered some.
$45 for 60x100mg.
numbfoot is offline   Reply With QuoteReply With Quote
Old 05-07-2009, 03:37 PM #66
kevin57 kevin57 is offline
New Member
 
Join Date: May 2009
Location: perrysburg, oh
Posts: 3
15 yr Member
kevin57 kevin57 is offline
New Member
 
Join Date: May 2009
Location: perrysburg, oh
Posts: 3
15 yr Member
Default I know how you feel.

Quote:
Originally Posted by numbfoot View Post
Hi
I am a 55 yr old male who has been diagnosed with Idiopathic Peripheral Neuropathy. It started in my right forearm, and then progressed to my right shin, top of right foot and big toe. Once it started to effect the left hand side of my left foot I sought medical advice, but by the time I got to the neurologist I had it in my fingertips also. I was told that as it is Idiopathic, (having no known cause) there is no known cure, therefore no medication was prescribed. That was 12 months ago, since then the Neuropathy has taken over almost all of my right foot and progressed up to my right knee, fortunately no other areas have changed. While I am aware the effects of this condition vary between individuals, I am egger to hear from anyone who may be able to enlighten me on possible further progressions.
Whoa!
Man can I empathise with you. I am a 52 year old male who started having problems about 3 years ago. Problems started in my right hand - numbness and burning and pain got so bad that after 2 hours of mousing (right handed machine designer) that I felt like throwing up and then started gabapentin - 900mg/day. Diagnosed as occluded ulnar nerve and had double surgery on my wrist (2" cut) and inside forearm (6" cut thru muscle) to cure the problem. Worked for about 6 mo. and then all problems came back progressed up past my elbow. After about 12 mo. it appeared in my right foot and started with the big toe going numb and then the whole foot followed (with shooting pain from the toe back to the heel). Next the left hand on top up to the wrist and left big toe and top of foot up past the ankle (all within about 6 mo. time).
I am now taking 1200mg gabapentin 3 times a day to control pain but if I miss a dosage pain in feet and right hand reminds me - aldo have burn thru even with this dosage. I was diagnosed last week with Small Fiber Polyneuropathy at the Cleveland clinic. I also have hypertension (160/100)
that is partially under control (was 240/110). A little anti anxiety medicine helps as well. Good luck and keep a posoitive attitude and I have found that sharing with others helps quite a bit - I used to keep it all inside but that is not the way to go.
kevin57 is offline   Reply With QuoteReply With Quote
Old 05-07-2009, 10:15 PM #67
numbfoot numbfoot is offline
Member
 
Join Date: Oct 2008
Location: New Zealand
Posts: 123
15 yr Member
numbfoot numbfoot is offline
Member
 
Join Date: Oct 2008
Location: New Zealand
Posts: 123
15 yr Member
Default

Hi Kevin
Sorry to hear you've joined the club.
Sounds similar to me.
I found the pain stopped after I started on the B12.
Not saying it cured it, but thats when it stopped.
I have got pain relief but don't use it at all.
Was any cause for your Neuropathy found.
numbfoot is offline   Reply With QuoteReply With Quote
Old 11-30-2009, 09:53 PM #68
numbfoot numbfoot is offline
Member
 
Join Date: Oct 2008
Location: New Zealand
Posts: 123
15 yr Member
numbfoot numbfoot is offline
Member
 
Join Date: Oct 2008
Location: New Zealand
Posts: 123
15 yr Member
Default

I see it's been 4 Months since I updated this thread.
Well the 60x R-Lipoic Acid went through the system un-noticed, so I've put them on hold.
There has been no noticable changes in my symptoms in that time.
I am still fortunate that I don't have any continuous pain. Occationally I might get a servere cramp like pain in any of the effected areas, but it only last a few seconds.
Regarding driving with an effected right foot. I can feel pain, moisture & temperature but not pressure. So I have a few problems driving a vehicle with a manual transmission.
Anyone else been down this road? (no pun intended)
numbfoot is offline   Reply With QuoteReply With Quote
Old 12-31-2009, 07:09 PM #69
Jack Futerman Jack Futerman is offline
New Member
 
Join Date: May 2009
Posts: 2
10 yr Member
Jack Futerman Jack Futerman is offline
New Member
 
Join Date: May 2009
Posts: 2
10 yr Member
Default

Quote:
Originally Posted by glenntaj View Post
--that the Liza Jane website seems to be having problems; I'll contact her and see if she knows what's going on there. (It really is a very comprehensive listing.)

And don't worry, numbfoot, about feeling a little bit underqualified; we've all been there at one point of another. It's just that having this condition drives a lot of us to become experts in the area, and to devour information and literature, since so few of our doctors have a similar motivation.
Numbfoot
I have been suffering from idiopathic peripheral neuropathy for about four years. As a general rule the ideopathic variety of peripheral neuropathy does not get worse.
I have not seen any posts about how family members have reacted to the chronicity of this invisible condition?
Jack Futerman is offline   Reply With QuoteReply With Quote
Old 03-18-2010, 04:50 AM #70
numbfoot numbfoot is offline
Member
 
Join Date: Oct 2008
Location: New Zealand
Posts: 123
15 yr Member
numbfoot numbfoot is offline
Member
 
Join Date: Oct 2008
Location: New Zealand
Posts: 123
15 yr Member
Default

Just an update.
I am a few months late replying to the previous post.
My family is very understanding of my condition.
We are fortunate that we are not directly reliant opon my income.
However I do still manage to generate a few dollars.
I have also taken over the cooking & have even managed to turn out some cookies & cakes.
My condition seems to have stabalised & hasn't changed much in the last 6 months.
I still take the B12 every morning.
numbfoot is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
peripheral neuropathy mommab New Member Introductions 5 09-05-2010 03:17 PM
Aussie with Idiopathic Trigeminal Neuropathy Batman1969 New Member Introductions 8 02-17-2008 10:49 AM
Ok test results = idiopathic neuropathy? jimj Peripheral Neuropathy 19 10-07-2007 10:05 AM
New member with idiopathic neuropathy doxey New Member Introductions 4 05-01-2007 08:11 PM
Peripheral Neuropathy trish New Member Introductions 1 02-24-2007 08:08 AM


All times are GMT -5. The time now is 08:39 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.