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Old 10-12-2008, 02:03 AM #1
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Thanks for your replies, I am talking all your advice & suggestions into concideration.
My B 12 test was normal as were all of the others.
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Old 10-12-2008, 04:05 AM #2
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Finally managed to get onto the lizajane site.
Looking at it now.
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Old 10-12-2008, 05:03 AM #3
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Quote:
Originally Posted by numbfoot View Post
Thanks for your replies, I am talking all your advice & suggestions into concideration.
My B 12 test was normal as were all of the others.
A B12 measurement is almost a random number. It does not correspond well with functional B12 status and should not be believed. I and others on this forum can give you proper peer-reviewed medical references that confirm this. If there is any possibility at all that you have a B12 deficiency then you really should start taking a supplement, after, if possible, having your homocysteine and methylmalonic acid measured. These measurements (particularly methylmalonic acid) are much more more sensitive and specific for functional B12 deficiency than a blood B12 measurement. (I had to spell methylmalonic acid for my GP when I asked for the test - most doctors don't know about it). If you are B12 deficient, then the longer you wait before starting supplements, the more permanent nerve damage you will suffer. If you are not B12 deficient you are extremely unlikely to experience any adverse effects of supplemental B12. As far as I know there are no documented adverse effects.

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Old 10-12-2008, 06:03 AM #4
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Quote:
Originally Posted by numbfoot View Post
Thanks for your replies, I am talking all your advice & suggestions into concideration.
My B 12 test was normal as were all of the others.
Is useless when it comes to B12. Some doctors tell you normal when you are at 200... and this is WRONG...you can be suffering damage at that level. Most doctors have NOT kept up with new information, and labs continue to show lower ranges as "normal". So get your numbers...to be sure.
Anything below 500 should be treated. And some feel that anyone with neuro symptoms who tests borderline to above 500 should also take B12.
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Old 10-12-2008, 04:46 PM #5
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OK time for action.
I will contact my Neurologist & ask for copies of all my tests.
I will also get my B12 retested & homocysteine and methylmalonic measured.
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Old 10-19-2008, 08:40 PM #6
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Just an update.
My Neurologist wasn't able to come up with any more test results than I already had.
There was no record of, homocysteine and methylmalonic acid levels having been taken.
I have an appointement with my GP in 2 days to arrange getting this measured & also to get more precise B12 figures.
I will discuss with him the relevance of getting any other tests redone to obtain more precise results.
I had started taking B12 supplement last week but have stopped now in case it may influence any further test results.
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Old 10-20-2008, 08:46 AM #7
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I always err on the side of caution.
As far as B12 is concerned, anything under 600
is suspect, in my book.
B12 taken in the Methyl-cobalamin (not cyano-cobalamin) form, is the best absorbed type of B12 supplement.
I take it sub-lingual (under my tongue) 1000-2000mcg/day.
I've been taking it for over 6 years, and it has helped slow the progression of my PN, significantly.
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Old 10-20-2008, 04:28 PM #8
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Rather than read back through all your posts, what is the extent of your PN & is it Idiopathic?
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Old 10-21-2008, 08:41 AM #9
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numbfoot,
Are you talking to me?
I'm a 64 y.o. male.
PN Dx'd 1998, major suffering since 1992-93
Random foot pain since the '80's.
Both feet & legs to the knee. Both hands and forearms.
Supposedly 'alcoholic' neuropathy (some disagreement there)
as "predominately sensory axonal polyneuropathy
of length dependent nature
". (Johns Hopkins)
CTS in both hands, right needing cortisone shots every 10 mos or so (to stave off surgery that I cannot give the recovery time to).
Pain levels, w/o meds 7-9. With Lyrica 3-5, sometimes a 2.
Pain under control well enough to continue to work - self employed (30 yrs).
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