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Old 12-31-2009, 07:09 PM #1
Jack Futerman Jack Futerman is offline
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Quote:
Originally Posted by glenntaj View Post
--that the Liza Jane website seems to be having problems; I'll contact her and see if she knows what's going on there. (It really is a very comprehensive listing.)

And don't worry, numbfoot, about feeling a little bit underqualified; we've all been there at one point of another. It's just that having this condition drives a lot of us to become experts in the area, and to devour information and literature, since so few of our doctors have a similar motivation.
Numbfoot
I have been suffering from idiopathic peripheral neuropathy for about four years. As a general rule the ideopathic variety of peripheral neuropathy does not get worse.
I have not seen any posts about how family members have reacted to the chronicity of this invisible condition?
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Old 03-18-2010, 04:50 AM #2
numbfoot numbfoot is offline
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Just an update.
I am a few months late replying to the previous post.
My family is very understanding of my condition.
We are fortunate that we are not directly reliant opon my income.
However I do still manage to generate a few dollars.
I have also taken over the cooking & have even managed to turn out some cookies & cakes.
My condition seems to have stabalised & hasn't changed much in the last 6 months.
I still take the B12 every morning.
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Old 03-19-2010, 12:16 AM #3
Ladysheets Ladysheets is offline
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Smile peripheral neuropathy

I have PN and am 46. Mine is from disc in my cervical spine that are pushing on nerves and disc in my lumbar spine along with spinal stenosis that are pushing on nerves. It can be very painful at times. I take amatriptyline 75mg every night it has helped me very much with the nerve pain in my arms and hands at night.

i have a lot of muscle spasms in my legs, i lose all feeling in my legs and feet when i walk very far. I have started using a cane because i feel so unstable at times.

I do not have insurance and i have been denied disability but have not stopped trying. i have a hearing sometime this spring or summer coming up again.

Its an awful feeling to have this.And feeling like i am never going to be able to get any help.
i get really discouraged with it all at times.

it feels good to just see others here who do understand.
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Old 06-04-2011, 11:52 PM #4
numbfoot numbfoot is offline
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Thought I should update this thread I started.
PN has now progressed into my hands. Problems with temperature control & holding on to things. Trying to do up buttons is awkward. Still no pain fortunatly. Don't know if that is a result of taking the B12 but are not going to stop just to find out. In fact are going to up the dose from 1000 to 5000 & see if it helps.
During the latest tests they found I had prostate cancer so had to get that chopped out last year. Now any woman is safe to be with me.
Just sitting here on my hands pondering what to write next.
Once I got the all clear from the cancer, my wife & I started a new business which keeps me busy & takes my mind off my problems. So I will chug away at that as long as my health permits. I know, if I just gave up & sat around feeling sorry for myself, then I would probably go down hill rapidly.
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