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Old 10-10-2008, 10:54 PM #11
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Originally Posted by jess18 View Post
Thank you MrsD for your thoughts and advice. What is tramadol? I will look into it. I will be seeing a Pain Management specialist at the end of the month as well as my Neuro dr. I hope to have more relief.
I don't walk around bare foot anymore due to pain and burning. To many side effects on Lyrica so I just stopped. One month and Im now used to it. I try to convince myself its just burning and there not actually on fire
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Old 10-11-2008, 12:54 PM #12
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So you still have some burning huh, after a month? What are your expectations?
Thank you so much! I know. I get impatient. I have only now been on the Neurontin for 19 days. I suppose I can't expect miracles. I suppose I don't now what my expectations should be. Should I expect an overall drop on a pain scale of (0-10) .. to be around a 3-4, or should I expect with the drugs that they should be a 0-2?? i guess I don't know since I never had to go through nerve pain before.
By Monday I will be on 1800mg, for neuro burning pain. I have had a decrease in my pain from a month ago when I was waking up every 3 hours and couldn't find a comfortable position to sit, stand or lay down. The difference was the Neurontin and Lexapro 10mg. So there has been SOME progress. Like I said, what should I be looking for with my treatment, a manageable amount of pain, or 0-2 everyday? I suppose i have been lucky too, as I have not had any side effects thus far.
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Old 11-07-2008, 10:45 AM #13
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So you still have some burning huh, after a month? What are your expectations?
Thank you so much! I know. I get impatient. I have only now been on the Neurontin for 19 days. I suppose I can't expect miracles. I suppose I don't now what my expectations should be. Should I expect an overall drop on a pain scale of (0-10) .. to be around a 3-4, or should I expect with the drugs that they should be a 0-2?? i guess I don't know since I never had to go through nerve pain before.
By Monday I will be on 1800mg, for neuro burning pain. I have had a decrease in my pain from a month ago when I was waking up every 3 hours and couldn't find a comfortable position to sit, stand or lay down. The difference was the Neurontin and Lexapro 10mg. So there has been SOME progress. Like I said, what should I be looking for with my treatment, a manageable amount of pain, or 0-2 everyday? I suppose i have been lucky too, as I have not had any side effects thus far.
Jess, I'm unlucky enough to have a very high tolerance to pain medication. This means I have to start out with more meds than the average person. I am currently on 3600mg per day of Neurontin and 30mg per day of Methadone. This relieves about 70-80% of the pain and usually enough for me to have a somewhat normal day. But I know that sometime down the road (and how long, I do not know) my dosages will have to increase to cover the pain levels. But for now, I do pretty good.

Jay
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Old 11-07-2008, 05:34 PM #14
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I have two different pain origins: P/N of the feet and lower legs, and perianal fissures and strictures at my j-pouch anastomosis. The shooting and burning of the feet can be quite sudden and difficult, but the burning, searing, cutting pain from the fissures can stop me in my tracks and take me to tears.

I am struggling to maintain some level of control (the pain will never be completely gone) with 250 mg of vicodin and medical marijuana. I often can have several very pain free hours using this combination, and have told my doctors that I hope to not have to graduate to anything stronger.

However, I would like to try tramadol, unless there are any negative side effects that I am not already exposed to.

I am lucky to be in a medical state and to have access through a very good patient coop for my "herbal" remedy. As often as I can I bake "medicated" gingerbread cookies that give me up to 5-7 hours of relief. These I can tote with me and don't have to worry about the social factors of using marijuana medically.

I have recently begun working with a pain specialist, but have a long way to go. I am just coming through a period of severe exacerbation, which I really hope to get a handle on through the pain clinic. They only use morphine and methadone . . . neither of which do I want to, nor am I at the stage, to use.
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