Not according to the sleep doctor. I really am not sure of anything anymore. The doctor says if the headaches do not go away, we have to go down another path, with the shoulder pain and all, he is thinking fibromyalgia, which is something else I do not need to deal with. I think the headaches all stemmed from the malnutrion from my gluten eating years, which also can account for so many other problems of mine!

I agree totally!!!!

what I'd intended at all? It's more like, where we each are NOW and how we measure progress or lack thereof.

As long as I CAN get out of bed, tho not gracefully? I'm a happy camper! I can get up and try and DO a WHOLE DAY! When I'd first gotten PN, it'd take me about 15-20 minutes of contortions to GET OUT! So I'm happy with the flomps and flops! Just so's I don't fall out of bed?

Also, for others? The few who've responded show how differently this all effects/affects us. Each of us IS different! But to new folks you mite just see yourself in there somewhere!

Hugs and hope and good things! - j

After 16 years of "idiopathic" PN (now autonomic), every day is a bad day. I just grade them bad, very bad and plain b----y dreadful. My two main regrets regarding my PN generally are 1. Taking omeprazole (Losec originally) for a mechanical defect in my oesophagus which caused reflux of stomach acid. I did not know about B12 depletion and the "way out" levels until I joined Braintalk about 5 years ago. 2. Ever starting on gabapentin (Neurontin) about ten years ago. As I have stated in previous posts, I believe this drug to be one of the biggest disasters for neuropathy sufferers as it requires titrating eventually up to a very high dose (3600mg or even more) which at that point means one has to stay on that dosage for ever or else go through a period of horrendous withdrawal. One is then left with pain medicines only, which usually leads to some form of narcotic.

In the interests of decorum here I will not say what I would consider to be the requirement of a good day.

Tony

PS I would just like to add that I do not doubt for one minute that many members here suffer far more and worse symptoms than I. However we all have our limitations and react accordingly to our individual sufferings. I would just not want anyone to think I was making comparisons or courting sympathy.