FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
#1 | ||
|
|||
Junior Member
|
Hi all
I have been doing the peripheral neuropathy bit for 18 months of more. EVERY test that I've had (many, many on LizJane) have been negative including the last bunch ordered by a peripheral neuropathy specialist. I also had the skin biopsy a couple of weeks ago and eagerly (can you believe I want a positive SOMETHING) awaiting it's results. To name but a few and probably forgot many, the usual CBC, lytes, B12 (then the specialized B12...methy...something), sjogrens, celiac disease, GTT. homocystine, all thyroids, heavy metal, ncv, emg, anti hu, immunglobulins A, M and G. Apparently mine is small fiber as dont currently have any motor/autonomic involvment. I am 64, female, and have the burning in feet, legs, hands and arms. Is it possible to have idiopathic and still have a negative skin biopsy? ![]() ![]() really dont think I am) Also had brain MRI (normal ![]() have tried by omission many meds, supplements, laundry detergents, and add many of the suggested supplements without any changes. Sorry for the rambling I did so hope something would show even if it wasnt good. THEN I could maybe deal with the problem better. Yeah, part of the bigger picture is I feel no one seems to understand. Again, I know I am repeating myself but when you have a broken leg people see, when you have some other horrible things labs show...Guess I shouldnt give up hope for a positive skin biopsy yet. Dont see how it could be negative with all the burning BUT...I know it may not change the treatment or lack there of but at least there would be some credence. |
||
![]() |
![]() |
|
|
![]() |
||||
Thread | Forum | |||
this is our "Gold Standard drug" - carbidopa/ levodopa side affects! please read... | Parkinson's Disease | |||
NEWS: Parkinson’s Clinic of the Ozarks named to “gold standard” in Parkinson’s care | Parkinson's Disease | |||
"Gold Standard" rant | Gluten Sensitivity / Celiac Disease | |||
origins of "the gold standard"? | Parkinson's Disease | |||
Is the neuropathological ‘gold standard’ diagnosis dead? | Parkinson's Disease |