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Old 11-24-2008, 06:55 PM #7
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Onset was semi-fast....

A month from the toes being affected to the ankles and hands [when I went to the ER] up to the knees and the elbows. while waiting...
Took me a year and 3 neuros to get the diagnosis of CIDP [Chronic Inflammatory Demeyelinating Polyneuropathy] After that diagnosis further progression was slowed to less than the movements of tectonic plates? Treatment for this is expensive as in $$$$$ mega, but, I'm lucky with good insurance? Before then tho it was downright scary. BUT....Many issues can come into play and tests are extensive! You will be MRI'ed, CT'ed and blood tested out the wazoo. On the stickies above there is a reference to that and many other neuro issues that can cause your problems.
http://neuromuscular.wustl.edu/alfindex.htm This index cites ALL possibilities, and it can be mind-boggling? It takes Time and copies of your own test results in-hand to even begin to try and learn about what all is going on with your body. I do know different states have different rules about YOU the patient getting copies, well, just ask your doc for copies of the tests of all sorts and YOU do some research on them! You mite be surprised about what all you can find out about yourself in this quarter. Test results are the most useful tool to help YOU find out what all is going on! That is my most HUMBLE opinion?

OK Did you call your docs???? Say yes or no...and why.
In the meantime don't panic - good things for the interim? - j
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